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Ovary attached to pelvic sidewall and ovarian cyst Ovary attached to pelvic sidewall and ovarian cyst

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Unread 07-18-2011, 07:25 PM
Ovary attached to pelvic sidewall and ovarian cyst

Hi Girls...I am very blessed to have found you all. I had a hysterectomy back in 2004, and kept both ovaries. I began to have Left hip pain that has progressively gotten worse. Back at the end of April, the pain began to radiate down my Left leg, buttocks, left lower abdominal region, and recently the worst lower back ache, that has become debilitating. When my bladder is full It feels like horrible menstrual cramps. I have dull aches in lower abdomen constantly.
To make a very long story short : Referral to vascular Doc...everything fine from exam and vascular studies; Referral to orthopedic Doc...hip arthrogram w/dye MRI, hip fine and cystic lesion found in left pelvic sidewall; Referred to GYN/ONC. CA-125 6, pelvic/vag US (very painful, and brought me to tears), pelvic MRI.
The Doc called me this morning and told me my Left ovary was adhered to left pelvic sidewall, and the "functional cyst" was probably bleeding into itself, and had grown only a couple of mm since it was first p/u on hip MRI on June 9th. It was measured at 2.1 cm x 2.7cm then. She said she would like to wait, because this will probably go away, and wants to do another US in 6 weeks. She also said that the ovary being attached to pelvic sidewall could be causing pain, along with cyst bleeding into itself, and said she couldn't be sure about extent of adhesion's, or endometriosis w/o doing surgery. She wanted me to continue to get a lower spine MRI to rule out any back issues, and if the cyst is still there in 6 weeks she would remove cyst, ovary and adhesion's. (I will mention that when I had my hysterectomy done in 2004, a cystic mass was removed from the same ovary at 6cm.)
I am just so tired of the run around, and being in pain..I am 47 years old, and just want to get on with my life. This pain has become unbearable most of the time....I guess I expected a more definitive answer, and am discouraged...as my work will not let me back until whatever is wrong, is fixed....all associated with Left side...this just can not be all a coincidence, can it?
I appreciate you letting me go on and on, I just don't know if I should just "deal with the pain" until then, get a second opinion, or what? I do plan on pursuing lower spinal MRI.
Thanks so much ladies, from the bottom of my heart...and if any of you have a story similar, or know something you can share??
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Unread 07-19-2011, 12:38 AM
Re: Ovary attached to pelvic sidewall and ovarian cyst

I am sorry you are having to deal with this all again. Adhesions suck! It seems like a vicious cycle of surgery, and then surgery to fix the scar tissue, and then another surgery to fix the scar tissue from the surgery to fix the original scar tissue. I had a lot of adhesions tacking things together when they did my hyst too. One inpaticular had my bowels tacked to my right abdominal wall. I had been having pain under my right rib, and bowel issues. So yeah, having organs attached to places they arent supposed to be can cause pain to radiate all over the place.

I do want to make one suggestion to you. If you pursue the spinal mri, dont let them do just a regular mri. Request a myelogram. A plain mri will tell them some things, but it isnt going to give them anything definite in regards to your disks. In order to make sound reliable diagnosis of the condition of your lumbar disks, you will need to have the myelogram (its a mri, but they inject dye to make your disks show up) My husband has been dealing with bulging and ruptured lumbar disks for 10 yrs now, and this is what his surgeon told us. Hes had 3 of the myelograms done over the years.
Unread 07-19-2011, 04:12 PM
Re: Ovary attached to pelvic sidewall and ovarian cyst

