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Adenomyosis and hysterectomy Adenomyosis and hysterectomy

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  #1  
Unread 02-03-2011, 09:02 AM
Adenomyosis and hysterectomy

Hi ladies, I was hoping to get some good info from others who have been through adenomyosis. I am 22 years old and was diagnosed with adenomyosis and a cyst on my left ovary yesterday, my ob suggested that I first try lysteda this month to see if it will help with the pain at all but from what ive read its probably not going to help. She also suggested I consider trying bc but I am not supposed to take hormonal bc due to a bad reaction to it which caused my gall bladder to shut down. I know the only cure is a hysterectomy and I really wanna know if I should try and do all these other possible options before I opt for the surgery or suggest just doing it so I can end the suffering? Opinions and advice would be appreciated. As a side note I am already married and our family is complete, ive already had my tubes tied.
  #2  
Unread 02-03-2011, 09:11 AM
Re: Adenomyosis and hysterectomy

I was diagnosed with adenomyosis after my DTH and was told that a hysterectomy is the only cure for adenomyosis...I feel GREAT now!!!

Good luck and hug's.
  #3  
Unread 02-03-2011, 09:13 AM
Re: Adenomyosis and hysterectomy

Thanks for the reply! I would really like to go ahead with the surgery but I dont think my ob is gonna be willing to do it with as much as she is pushing me to try other things. Im wondering if maybe I shouldnt see another ob that may be willing to look at me and possibly schedule surgery soon because im supposed to be starting nursing school in late march. Do you think it would be an option to look into?
  #4  
Unread 02-03-2011, 09:22 AM
Re: Adenomyosis and hysterectomy

sound's like a plan...you know your body!! I too do not tolerate "med's" very well...this was the best thing I have ever done and wish I chose it many years ago.
  #5  
Unread 02-03-2011, 09:25 AM
Re: Adenomyosis and hysterectomy

  Quote:
Originally Posted by lucky71113 View Post
sound's like a plan...you know your body!! I too do not tolerate "med's" very well...this was the best thing I have ever done and wish I chose it many years ago.
Thanks so much for the advice!
  #6  
Unread 02-04-2011, 10:46 AM
Re: Adenomyosis and hysterectomy

  Quote:
Originally Posted by cbower View Post
Hi ladies, I was hoping to get some good info from others who have been through adenomyosis. I am 22 years old and was diagnosed with adenomyosis and a cyst on my left ovary yesterday, my ob suggested that I first try lysteda this month to see if it will help with the pain at all but from what ive read its probably not going to help. She also suggested I consider trying bc but I am not supposed to take hormonal bc due to a bad reaction to it which caused my gall bladder to shut down. I know the only cure is a hysterectomy and I really wanna know if I should try and do all these other possible options before I opt for the surgery or suggest just doing it so I can end the suffering? Opinions and advice would be appreciated. As a side note I am already married and our family is complete, ive already had my tubes tied.
Hey, I haven't had surgery yet, But i was just diagnosed recently. I'm 20 and my family is also complete. I'm personally Opting for the surgery option due to bad reactions to BC as well ( my gall bladder had to be taken out last year.. wonder if thats why...) Honestly, If your done growing your family, I'd just get it done. Stop the pain, the red tide and all that.

I personally won't go near the hormoanal treatments (which can be ineffective ) after the way I react to BC. just seems like it would be tempting fate.

good luck with everything!
  #7  
Unread 02-04-2011, 01:15 PM
Re: Adenomyosis and hysterectomy

Hi, I was 25 when I was diagnosed with endo and adeno and I had a hyst but kept ovaries. BEST DECISION EVER! I had to push for it and I saw many doctors whose opinions ranged from "it's all in your head" to "try Lupron" but I finally looked into an endometriosis specialist and that was the best decision for me. They took me seriously and told me that a hyst was the only cure for adeno, and if I was ready, then to go for it. I was married at the time and didn't want children, so I did.

A year and a half later I am no longer married, but I'm still on the fence about kids, so I'm not stressing too much. Should I change my mind later, I have options. Since your family is complete, I say go for it! I have been pain-free since the DAY OF THE SURGERY. Not kidding, I was out of the hospital less than 12 hours after surgery began, took ibuprofen that night, but needed no more pain meds after that...imagine that, how much pain we're in before surgery, that after being cut open you don't need meds!

Good luck in your decision, and stick to your guns. You know your body best so don't stop until someone will listen to you!
  #8  
Unread 02-07-2011, 11:32 AM
Re: Adenomyosis and hysterectomy

Thanks for the replies ladies. Im seeing a new ob on tuesday that will hopefully see where im coming from and discuss surgery with me. The ob I was seeing told me she didnt feel comfortable doing a hyst on me since im so young and has offered to do bc or an ablation. I cant do the bc and have doubts that an ablation would help. I guess the search is on to find an ob who can help end this pain.
  #9  
Unread 02-07-2011, 12:02 PM
Re: Adenomyosis and hysterectomy

I'm 28 and had surgery for adeno in September. I tried all the alternatives for years, including Lupron and other surgeries etc.

In the end it was clear that hyster was the only option and it was the best option, as other ladies have said.

HOWEVER - when it came to the reality of surgery day, and the down-in-the-dumps days that come with recovery - I was incredibly glad that I could lie there and say to myself with absolute certainty: "I have tried everything else possible, this really is the last option, there is nothing else". That knowledge, I believe, was super important in giving me the self-assurance that I did the right thing.

Living with the pain is utterly horrendous, I know, but neither would I have wanted to live with any doubt about my decision.

Good luck with whatever you decide!
  #10  
Unread 02-08-2011, 01:22 PM
Re: Adenomyosis and hysterectomy

  Quote:
Originally Posted by cbower View Post
Hi ladies, I was hoping to get some good info from others who have been through adenomyosis. I am 22 years old and was diagnosed with adenomyosis and a cyst on my left ovary yesterday, my ob suggested that I first try lysteda this month to see if it will help with the pain at all but from what ive read its probably not going to help. She also suggested I consider trying bc but I am not supposed to take hormonal bc due to a bad reaction to it which caused my gall bladder to shut down. I know the only cure is a hysterectomy and I really wanna know if I should try and do all these other possible options before I opt for the surgery or suggest just doing it so I can end the suffering? Opinions and advice would be appreciated. As a side note I am already married and our family is complete, ive already had my tubes tied.
I have no regrets about my hysterectomy. In my experience birth control pills with estrogen made my adeno worse. Other treatments like progestin-only pills helped the bleeding but not the pain. Lupron and Depo Provera helped for awhile but the side effects were bad. If you you are sure you are done having children, I would recommend hysterectomy. However, only you can decide if the risks are worth the possible end to pain
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