12 yr Lynch Veteran, now researching hysterectomy

Hello all,



I have known I'm Lynch Positive for about 12 yrs. I'm 33 and have 3 kids. It is recommended now with Lynch, that once you are done having kids you have a complete hysterectomy. This leads me to so many questions. I, to this point, have never been sick. I get my colonoscopies and paps yearly. I've never had a pap come back with anything, or a polyp in my scope. My dad was diagnosed at 25 with colerectal cancer and was given 3 mos to live. He lived to be 48. Finding his cancer led to the Lynch findings in our family.

All this leads me to questions for either ladies who have had a prophylactic hysterectomy or had one for other reasons: what do you wish you'd known before surgery? what was the worst part of recovery? did you do replacement therapy - why or why not? how did having a hysterectomy effect or change your marriage?

With Lynch there is a 12% chance of ovarian cancer - which according to a OB/GYN friend is huge, because it's found so much later, due to lack of symptoms, etc. I'm kind of fond of my ovaries... Letting go of them is like letting go of being a girl.....

I am also combining this surgery with a mommy make-over. After three c-sections (besides my belly being completely stretched out and sagging) I'm not too keen on having more surgery. I wonder how this will change my recovery.

Any experience, advice, tips, or comments you all can pass along will not fall on deaf ears. I am on this site to find out as much as possible before making a life changing, or life threatening decision.

Thank you in advance,
Shana