Should I get Trachelectomy?

I battled endo for years and had multiple surgeries. I finally thought it was all over when I had my LSH in October 09 but the pain came back a few months ago. I have moved since my LSH so I went to my new gyno and she told me I had massive amounts of scar tissue so I should remove my cervix and clean out any remaining endo then do 6 months of lupron and then I should be all good. I trust this gyno because she had endo and did that same treatment. I am just hesitant to have surgery again and I really did not like the lupron. Anyone with a similar situation? Any advice?

I am sorry that your pain has returned and you are facing another surgery. My goes to you and your situation.

Before making your final decision, have you had a second opinion? Have you ever consulted with an endometriosis specialist?

There are a few things you should consider as you make this decision. Surgery to remove/fix scar tissue can create more adhesions. Thus, you want a skilled and knowledgeable surgeon who can clean things up and hopefully use methods, possibly including adhesion barriers, that might help prevent new adhesions.

Also, unless your surgeon is able to skillfully excise every bit of endometriosis found, you can continue to have endo issues down the road. Many surgeons are limited as to what endo they can and cannot remove. For instance, my GYN could not remove the endometriosis on my bowel walls. Thus, it continued to cause me pain and issues for many years until I finally had surgery with an endo specialist. By then, I also had adhesions and additional endometriosis.

Besides surgery and Lupron, what other options have been suggested for you? Have you tried progesterone or progestin treatment? Are you using HRT? If so, have you tried eliminating the estrogen for awhile to see if the pain is alleviated? Does you doctor know about aromatase inhibitors for endometriosis?

You do have to consider that if the adhesions are causing your pain, using meds for endometriosis might not help the adhesion pain at all. So you might want to consider one of them along with pain meds, physical therapy, and/or deep tissue massage to break up the adhesions if you want to try to avoid surgery at this time.

I wish you well as you work through the pros and cons for you and determine what your next step should be. I know it can be difficult and frustrating to know how best to treat endometriosis and adhesions.

If you are interested, we do have an Endometriosis Support forum where you can meet up with other ladies who are dealing with endometriosis both pre and post hysterectomy.

in there!