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Endo pain with no ovaries or uterus Endo pain with no ovaries or uterus

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  #1  
Unread 05-14-2012, 05:10 PM
Endo pain with no ovaries or uterus

I had my surgery a year ago 4-12-11. I have been on brand estriadol tablets (2 mg) ever since. Only recently have I been experiencing bloating and extreme endo pain. HOW IS THIS POSSIBLE???? It also hurts where my ovaries used to be.

I don't know what to do. Does anybody have any suggestions before I go back to my dr?

Thank you.

G
  #2  
Unread 05-14-2012, 05:45 PM
Re: Endo pain with no ovaries or uterus



I am sorry, but it sounds like you are not aware that removing the uterus and ovaries is not a cure for endometriosis. Any implants that were left can continue to grow and spread, leading to symptoms. As you have been using estradiol, you have been providing any remaining endometriosis with fuel for survival. But you should also know that endometriosis can also create its own supply of estrogen, so going without estrogen replacement is not necessarily the answer.

Pain in the area where your ovaries used to be could be adhesions, endometriosis, and/or Ovarian Remnant Syndrome (ORS), a condition that can occur if a tiny bit of an ovary was missed. With ORS, you can even have an ovarian cyst which can cause pain and bloating. You might find this article interesting: Ovaries - Can they Grow Back...?

I would suggest you start keeping a detailed symptom diary that you can share with your doctor. While your pain may be endometriosis, it could also be adhesions, the ORS, or a number of other health conditions. For instance, many women with endometriosis also have co-existing diagnoses of IC and/or IBS, both of which can cause pain and bloating.

Because you have your cervix, your pain may also be originating there.

Try not to panic but do get in to see your doctor. If the issue is in deed endometriosis, you may need to discontinue your estradiol and/or add progesterone. But don't make changes to your HRT without working with your doctor. You should also consider consulting with a doctor who specializes in treating endometriosis.

in there!
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