Hi, ladies. I haven't posted a new thread here in a long time but now is the time. I need some information and would appreciate any feedback. Here's the situation: I am 7+ years from my hysterectomy (where they discovered ovarian and uterine cancers). I went through 6 chemo treatments of taxol and carboplatinum, 25 (or so) rounds of external radiation and 3 rounds of high dose internal radiation. I have been dancing blissfully with "NED" since September of 2003.
I saw my medical oncologist for a routine follow-up about 2 weeks ago and had an abdominal/pelvic cat scan at the same time. The doctor called me up with the results and mentioned that there was some "trace amount" of fluid in the pelvic region. We don't know what it is. We don't know why it's there and what is there is not enough to remove or biopsy.
Needless to say, I am (close) to panic but am heeding the advice of our beloved Ellen. I know enough to appreciate that fluid in the pelvic region could be the result of malignant cancer cells which are not being passed through the body.
My med oncologist and my gynecologist are two super people who care very much for me and have taken great care of me for these 7 years. They have both personally called me to discuss the situation. The plan is for me to have a pelvic/transvaginal sonogram on Wednesday (to establish a baseline). I will repeat the sonogram after 8-12 weeks to determine any change. (I suppose that if the sonogram shows an increase in the amount of fluid, they'll send me for another cat scan.)
So, here I am. Is there anyone else out there who has experienced fluid in the abdomen which did not turn out to be a recurrence of the cancer? Did it just go away? Over the last 24 hours or so, I have been very "aware" of my belly. Sometimes I am uncomfortable but I wonder whether this is all just my imagination. (My oncologist said that the amount of fluid in the pelvis was not enough to generate any symptoms.)
BTW, my CA125 (taken two weeks ago) was 4. My gynecologist said she was less concerned now knowing what the CA125 was.
The other thing that's been going on is that my job was eliminated two months ago. Financially, we are OK but even though it might not be a financial hardship, it still has been a real emotional hurdle for me to deal with.
Oh, boy. I've always said this: Cancer isn't for woosies!
Have a great day, ladies, and thanks for listening.
I work in the medical field and trace of fluid in the pelvic area is a very common non specific finding on ultrasounds, and ct scans.
Bear in mind that often the small bowel resides in that area after a hyster, and any mild inflammation of the bowel can also leak into the pelvis.
I see that on scans a lot, and on ultrasounds.
good that they are following it up though
Hi, I had Tah/bso Dec 14 2009, All lymph nodes neg, pelvic neg, Then had first brachtherapy 4 wks post op. became incontinent of Bladder ??? Went through all kinds of tests with urologist. Cat scan showed bladder and other organs in good shape BUT fluid behind vaginal cuff. All doctors were not alarmed !!! Now 6 mos post op I was to continue 2 more Brachtherapy BUT oncologist canceled them ?? I feel good but of course worry about Cancer head returning. Just met a woman last night that seemed to have a less serious path report than I and she went through Chemo etc etc . The question > Do different gyn /onc have different standards for treatment or is it universal ???
I am sorry that you have a new "scare". That being said, I think that with our additional scans, something is bound to show up that might be "normal" for everyone... It is just that we get the scans so it shows up.
On my last ct scan, they did make a statement that no "fluid" was seen, so it must be something they look for.
Quote: "Bear in mind that often the small bowel resides in that area after a hyster, and any mild inflammation of the bowel can also leak into the pelvis." Arunner, what exactly leaks into the pelvis?
swelling or inflammation of any organ can cause fluid to leak into peritoneal cavity. The peritoneal cavity is connected to the pelvic cavity, so fluid can track down there.
IE any type of inflammation of the gastrointestinal tract can cause leakage of fluid.
The fluid would be similar to the fluid that accumulates with any inflammation anywhere, such as when you get a burn the area swells and fluid accumulates in the form of a blister...... a watery fluid that has cells in it.
The thing is that on the outside of your body it takes a lot of inflammation to cause leakage because the skin is tough
On the inside of your body it does not take as much to cause the tissues to leak fluid.
I am not sure if this is totally confusing.
What was your path report, what stage and grade were you?
The decision to treat is dependant on the doctor and other factors, but was the other woman a higher GRADE than you
OR a different histological type of endo cancer,
forms other than endometrioid are treated more aggressively with lower stages
ARUNNER My path was grade 1 after tao brush hysterotomy then after surgery path was FIGO grade 2 with focal nuclear grade 3 depth of invasion of myometrial 5mm myometrial thickness 28.0mm. Sometimes other patients do not get their path report given to them. MY gyn/onc gives it to me as I am a retired RN. She knows I like to see it all. Thanks for the reply ps she said intravaginal radiation was being give for precaution only But I had bad time after 1st treatment