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I have all three prolapse issues: cystocele, entrocele and rectocele. I am so very, very upset about this.
I had a total hysterectomy in 1992, not knowing it could set me up for this misery years later.
I know pretty much when it happened and it was August 2011 after lifting something very heavy. The very next day I had difficulty with a BM which was very unusual for me. The next week I went to see my gyn because I felt a bulge all of a sudden.
She diagnosed a rectocele. I then did research to find the best urogynecologist I could find and went to see her. She also diagnosed a cystocele and the entrocele.
I am so young to have all of this to deal with. It is like the worlds best-kept secret that this can happen to women, especially after childbirth and hysterectomy. If I had only known I would have never had the hysterectomy.
I also have taken estrogen ever since my surgery because after hysterectomy, there is less blood supply to the vagina. My estrogen levels were always quite low but I really was not concerned-I should have been.
I am an RN and all the research I have done does show a high failure rate for virtually all of the surgeries. I do not know what else to do. The hours it takes me to have a BM each morning, getting up and down to allow for "transit" is crazy. I am late for work each day due to this. I take in 30-35 grams of fiber per day (Metamucil disolving, no grit) and without it, can't go at all.
I feel like I have dropped into a black hole for which there is no escape.
I have had a couple of tests, still have the evacuation proctogram (also known as defecography) scheduled and the urodynamic bladder testing before I can have surgery. My MD is planning on doing it abdominally since I have so many things wrong with me.
I already saw a colo-rectal surgeon she sent me to, to make sure I did not have yet a 4th thing wrong with me.
Does anyone else have everything wrong too? What did you have done and did you have any success at all?
I am interested in the answers to your post, as I am in the same position and have surgery scheduled for Nov. 15. My doctor told me that the mesh he uses is not involved in the law suit. Never had a problem. Then last night I read the FDA statement from this Wednesday that says all different brands of mesh are involved. I also read an online comment about this doctor from an unhappy patient from last December. Becky
I have all 3 also and am scheduled for surgery on 11-28-11. i am very nervous about the mesh. I was told that the vaginal mesh is the only one involved in the FDA warning. I have been reading a lot on the internet and just get more confused. I had a traditional repair of all 3 in 2004 during my TVH surgery. I had major complications and all 3 were worse after the recovery than before surgery. I was told that I would just have to learn to live with it. After 7 years of this I went to a UroGyn and am ready to try again. Good Luck to you both.
I am almost at the point of trying to live with all of my conditions.
I spent the morning doing research on the failure rates and it is terrifying to me. I do not want to wind up with worse problems after surgery than I already have.
There are so many non-pelvic prolapse surgeries that have much higher success rates. I do not understand why there is no "gold standard" or evidence-based guidelines for the surgeries needed for our problems.
I found one heavily researched study that reviewed hundereds/thousands of Medline studies that still could not come up with one surgery that is successful for all problems together.
It does look like at least for vaginal prolapse, using mesh to connect the top of the vagina to the sacrum (abdominal sacrocolpopexy), is associated with a lower rate of recurrent vault prolapse and also has a higher success rate than when you add in all the other issues (rectocele, endocele and cystocele).
The mesh used in this surgery has fewer complications than the meshes they use to correct the vaginal "tears". The problem is that most of us have all the possible problems. My doctor states she uses the mesh for the abdominal sacrocolpopexy but does not use it in the vagina. She sutures each tear separately. They call that site-specific repair.
I am so torn. If it did not take me hours to have a BM each morning, even with all of the fiber that I take in-I would not even consider doing surgery. I still have not made up my mind.
I really appreciat your post Peaches. I will send out very positive thoughts your way that all goes well and that you heal quickly.
I would like to offer my experience, some advice and most importantly, encouragement with prolapse repairs.
Three years after my TAH/BSO, I was diagnosed with a cystocele, rectocele, enterocele and vaginal vault prolapse. My doctor made the diagnosis with a simple vaginal ultrasound done in the office - I had no uro dynamics or defecogram testing...he doesn't think they're necessary. My doctor is a uro/gyn who will not use any mesh & did all the repairs vaginally. He told me the mesh is a nightmare to remove, he uses good old fashioned Prolene stitches. The surgery takes a longer when the surgeon uses stitches rather than the mesh. I was also told to expect the repairs to last lifetime. It has been over 6 years and all is well, actually even better!
