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I was recently diagnosed with Vaginal Lichen sclerosis and I already had vaginal atrophy to the point that intercourse is impossible. I've tried Vagifem and now am on Premarin cream twice weekly. My problem is that I can't even insert the aplicator to use the vaginal cream. I can't even insert a finger past the second joint. I called my DR and she said to just keep using the vaginal cream by inserting as far as I can. Shouldn't I be examined? It seemed as though she thought I was exagerating the condition.
I'm in such horrible pain that sitting, peeing, pooping and sex all hurt horribly bad. I would like any advice you can give me.
There is one recommendation for a course of treatment that includes clobetasol to get any LS outbreaks under control. From there a combo rotation of testosterone and estrogen to help the tissues heal and build up.
You can check out information from Dee Troll, she has had LS for a long-time and it may provide you with information to discuss with your Dr.
I use Estrace and a compounded testosterone.
You should be examined preferably by a Dr. that is familiar with how to treat LS.
I actually had the biopsy done in my mouth. Both ends flared up at the same time. The biopsy in the mouth was positive for lichen planus/sclerosis. Things are just falling apart. I can see what this stuff is doing to the inside of my mouth and gums, I can only imagine what is doing inside my v. All I know is this only makes the vaginal atropy worse. A visit to the GYN is horrible, she cannot use the speculum (sp) or even examine me properly.
I don't know if mine started after my hysterectomy due to the hormonal changes from the BSO / surgical menopause or not but luckily a uro-gyn caught it really early for me.
It is an auto-immune condition that they believe is partially genetic and also related to hormones in some way. It is more common in menopausal women and if young girls get it the symptoms abate when they start menstruation.
Sounds like you definitely need to find someone who knows LS.
Wonderful news I just found out that Dee has a new website that references materials and the LS support group. Here's the Living with LS website.
There are also a few items in the Resourcese forum for AutoImmune disorders
I'm reading all this & getting ideas. Have had LS for two years. I want to be intimate with my husband again but it is very uncomfortable. My many contact dermatitis allergies prevent the use of nearly all lotions, etc.