Ooph or hysterectomy? PLEASE HELP!

I have a long story. I am a breast cancer and thyroid cancer survivor. I have been on tamoxifen for just over two years. I went to my PCP because I felt bloated and full. Had a pelvic ultrasound which showed endometrial thickening -- had endometrial biopsy (benign) and also sent for pelvic MRI.
MRI showed fibroids, polyp and adenomyosis. Also, fibrous areas on right ovary which did not show up on ultrasound.

Had polyp removed (benign) and had D&C. Follow up MRI three months later to evaluate fibrous area on ovary. Report said most likely normal ovarian stroma, but bilateral fibrous tumors could not be ruled out. Gyn surgeon said I could follow up with another ultrasound in 6 months.

I did not want to wait that long and I was also worried that since ultrasound never showed fibrous areas on ovaries, why would I have one? Ended up with CA 125 test which came back mildly elevated so I was referred to a gyn onc.

Now, I cannot decide what to do. The ovaries are definitely coming out -- I am not yet in menopause, so will have to endure surgical menopause. Do I also have a hysterectomy?
Doctors have said it is up to me -- not necessary, and I cannot decide.

It seems ironic that I am getting ovaries out when I went to doctor because I could feel my uterus (it is enlarged). So do I have surgery and leave it in? I am afraid to have more surgery that is elective and my PCP tells me horror stories of women who suffer vaginal prolapse after hysterectomy and tells me to keep uterus.

But part of me is afraid to have surgery to remove ovaries and have to go back a few months later because my uterus is still bothering me. -- that plus I have a lot of stress until I have ovaries out and see what's in there.....Doctor says I am not high risk for ovarian cancer, but it cannot be ruled out until they are removed and sent to pathology.

Any advice?
Thanks

Hi 50 out,

I am sorry you are going through this and understand your concerns. With your history, it would be a good idea to seek the advise of a GYN-Onc to determine your risks and get help with recommendations for the safest path for you. A second or third opinion is a good idea with any major medical issue, even if you trust and adore the doctor you have now.

Please keep us posted.

I have already seen a GYN ONC -- and talked to all of my doctors -- I have quite a few. ONC, PCP, GYN Surgeon, GYN ONC....no one has specifically told me to take it all out. They say it is up to me. The only thing they all agree on is that the ovaries must come out.

But, after much thinking, and since no one here really had any advice, I have decided to take out everything. See the gyn onc tomorrow to schedule surgery.

Can't wait for instant menopause with no hormone replacement!

I had my uterus out and have not had any prolapse. I think getting the uterus out depends on your age, your health, your health history and what the chances are of having more problems with the uterus down the road especially if one has had any kind of cancer.

I went in to have my uterus out and the doctor left it up to me whether or not to keep my ovaries. I decided to get them out based on my age, 50, and my mom had ovarian cancer.
Like I say, it is a personal decision based on getting all the informaion in front of you and discussing it with a doctor you trust.

Hang in there