[i]Thank you so much for your reply. I just think waned the doc to have a real follow up with me...not just call and say "we will wait 6 weeks, and if pain and bleeding cyst is still there , then we address it surgically" I am still debating on weather or not to have a second opinion. I am almost certain that my ovary being attached to pelvic sidewall and a hemorrhagic cyst that is growing is the cause for my pain, don't you? [I too have had many abdominal surgeries like you...2 C-sections, tubal ligation, D&C, and then my hysterectomy ( when they removed the cyst and left the ovary) I am sure that is why the ovary attached itself to the pelvic sidewall, from them excising the last cyst! I just felt that the doc could have followed up with me with a more compassionate way, discussing things, giving options, her professional opinion, and then together, made a plan of care.
Thank you again for responding and listening...and I am sorry for all of your pain and discomfort with adhesion's. Are you any better by them removing them....or did it just make it worse? Look forward to your response. Take care, and I hope my message finds you peaceful, happy, and full of hope!!!/I]
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Unread 07-19-2011, 06:29 PM
Re: Ovary attached to pelvic sidewall and ovarian cyst

I have moved your thread here to our Road Less Traveled forum where you will find others who are dealing with complications awhile after their hysterectomy. You are not alone!

Many doctors can be hesitant to want to surgically treat adhesions because the very surgery to clean them up can create more of them. Additionally, it can be difficult to be sure adhesions are the problem without surgery, so some women have gone into OR for adhesion clean up only to find there were no adhesions to clean up!

Thus, it is a good idea to continue with any testing your doctor suggests to rule out any other health concerns that might be more easily diagnosed and treated. To help you and your doctors come up with the best plan for you, it would be wise for you to keep a very detailed symptom diary.

You alluded to endometriosis in your initial post. Have you been diagnosed with endometriosis in the past? If so, it could be at the root of your current symptoms, including the cyst could actually be an endometrioma. Endometriosis is not cured with a hysterectomy so many of us have dealt with endo concerns years after our hysterectomy.

In fact, I had surgery 7 years after my hysterectomy in order to have some endometriosis and adhesions cleaned up. For my surgery, I chose to travel to an endometriosis specialist to be sure I received the best care.

If you have an endometriosis diagnosis and/or would like to know more about this condition, please drop by our Endometriosis Support forum where we have complied a lot of helpful information and where you will find other ladies dealing with this condition.

Additionally, we have a forum called Separate Surgeries where you can connect with others dealing with cysts and surgery to treat them.

Keep in mind, we do ask that members not cross post in the forums, but you are more than welcome to ask your specific questions that apply in each forum!

We have a lot of information here on the site and the women are always great to reach out and help in any way they can! You have come to a great place to talk about your current issues and I hope you find the support you need!

Unread 07-20-2011, 10:11 PM
Re: Ovary attached to pelvic sidewall and ovarian cyst

[SIZE="2I have had the same problem with ovarie being stuck to wall. they cut them apart. And releived the pain. unfortanatly shortly after same overie got stuck again, this time to falobian tube. not sure how common my situation is but I know scar tissue is created with each surgery, my doc was pretty straight foward about it: "you can live the rest of your life high on pain meds. or you can take the pain away and live the rest of your life on hormone meds." The choice is up to you on how to deal with the pain, if you you have the surgery look into the doc wraping everything thay can with..(can't remember the name ) anyway they can wrap all the orgins that might start stickin together with this "wrap" and it is suppost to help prevent rthings adhering... you'll be in my prayers
Unread 07-22-2011, 07:18 PM
Re: Ovary attached to pelvic sidewall and ovarian cyst

Hi laineeRN08

i had similar issue, had lots of adhesions with endo and endometrioma on one ovary and after hysto they clean them up and left one ovary, which got stuck to everything again including side wall , bladder and colon. They had to remove it after waiting to see if it would go away, it was pretty painful. as far as adhesions, they came back with a vengeance, now waiting for bowel resection and prolapse repair. The adhesions have glued my bowel into a celtic knot and stuck them to bladder, pelvic floor among other things.

it is a vicious circle and more surgery mean more adhesions but the pain is so excrutiating and my bowels have a partial obstruction because of them so not much choice. Just pray the pain is better after. I don't expect to be pain free but at least manageable.

When you are in pain, your always willing to try again, you never know it might work. for me having tried every treatment under the sun for pain with no success and having a bowel obstruction surgery can't be avoided.

I hope things work out for you

Good luck and take care.

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