3rd mesh removal/ feedback please!

My trouble with mesh erosion started shortly after my 2nd bladder repair in May 2011. By July I could barely walk and had tons of blood in my urine. My uro has had a difficult time excising the mesh from my bladder and just has my 2nd mesh removal March 1st. I am miserable. I have no infection but intense pelvic and lower back pain and hot sharp pain in my bladder constantly. I'm having another scope April 5th and possibly more mesh excised. I'm completely unable to have intercourse for almost a year now and all of the scar tissue in my vagina is very painful. I'm frustrated and am scared that this will never be better and the chronic pain is here to stay. If ANYONE has any feedback or input, please reply if you can. I feel doomed.

I had a partial hytser and cysto repair 2 years ago. Then another cysto and rectocele repair and within weeks, pain, pain, and more pain. WhenI started passing large amounts of blood in my urine, I got referred to a urologist who found the mesh erosion. It had already eroded, perforating my bladder, so much that I've just had my 3rd mesh removal surgery. I have chronic pelvic and HORRIBLE chronic back pain, bladder spasms, painful urination, and totally unable to have sex anymore. I'm 38. Anyone with similar experience, please respond. It would help SO much to get some feed back and know I'm not alone! thanks!

I would do a search on this forum. There have been women in your situation who have posted in the past (some years ago) and this might give you some comfort. Most of them found relief with removal. Some surgeons are better than others in removing this stuff. There is a surgeon who specializes in mesh removal who practices at UCLA. He has been able to successfully take all of it out--even the "arms". I would seriously look for a doctor who has done many mesh removals before going under the knife again. I had mine removed by a urogyne at the Mayo Clinic in MN. Mine was a posterior prolift removal, so it didn't include taking it off the bladder or urethra. I am so glad I had that crap removed. I feel so much better.

Good luck and best wishes.

I feel your pain. Over the past three years I've have 5 surgeries for pelvic mesh issues. Oh, that burning, digging pain with urgency and bladder spasms! My solution was to have the mesh behind the bladder removed and use my own scar tissue (I had plenty - silver lining, right?) to support my bladder. Is my pain gone? Not completely; but there is improvement. My bladder pain is much better, and my continence is good. I'm 12+ weeks post-op from the mesh removal, and still experiencing left side pelvic pain that is debilitating most days. I have posterier mesh for rectocele, too, so I will be seeing the specialist again next week to assess if that's the cause or some other complication from the mesh implants.
I have my days where it feels as though I'm never going to be through with this and cry my eyes out through my doctors appointments. Very embarassing. But I keep reminding myself that this is a journey, there is no one size fits all solution. But as long as we're making baby steps in the right direction, we will eventually get there.
And btw, have a doctor that believes you, even if they can't find the immediate cause. My doctor prayed with me last visit, and while my pain is still there, my spirit was recharged by his caring attitude. And this site is amazing, come back whe you feel like you're the only person you know dealing with this. We are here.