I was in the hospital for 2 nights, the catheter came out the morning after surgery, I had no trouble voiding. Needed pain meds every 4-6 hours for about 3 days then only at night to help me sleep better. I spent most of the time lying down because sitting was uncomfortable the first week or so. I was out of work for four weeks. The spotting lasted about a month but my doctor told me that was normal. I use Vagifem 2x a week to "keep the tissues nice and plump" - my doctors words - in addition to my Bio-HRT.
I feel better than I have in years. No more excruciating lower back & pelvic pain, constipation & frequent bathroom trips with little to show. My recovery went smoothly..I never regretted having the surgery and would do it again in a heartbeat, if I had to.
Please listen carefully to the "whispering voice" in your head if your are having second thoughts about the mesh...the stories from women suffering with that mesh in them is horrible.
Sorry for the delay in my reply... But like many women who have successful surgery... I have been out enjoying life and check here less often.
I have Elevate mesh for my bladder lift and the mini arc sling. I had a lot of scar tissue removed and rectocele repairs.
Life is great. I do not have to worry about where a bathroom is anymore.
Recovery was longer than I expected and I followed the docs rules to the letter.
Sex is good. Still tender at opening so use lubrication (too much info?) .
At almost three months now and I take miralax once a day and eat a ton of fiber. Will start the miralax every other day soon and see how that goes. Nervous about constipation... No posterior mesh so I am extra careful.
Life is much better post op! I am pretty open to questions so ask away if you have any!
Hi ev1- I had the mesh put in for my cystocele in 2008 and it didn't help at all- my job requires alot of heavy lifting. I am into my 7th week post-op for an abdominal burch procedure and am feeling really great. No more leakage of urine, no more pads and no more frequent trips to the bathroom AND MOST OF ALL I can fully empty my bladder when I do go. Daphne.
Hi there! I was diagnosed with a rectocele, and then pelvic organ prolapse last November. I had all the tests (UGH!) but they helped my two surgeons determine the extent of the surgery. I also had to have a colon restructure to help with bowel movements. I had the surgery in February, and now am 8 months out. I was in the hospital for 5 days to be sure everything was working. I had little pain and was walking all over on day 2. I had a wonderful pelvic organ surgeon (female) and a wonderful colon surgeon, who work together frequently. They both used mesh. I had a complete hysterectomy, along with the lift of the remaining stuff and the colon resection. I asked about the use of mesh, and my surgeons knew of the problems and did not use that mesh. They have a high success rate with what they use.
I still have some trouble with bowel movements, but with my high fiber diet, it is much better. My surgeon also allows me to take 2 tbsps. of Lactulose each day, and that, along with diet and exercise has given me new freedom. Yes, my bladder still leaks sometimes, but that is so much better, and panty liners are the answer.
I am an active 72 year old, and I know my prior lifestyle could have been partially responsible for my troubles. The high-stress job with no regular bathroom times, poor diet, and overweight until 5 years ago did not help. But, the biggest cause, according to my specialist, is child-bearing.
Evidently, women who have C-sections do not have the problems with prolapse, etc. as we who had natural childbirth. Oh, well.
I am glad I had the surgery. I can now fish again without problems, I can quit worrying about the "suspicious" findings in my ovaries and uterus, and I don't have to stop for bathroom breaks so often. I work out at the gym and can go 3 miles now. I lift some weights, too. I go on mission trips through my church and can help with the physical labor. Prior to my surgery, all that was a problem.
The hardest part of the surgery was waiting to be cleared for fishing (2 months) and lifting (6 months). Of course, I did push those limits, but not so much that my surgeon was mad at me!
On a positive note... I had a vaginal hysterectomy with cystocele, rectocele and suburethral sling in October of 2007. I was out of work for 3 months because I am very active at work (lots of bending and picking things up and walking and stairs). I am so happy I had these procedures done. My world was getting smaller and smaller because I didn't want to spend any time on my feet unless I had to. I felt like one day my insides were just going to land on the floor!
I found a uro-gynocologist and went for it. My life has returned to normal except for the amount of weight I lift. I will no longer lift things more than 25 lbs. without help. I always ask and someone is always willing to help me lift.
I had the synthetic mesh support and have had no problems with it. My sex life has returned to normal and I can go for long walks on the beach again without worrying about being to far from a bathroom or feeling like my insides are falling out.
Yes it was hard to go through everything, but so worth it in the end.
Good luck to you all going through this and I hope you are as successful as I was.