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Prolapsed everything Prolapsed everything

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Unread 06-16-2012, 07:56 AM
Prolapsed everything

Hello, I have been reading for several days and trying to absorb the information. I am just at the beginning stages of setting up my surgery.

I will be 37 in a couple of months and have had pelvic pain for several years. I have four sons and decided to proceed with ablation 2 years ago. My symptoms have gradually become worse.

I have avoided getting help simply because I was embarrassed, but I have quickly gotten over that. I am not able to have a BM without pushing through the vaginal area with a finger. After urinating a few weeks ago, I felt a bulge when I wiped so I went to my GYN. He examined me and said I have a rectocele, a very prominent cystocele, a urethrocele and my uterus has prolapsed. He is sending me to a urologist who specializes in female pelvic issues, my appointment is this week.

I have read good and bad things on this so I am worried about what to expect. My pelvic area hurts so bad all of the time. I am bleeding sporadically now and sex is very painful. My back aches constantly and I know it sounds like whining, but I am over it.

Has anyone had all of this repaired at the same time? What should I expect? Recovery time? We have not discussed yet what type of hysterectomy I would have. I can get FMLA leave at work for 12 weeks and my short term provides me with half my pay, but I don't know how long to expect to be out.

Sorry this was so long, I appreciate any advice! Thanks!!
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Unread 06-16-2012, 08:55 AM
Re: Prolapsed everything

Welcome to HysterSisters! I am sorry for all you are going through but glad to hear your doctor has referred you to a specialist. Most likely your doctor will do a LAVH or a TAH depending on the repairs. Either way they will take your cervix as well. If your ovaries are healthy I recommend you keep them.

Recovery from a LAVH is about 6 weeks. TAH is more like 8 weeks. Of course it also depends on how slow or fast you heal and if you have any complications. Make sure your doctor is very clear about restrictions and ask if you will have lifetime lifting restrictions.

Ask the surgeon what his success rates are with these surgeries, how many of his patients prolapse again and what his method of repair is. Mesh is not something I would want to mess with.

Let us know how your appointment goes.
Unread 06-17-2012, 05:17 AM
Re: Prolapsed everything

Hi Ang93

Sorry you have had pain for so long.

I had a TVH because of a uterus prolapse and cystocele repair 9 1/2 weeks ago and still healing. Everyone heals at different rates but i would say it usually takes longer than what the doctors say.

All the best with your investigations. Let us know how you go and what you decide xx
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Unread 06-17-2012, 11:03 AM
Re: Prolapsed everything

Thanks so much for your responses. I lost my mom four years ago and with a house full of males, I feel alone without having someone to talk to and ask questions.

I hope you are feeling better isabellamason. Hopefully you are on the down side of the hill and will be feeling good soon!

Today, I can't wear anything tight around my waist. The pain I feel most of the time is like bad menstrual cramps. Is that the pain most women feel with this? I also feel like I have to sit the toilet a lot. Sometimes when using the restroom it is just toe curling pain.
Unread 06-17-2012, 05:28 PM
Re: Prolapsed everything

I don't have any useful info to contribute but I wanted to let you know that you now have a large support of amazing women behind you as you go through this. Please come here often and ask all your questions, you are not whining!

I had a TVH (no repairs) and I was off work 8 weeks. I had a hard time returning to work at that time. I am glad you have the option of 12 weeks off. It's better to ask for more time off and return early than ask for more time when your already off.

I would discuss with your specialist having pelvic floor physiotherapy once you're healed from surgery. I am having severe pain and issues since my surgery and am now doing this. I'm thinking with all your repairs, it may be a good proactive measure to take.

You will have lifting restrictions for at least 6 weeks. Make sure your family is on board and will help you. Even small tasks like getting the milk jug out of the fridge or getting pans out of the cupboard can be difficult and painful.

Wishing you the best, also don't forget to post in the pre op forum as well so you will reach more members.
Unread 06-18-2012, 01:29 PM
Re: Prolapsed everything

Hi Ang93,

I am so sorry to hear that ... and can totally sympathize. I had a 9 lb 10 oz baby ... 17 years later, everything prolapsed (except my rectum, until now). I had TVH w/ cystocele repair and after the initial six weeks, I felt good. Never had a problem!!

Until about January .... when I developed a rectocele. I waited until May to get help but am glad I did. My surgery is next Tuesday the 26th for that repair. I did not have a rectocele when I had my TVH.

I too am in a household of males, I know how you feel!! Sometimes, they just don't get it.

Best wishes to you, and I hope you keep us posted on what's happening.
Unread 06-20-2012, 05:12 PM
Re: Prolapsed everything

Just an update. I saw the urologist today. He did some testing and went over things in detail for me. After urinating, I had 154ml of residual urine. I understand that means I am not emptying my bladder completely. He explained that my urethra is bent and he prefers to use the monarc to correct it.

I thought he repaired the cystocele too, but he explained his partner (my OB/GYN dr) would repair the cystocele, rectocele and the hysterectomy. I guess I thought he would do the cystocele since that is the bladder and he is a urologist??

I guess the next phase is to see my OB/GYN doctor again for pre-op and discuss more of the details. I would like to hold off until August if possible so the kids are back in school and such. I hope I am on the right path.

This is a WONDERFUL source of information and support. I wish it were under different circumstances, but I am tickled pink to have "sisters" to talk with!!
Unread 06-20-2012, 07:43 PM
Re: Prolapsed everything

I had a complete abdominal hysterectomy 11/2010. I have had problems ever since. Now my bladder and bowel are both prolapsed. I need to see a Urogyn. I do not know how to find a good one in my area. Please help me find a good surgeon or doctor to do this. I hope it's ok that I am writing on here since I am pre-op. I feel like I am going to give birth and babys head is in birth canal ready to deliver. The only relief I get is in bed. Can you please tell me a good doctor for this in Austin, Texas. Thank you for your help. Carla
Unread 06-20-2012, 07:50 PM
Re: Prolapsed everything

Thanks for the update Ang. I really hope all goes well for you.
Unread 06-20-2012, 07:53 PM
Re: Prolapsed everything

Carla, I am so sorry you're dealing with this! It's my biggest fear since my surgery. Here is a link that may be helpful to you. It's from the doctor list on this site. There are several listed for Texas so hopefully at least one will be close to you.
Doctor List
I wish you all the best.

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