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is it the mesh causing my problems? is it the mesh causing my problems?

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  #1  
Unread 12-06-2010, 03:35 PM
is it the mesh causing my problems?

Hello sisters,

I had a tvt mesh fitted in july and ever since I had it done I have had no end of problems. I'm due to see a urologist this friday but I have been wondering wot the symptoms of mesh erosion is? I have had a nasty uti and 3 different anti-biotics later I still have it. The pain is immense and intercourse has been totally out the question. Its way too painfull. Has anyone else experienced this? Does anyone know if this could be my body rejecting that nasty mesh? I have heard so many horror stories about that nasty mesh so I'm a bit concerned now that this is happening to me thank u ladies for reading
  #2  
Unread 12-06-2010, 08:10 PM
Re: is it the mesh causing my problems?

The mesh from the posterior prolift (mesh) I had put in caused me pain with intercourse or when a doctor touched certain areas when examining me. Part of it eroded through the skin of the vagina and some areas were painful even though no erosion was seen in those areas. I had it removed by a Urogyne that had done many removals and I am glad to report I am free of pain. Another symptom of erosion for me was a yucky gold discharge.

I do think some people don't do well with mesh. If I were you, I would go in to another doctor for another opinion on what to do about your situation. Don't wait too long. Try to find a doctor who has dealt with mesh problems.

Good luck.
  #3  
Unread 12-07-2010, 05:27 AM
Re: is it the mesh causing my problems?

Thanx cheryl for your reply. It does really sound like its this nasty mesh causing me all these problems. Did u also feel like u had something inside tiggling? Its a horrible feeling. Think I will just tell that urologist on friday that I want it out. Do u think he will do it or will I have to go back to the gyn that did the mesh in the first place? Sorry for all the questions I'm just so fed up with it all. Thanks again for your concern.

Hugs, Vicky
  #4  
Unread 12-07-2010, 06:40 AM
Re: is it the mesh causing my problems?

I would only have it taken out by a doctor , usually a urogyn, that has a lot of experience taking it out. There are doctors around the country that have this experience. You can do a search--mesh removal-- on this forum, I think, to find others who have experienced this problem and then e-mail them privately for the name of their doctor. Don't let your doctor do a piecemeal approach. This almost never works.

If you want the name of the doctor who did my removal e-mail me privately. He works at the Mayo Clinic in MN.

Taking out mesh is a very delicate task. Please don't let just anyone do it. This is especially true of taking out a tvt.

I had inside pulling.

Good luck.
  #5  
Unread 12-15-2010, 03:43 PM
Re: is it the mesh causing my problems?

Hi cheryl,

Just a quick update following my appointment with the urologist. A complete waste of time as he won't touch another surgeons work and he sed from the symptoms I described it sounds like I have erosion, so go back to the uro-gyn that put it in. So now have another appointment with my uro-gyn on 20th jan. I totally give up with this nasty mesh and that urologist also said I would be lucky if I could get someone to take it out. So wot am I supposed to do then??? Just let it rot my insides. I'm so angry and fed up. HELP!!!! Sorry to be a pain. Hope u r keeping ok. Hugs,

Vicky xx
  #6  
Unread 12-16-2010, 03:50 PM
Re: is it the mesh causing my problems?

Hi Vicky, sorry you have the mesh nightmare. I had 3/4" excised in October. It was done by a urogyn that did not put it in. I will NOT go back to the Dr. that put it in anyway. My urogyn would not go for full removal the first time, she wants to excise first and see what happens. She does not think mine was put in right in the first place, that is why I will not go back to original Dr. Some people do have success with 1 revision/excision and have no more erosion. Some people have many excisions, either surgically or in the office, and end up with removal after all. I went for my follow up 2 weeks ago. I don't have any more erosion and the excision site is healed, but I have a piece that is between my vaginal wall and bone, and when she pushed on it was very painful. I just have to watch it, go back in 3 months and see what happens. It is so frustrating. I am so sorry you have to deal with this. Think positive, be proactive and don't read too much about the worst cases. I keep telling myself there really are success stories out there, they just don't post about it. Come here for support and education, but please don't do like I did and dwell on the worst. Easier said than done, I know! Hugs to you!
  #7  
Unread 12-16-2010, 10:17 PM
Re: is it the mesh causing my problems?

Hi sandbox,

Thanks for your reply and information, it means a lot to have people on here that care and can share their experiences with u. If u don't mind me asking, what were your symptoms of that nasty erosion? Because I havnt actually got a firm diagnosis yet, the doc has only said it sounds like erosion. I have to go back to my original doc on 20th jan. There is defo something wrong there because I keep having nasty infections and pain inside the vagina and intercourse with hubby is a no go! I just can't bear it. This nasty mesh is ruining my whole life and I just wish I never had it done. Sorry to ramble on. Glad u are doing better now and have that nasty stuff out of u. Thanks again for your input. Sending hugs,
Vicky xx
  #8  
Unread 12-17-2010, 06:54 PM
Re: is it the mesh causing my problems?

Vicy - If you are having a lot of pain, can you get in to see your original doctor sooner? Of find a Eurogyn?
  #9  
Unread 12-18-2010, 08:17 PM
Re: is it the mesh causing my problems?

Vicky,

I am sorry for what you are going through. I understand. Based on my own experience I'd say mesh may definitely be causing your problems.

I wanted to recommend some information for you to read (actually everyone who has a mesh sling or is considering getting a mesh sling would benefit from reading this information)

I cannot post the link directly but hope you can find the information on the FDA's website. It can be found on the FDA MAUDE database from October 08. If you have trouble finding it please send me a private message and I will be able to send you a link privately that I cannot send in a public message.

In Oct 08 the FDA put out serious warnings about complications taking place among patients with mesh slings. I had a mesh sling placed in January 09 and last weekend, on 12/11, had to have additional surgery to have it removed due to erosion. It has created havoc with my life and my marriage for two years.

In considering having the mesh removed I recommend you find someone with experience. . . .it is a difficult, challenging and delicate surgery and should not be undertaken by anyone who does not have a lot of experience doing it. My surgery was done by a Bay Area pelvic reconstruction specialist.

Hang in there and let us know how you're doing and what you decide.

Debbie
  #10  
Unread 12-19-2010, 07:26 PM
Re: is it the mesh causing my problems?

Vicky, my sypmtoms were pain/poking in the vagina when I exercised or bent over. My DH felt the "strap" during sex and sex was SO painful for me, eventually impossible. I felt pressure and poking all the time, but it was worse if I had been standing or sitting for long periods of time. I had some pain during urination, but maybe pain is too strong of a word, it was just that I knew my urethera was there and sometimes it took forever to get my stream going. Sometimes I would feel like I had a UTI and take that over the counter stuff that relieved the irritation, but I was never diagnosed with a UTI. My Dr. does think the slings can help people but she also thinks there has not been enough training to put them in, and not every Doctor will take the time to be educated on proper placement. Some of the slings/mesh you can never have totally removed as they have embedded in the tissue you so much that they would do more damage getting it out than leaving it in. Some have "arms" that they can't get out. It is really scary and depressing if you read too much about it and can leaving you feeling helpless and damaged. I know I spent too much time dwelling on the worst. I would encourage you find a Doctor you can develop a relationship with and just take it one step at a time. Get diagnosed for sure that you have erosion and go from there. Can you feel anything poking in your vagina? Is your mesh from repairs or a sling? I'm so sorry this is happening, it is no fun, I know! Is
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