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Postmenopausal with probable adenomyosis Postmenopausal with probable adenomyosis

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Unread 12-15-2010, 02:13 PM
Postmenopausal with probable adenomyosis

Hello Ladies, I'm 2 years postmenopausal and because of some spotting and pelvic pain, I was recently diagnosed through an MRI with probable adenomyosis. From what I've read, adenomyosis is something that develops before menopause and it often shows it's symptoms during your period. I've read that the symptoms get better with menopause. I had absolutely no problems with my periods; they were on time every month, no cramping and no heavy bleeding. Why all of a sudden would I be having symptoms of adenomyosis now, (mainly pelvic pain) when I'm no longer having periods. Thanks, Carol
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Unread 12-15-2010, 09:06 PM
Re: Postmenopausal with probable adenomyosis

Since I might have adenomyosis, should I consider getting a hysterectomy? I know that if I continue to spot from time to time it could be from the adenomyosis, but it could also be from something more serious, and since I'm postmenopausal, I don't think I want to be running to the Doctor have every time I spot or bleed. Any of you ladies have the same or similar problem? Also, I'm a breast cancer survivor but I'm not taking tamoxifen so, I know that's not the cause of my symptoms.
Unread 12-17-2010, 10:20 PM
Re: Postmenopausal with probable adenomyosis

Hi hobie

Has your doctor suggested a hyst? Have you had a 2nd or 3rd medical opinion? Here is a link to some good info you can research while you are trying to figure out your next step:

I hope you are able to find the right answers soon. I am sending huge cyberhugs
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Unread 12-18-2010, 10:02 AM
Re: Postmenopausal with probable adenomyosis

Thanks, for the link! Looks like lots of good info. that will keep me busy reading!
I talked to my Gynecologist the other day and she did recommend a hysterectomy. I have a wonderful Doctor! She says to me, "the friend in me says go for the hysterectomy, the Doctor in me says, even though I recommend a hyst., you should get another opinion" So, before I left her office, I had an appointment made with someone else. I'll see this other Doctor next month.
Another thing I guess I should mention is, I'm a breast cancer survivor who is not on any medication for it.
Unread 02-23-2011, 10:18 PM
Re: Postmenopausal with probable adenomyosis

Hi Hobie,
I'm new to this site and saw your post. I found this site bc I was trying to find info on post-menopausal adenomyosis. Are you willing to share your symptoms? I'm still struggling to get a diagnosis and my doc was thrown by the fact that I seem to be post-menopausal. I'd love to know more about your situation if you're comfortable sharing.
Unread 02-24-2011, 06:03 PM
Re: Postmenopausal with probable adenomyosis

junieb9, I'd love to share.

2 1/2 years ago a blood test confirmed I was in menopause and I haven't had a period since just before that. I've had several episodes of
postmenopausal spotting, I have almost constant pelvic pain, not bad pain, but it keeps my attention, and I'm bloated. I've had several ultrasounds and my Dr. tried to do an endometrial biopsy, but couldn't get through my cervix, then he tried to do a D&C and still couldn't get through my cervix. Then I had a pelvic MRI that showed that I might have adenomyosis and a I have a benign looking cyst on my overy. From what I've read, adenomyosis usually causes problems before menopause. I had absolutely no problems before menopause. I wonder if this is what I really have. Because of my symptoms, the Dr can't do a biopsy and I'm a breast cancer survivor, my Dr recommended I get a hysterectomy. I'm having surgery next week...
How about you, what are your symptoms?
Unread 02-27-2011, 12:51 AM
Re: Postmenopausal with probable adenomyosis

Our situations sound pretty similar. I've had pelvic pain on and off for a while. My most recent bout has lasted about 8 weeks and has varied from really intense to "keeping my attention" as you say. Along with the pelvic pain I have pretty bad lower back pain. Is your pain/discomfort fairly constant?

My doc also saw a benign looking cyst in ultrasound, which lead him to suggest adenomyosis. I haven't had a period in 4 mos, and when my doc checked my FSH through a blood test, he found it to be at "post-menopausal" levels. So now he's wondering if it is adenomyosis. I know that adeno typically cause probems for premenopausal women, and am just trying to sort out whether it can also cause problems post-menopause.

I'm going in for another ultrasound, with a CT scan to follow if that doesn't turn anything up.

Would love to hear from you again--even after your surgery if you're up for it. I hope that goes well for you and resolves your symptoms. You'll be in my thoughts next week!
Unread 02-27-2011, 01:04 PM
Re: Postmenopausal with probable adenomyosis

My pain is "almost constant" but I do have days where it doesn't bother me, which makes me think "I'm better" then the pain comes back. I can't help worrying that I have something more serious and it just hasn't shown up on the ultrasound or the mri.

I told my oncologist the problems I'm having and she said since I had breast cancer I shouldn't take any chances and I should see a specialist a gynecological oncologist. My oncologist got on the phone and made an apt for me to see one and that's who is doing my surgery.

That's interesting that your Doctor suggested adeno from looking at a cyst on your ultrasound. But at least your Doctor is now wondering if that's what it is. Please keep me posted on what they find out.

Meanwhile, I'm also trying to find info on why adenomyosis would cause problems in someone who's post-menopausal when it didn't at all pre-menopausal, because from what I've read it doesn't develop after menopause.

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