I'll never know if I had adenomyosis

I'm not sure why this is bugging me so much. Before my LSH I mentioned adeno to my ob/gyn and told her I was really wanting to find out if I had it. I had endo already, but for the past 2 yrs had new symptoms that seemed like those of adeno, and the pain had gotten ridiculous. So after my LSH, she said the pathology report looked good. No cancer, etc. But then she said it didn't look like I had adeno but it was hard to say because they had to chop it up to remove it, and it's hard to see on the smaller pieces. So now I'll never know if that's what was causing all the additional symptoms. Has this ever happened to anyone else? Isn't there a lab test to check or do they just eyeball it??

It is a physical condition - cells growing between the endometrium and the uterine wall. If you had a very mild case they would not have seen it. If you had more than a very mild case, they would have noticed it as they removed the pieces. My gut is that if you had it, it was very minor and probably did not contribute to your pain in any large extent. In my case it was visible on MRI so it was also noticable when they removed the organ. Again, it's not like cancer - not a cell change - but cells growing in the wrong place, so yes, it would be difficult to see if the organ was cut up.

Let it go, don't dwell on that which you cannot change; be glad your problem is behind you and embrace the painfree life you will enjoy here on out!!

I would get a copy of the pathology report. That's what I did. You have acsess to all that stuff, legally they can't withold it from you. You just have to go to the hospital where you were and sign a form for a copy of your medical records. I discovered so much more by getting my own copy than waiting on the doc to read stuff to me. I just looked anything I didn't understand up on the internet. ;-)

I guess one way to look at it is that it doesn't really matter now. If you had it or didn't have it, you certainly won't have to deal with it anymore! Try not to dwell too much on things you cannot change, and try to ask yourself why it really matters. If you had it, or didn't have it, how will it affect your future? Good luck and I hope you are recovering well!

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Originally Posted by nieceMB I would get a copy of the pathology report. That's what I did. You have acsess to all that stuff, legally they can't withold it from you. You just have to go to the hospital where you were and sign a form for a copy of your medical records. I discovered so much more by getting my own copy than waiting on the doc to read stuff to me. I just looked anything I didn't understand up on the internet. ;-)

I was going to say the same thing, get the report. Also request your surgery records from the hospital. Sometimes you can get some interesting stuff from those that help you understand things better.