SAH Scared, hurting, 4 weeks post op

I feel so alone right now, i had my sah on nov 15, 2010. I had a large cyst, my uterin walls had somehow grown into my abdomen, and i also had severe endometriosis. The doc was not able to remove all of the endo due to its placement and depth. I was doing real well the first 2 1/2 weeks, my incision site is barely noticeable. Now over the last week I am urinating frequently and think some may be comming out of my vagina, i have sharp stabbing pain in my lower right ab ( my apendix is fine and i already had my gal bladder removed), i also seem to be having the same pain in my left ab and left hip and leg as i had from the endo prior to surgery. I am sleeping alllll the time lately, i mean if i simply get up walk to my kitchen make breakfast, eat, walk to check the mail I am ready for a 4 hour nap. I thought 4 weeks post op id be in alot less pain then i am and idk if this is normal. With some endo remaining after surgery i guess i should expect the endo pain to still be there. My husband keeps telling me i am fine and the endo will never bother me again. he wont listen when i tell him simply removing my uterus wont stop the problem especially since endo remained after the surgery. 4 yrs before the surgery i had a uterin oblation for endo. He doesnt understand this has been a battle for yrs and ive been silent. I have had many ppl accuse me of just wanting to take pills and this is all in my head. I feel isolated from the world. there is no hope of returning to work in the near future and i am so scared. i had one hot flash after surgery, lots of night sweats, and i seem to be really impatient with everyone. oh ya i am 35 yrs old, and i have been battling endo since i was 19. Luckily i was able to have two children before i was diagnosed. i need to know this is all normal! even my doc said no uterus no endo...but even i know that is not the truth. my family expects me to be normal 4 weeks after surgery...im not, im so far from normal! i feel lazy and useless, alone and scared. someone plz help me!! I cant cry alone anymore! is this normal? the pain? it doesnt hurt to sneeze anymore, but standing kills me after sitting for more then ten minutes...if i lay on my side it throbs, if i stand it throbs, if i sit for the most part i am fine for awhile as long as its a soft cushiny chair. I know this isnt in my head, and for the record i avoid pain pills as much as i can but i do take them at night to help sleep. maybe i just need a understanding friend....

[quote=theresa01;3353385]Now over the last week I am urinating frequently and think some may be comming out of my vagina, i have sharp stabbing pain in my lower right ab/QUOTE]




Your surgery was pretty recent and abdominal surgery takes longer to heal, so give it time. However, the symptoms you listed warrants an immediate visit to the doctor. You should call them.

Did you get your ovaries removed? I would imagine they would have wanted to remove everything since you had severe endo. But I see you still have your cervix. So I am wondering about your ovaries, too.

Your pain is NOT in your head. Take it one step at a time and don't get too discouraged, its only been a little while from your surgery.

Ty for responding..it is so nice to have someone to talk to about this because i dont know anyone else who has gone through this. I still have my ovaries, they said my ovaries were fine actually. There is endo on my cervix though (which i still have) and also in my ab wall. Perhaps I should see my doc again, I figured it was all normal (until of course my husband kept telling me I should fine by now). I have already had one infection (bacterial vaginosis). Its hard to know when to worry and when not to.

I didn't have endo, so I don't have direct experience with it. I'm sure many of the sisters who had endo will chime in. You can also search the website using the blue search box, and review separate threads specifically dealing with endo.

It's my understanding though, that estrogen will cause endo symptoms, and you do still have your ovaries, which will continue to produce hormones. You also have endo on your cervix and you have your cervix. So all the remaining tissue will be reactive, I imagine. If your doc left your ovaries then he must have a plan to deal with the remaining endo in some way. I would follow up with him, and I also recommend getting a second opinion and find a doctor who is expert in this subject.

You might as well do all you can to improve your health, so reach out.

I am so sorry you are feeling like you do... I remember at 4 weeks still feeling horrible, in pain, and very depressed cause I felt like I should feel better. But... I quickly learned (by reading here) that 4 weeks out (esp for the type of hyster that you had, being open abdominal and all) is still early in recovery... I am 8 weeks out now and am just finally starting to resume normal activities.. but still not able to do some of them.

PLease do not let people (esp hubby) tell you that you should be better by now..lots of research tells us that it could take 6months to a year to totally recover from a hysterectomy.

But, like Sam said.. if you are having severe pain and feel like something is falling out of your vagina, i would contact your doctor to get things checked out!! Better safe than sorry!!

I suggest reading, reading, reading on this site... it has really been a lifesaver to me during my recovery... helps me feel not as alone!

Keep your chin up and know that it DOES get better!!!

Wow, sorry you are not feeling good at this point. I had mine Nov. 16. Ovaries, cervix and uterus removed through abdomen. My uterus was too big to take out vaginally. I am not experiencing major problems other than fatigue but I would call the doctor right away if I were you. I know that bladder issues can arise due to the surgery(according to my sister in law who is a nurse and has seen this happen) and only a doctor can really determine what is going on. Most issues can be fixed by your doctor so call today if you haven't already.
Good luck to you.

Thank you guys so much! Just having people to talk to is life saver for me! I have honestly never felt so alone and isolated. My doctor does not seem to be concerned and is happily offering me pain pills. I see him again in two weeks so I guess we will see what happens then. I am so glad I found this site, its the only place i dont feel alone. I wish all of you the best in your recovery and thank you for listening to my whining. Hugs everyone!!!!

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Originally Posted by cunninpg Wow, sorry you are not feeling good at this point. I had mine Nov. 16. Ovaries, cervix and uterus removed through abdomen. My uterus was too big to take out vaginally. I am not experiencing major problems other than fatigue but I would call the doctor right away if I were you. I know that bladder issues can arise due to the surgery(according to my sister in law who is a nurse and has seen this happen) and only a doctor can really determine what is going on. Most issues can be fixed by your doctor so call today if you haven't already. Good luck to you.

I am so glad your doing so good!