lynch syndrome

I am wondering where and how I can get genetic testing for lynch syndrome? My mother had colonrectal cancer 4 years ago and her oncologist recommended that my sisters and I get genetic tests. I just found out that endometrial and ovarian cancers are included in this syndrome as well. I'm having SAH surgery on 6/14 and I want to keep my ovaries if possible... If anybody can give me any info on being tested, it will be greatly appreciated!!

My sister had colon cancer and I had endometrial cancer. I asked the oncologist about genetic testing so my daughter would know. Kaiser has genetic testing group. He said he would refer me but he really thought that they would tell me that there was not enough evidence to warrant testing. I told my daughter to ask her OB/GYN.

Kaiser already has my DNA for research purposes because I also have MS but he says they can't share the info.

The best approach would be to ask your mother's oncologist for a referral.

Thank you for the info. I will definitely ask him for a referral.

My PCP referred me to a genetic counsellor, after my surgery, and they sent the tumor to Mayo Clinic for testing. I don't know what pre op testing is done. You'll need to make a family tree of who's had which cancers. I was relieved to test negative. Good luck with your testing.

http://www.myriad.com/products/colaris.php

This is the test my stepson's gastroenterologist recommended for him since his mother died at age 30 of colon cancer. It is for hereditary non-polyposis colon cancer (HNPCC), also called Lynch's syndrome. The link above takes you to Colaris's webpage, and there is a link for providers.

Thank you ccl I will go to the web site....

Okay...I found out that the testing is available at the same hospital my mother had her surgery at! Thanks again:-)

I would make an appointment with a genetic counselor. If possible postpone your surgery until you know the results. Lynch positive women have an increase of 12 to 19% chance of ovarian cancer over the general public. My gyn/ocn told me (I haven't found information to verify) that ovarian cancer never shows up in lynch women who have had ovaries removed. Recommendation is for total hysterectomy and ovary removal after child bearing age. Colon cancer is a 60 -75% over general public. Go to Lynch international for information.

I have Lynch Syndrome. The testing results don't come instantly, especially if you do them through Myriad. Your hospital might be able to provide them quicker but it's not a quick test. Ovarian cancer is one of the Lynch cancers. I had a total abdominal hysterectomy with everything, including ovaries, removed. My ob/gyn was not well-versed in Lynch Syndrome and wasn't very open to digging deeper. I was 43when diagnosed and fit the Lynch Syndrome profile. I was my own advocate after I started researching. Four months after my surgery, I was diagnosed with colon cancer. They were two separate distinct cancers-not a spread. I would suggest you get tested and then you will have more knowledge to make future treatment decisions.