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Don't know what to do...options re: fibroids & symptoms Don't know what to do...options re: fibroids & symptoms

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Unread 07-17-2011, 12:12 PM
Don't know what to do...options re: fibroids & symptoms

I was diagnosed with fibroids at my last exam in December (two about the size of clementines on the U/S). Prior to this time I have been pretty lucky with my reproductive issues, no bad paps, etc. I am 38. Married, no kids. My doctor said I should have a hysterectomy (abdominal, keep my ovaries) if I don't want kids. That was hard to hear, even though I don't think I want children.

I intend to get a second opinion.

I was on a high dose pill (Ortho Novum 1/35) and came off it for a few months and my symptoms got better but it was hard on my sex life (neither of us like condoms). However, bleeding much improved and clots also got MUCH smaller, they were HUGE before. I also noticed my symptoms are worse when I drink caffeine.

So then I went on to LoOvral for a month. I had lost about 6 lbs (I am, in my opinion, 15 lbs overweight) and my symptoms got so much better. I no longer felt 'something'. But as soon as I went on the LoOvral I gained the weight back and now I am also miserable again, bloated, constipated, feeling constipated even when I have gone 2 or 3x in a day, pain in rectal/tailbone area, etc. I hate this feeling. Not sure if my bleeding will be worse this time but should know in 2 weeks.

Part of me wants to just go get the surgery. But this is what I am scared of, is it very common for the ovaries to shut down after the surgery, even if they aren't removed? I can't find stats on this. I have read the articles and seen it mentioned but only anecdotally.

Pulling me down more, I just finished grad school to go into a different career. I hate my current job (everyone is looking for another job there) but I feel stuck about even applying until I decide what to do. No one wants a new employee who immediately takes 6 weeks off. And what about pre-existing conditions/insurance?? I feel pressured externally AND internally, ugh.

Sorry for the whine.

Interestingly, I am a twin and my other sister has never been on BC. Her fibroid is small and symptomless.

If this is the wrong forum, please advise.
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Unread 07-17-2011, 04:57 PM
Re: Don't know what to do...options re: fibroids & symptoms

I was in the same boat, the same age approximately when I was told that I have fibroids and my doctor kept treating them with depo shot and they shrunk a little but then grew back. For me it was the best decision to have my hysterectomy.

I know what you mean about the not liking your job and trying to switch careers while dealing with this you need to research on this website about the different types of hysterectomys and if this is the best option for you. No to answer your question this is not a pre-existing condition. But the longer you let it linger the chance you have of them getting larger(i learned the hard way) by putting it off.

Good luck in whatever you decide. By the way my doctor said that fibroids are hereditary.

Go to the search engine and google your question or go to other threads that have already had there hysterectomys.
Unread 07-18-2011, 05:32 AM
Re: Don't know what to do...options re: fibroids & symptoms


I’m sorry you’re having problems that bring you here but am very glad you’ve joined and hope you’ll benefit from the wealth of information and support.

You're very wise to get a second opinion since a hysterectomy is a big decision, and major surgery, which should only be considered as a last resort after all other options have been exhausted. There are doctors who specialise in fibroids and could, therefore, offer many more options other than a hysterectomy. You may wish to read through our <link> Fibroid Resources to learn more about some including UAE/UFE, MRgFUS, and myomectomy.

Regarding your ovary concerns, I kept mine and they've continued to function normally since my hysterectomy. Based on all the accounts I've read here over the years, the majority of ladies find the same although there are some who have initial issues with "sleeping ovaries" where the ovaries struggle for a while due to the trauma of surgery. Most find they kick back in as recovery progresses but there are a tiny minority whose ovaries don't recover.

Perhaps it will help to ask yourself these additional questions:

Have I tried all the alternative treatments?
Are my symptoms so unbearable as to make my life a misery?
Will the operation relieve all my symptoms?
What will happen if I decide not to have a hysterectomy?

Please take your time researching and asking questions. We're here to support you ~ every step of the way!

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Unread 07-18-2011, 09:41 AM
Re: Don't know what to do...options re: fibroids & symptoms

I was also advised in December to have a hysterectomy due to three fibroids (each about 4cm), but keep my ovaries, and I've been worried about the potential of them shutting down, too. I've read that they may after a couple of years of realizing they don't have a reason to work. I have concerns about my sex life being affected, etc.
I finally got a second opinion in the spring, and the doctor told me I could wait a while if I wanted to, which in a way was not a relief since now I have to mull it over. I'm not sure what to do either. I think if it's done laproscopically, the recovery time is much shorter, so that may be an option. I would like to look a little further into alternative treatments, and I'm REALLY glad I joined this forum. It's so comforting hearing everyone's stories. Good luck to you with whatever you decide.

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