Heart racing

Hey Folks!
I am 5 weeks post op as of yesterday. After 2 course of Lupron treatment and one surgery to treat endo I finally made the big decision to have the hyster and give up on children. Whew. I also suffer from depression and anxiety disorders, all under the care of a primary care Dr and NP/Couselor. Was making huge progress up until my hyster then I feel into a deep dark hole. My heart was racing despite my Dr. doubling my Xanax and adding another anti depressant to my regiment 2 weeks after the surgery because I was ready to go postal on myself. Still experiencing a lot of pain with #1 and #2 and within the last 10 days severe nausea, even after 16mg of ondansetron. My Dr's have done two blood tests and they both came back with elevated calcium (11.1 and 11). My Dr. drew more blood today and I am going back in to see her next Thursday. Has anyone else had anything like this happen post surgery? I spend the better part of my day in bed, flat because standing up makes my heart race and makes me extremely dizzy. I haven't slept well since the surgery, waking up in pools of my own sweat and having to move beds 2x a night because they are too damp to sleep in. My pre operative hemorroids returned this week as well. My Dr. told me to stop taking fiber because I may be getting too much. I am pretty much vegan (no dairy or eggs or any meat at all) and eat lots of raw foods and juicing for fiber so the fact that my calcium levels were elevated is very surprising. I was diagnosed with periosteporosis two years ago but have only taken calcium supplements during the lupron treatments, well over a year ago. I am due for my yearly scan this month. Everyone has been so helpful with their advise and idea's here I am just wondering if anyone else experienced this as a side effect of surgery and what, besides another surgery, might be the course of action to treat this. Could the sudden lack of hormones have caused this and could it be reversible with hormones? Although I have been advised by everyone to avoid hormones those Dr.s are now seeing how bad off I am (lost 14 lbs since my surgery) and realize something needs to be done. Thanks for letting me ramble, its been a horrible 5 weeks.

hey texas! well i know how you feel! i am 5 weeks post op to and is having the same things you are! my heart races too! and my nerves are bad!! i have hyperthyroids which im trying to get treated next week but which makes my heart race! i hate it it scarces me so bad!! the meds you are on does it calm your heart rate what did your doc say about it! please let me know!

Hi Sadintexas, I personally didn't experience high calcium levels but did experience menopausal symptoms after 5 weeks too. I noticed it was around when I "should have had my period". I think my body was in shock searching and waiting for my body to adapt. I did break and got desperate and bought the bio-over the counter progestarone cream and even tried in suppositories but nithing worked. At about 3-4 months (or should I say cycles) it did settle somewhat then it got better from that point on....until my endo returned and that's a whole separate issue.

What where your calcium levels before hyster? You also mentioned you're loosing weight, are u normally a thin person. I am. I too lost weight after hyster but knew it was the surgery cause for one our organs do weigh some and two I had always (although I was thin) felt and looked swollen, which was the endo so loosing the weight was a good sign to myself that the endo was gone.

You might want to keep a journal and see if your symptom flare-ups consists for your previous cycles. It could be your body in shock, searching and waiting to adapt. Good luck!

Diana

I had this pretty severe. About 2 weeks after heart pounding racing dizzy had no idea what was going on. Ended up with chronic insomina. It ended up not having enough estrogen. I realize you may not be able to take it due to endo. I think progest. Would only make it worse as it lowers prog. There has to be something out there for you. Going through surgical menapause is hell. I also take a ssri and klonipin and sustained melatonin. Thats how bad it got. So all these issues you are having are most likely from no hormones.

Wow, thank you all so much! More pieces of the puzzle are emerging and nothing about this is or has been easy so this support group has just been an amazing tool for me, thank you!
Ok lab work results so far: I have had three blood tests on calcium levels with results of 11, 11.1, and 10.3 all above normal range. Before surgery my bloodwork showed a 9.4 so it was pretty high but not out of normal.
My parathyroid came back 10pg/ml so just barely in reference range of 10-65pg/ml.
My estradiol level came back <5.1 so it's very low.
Yesterday was a horrible day for me, ended up back at my drs office with a racing heart and uncontrollable heartburn. I couldn't stand without my knees buckling and my hands shook out of control all day. I did manage to eat a whole sleeve of ritz crackers, though. I find it almost comical that I have been told no more fiber and no dairy, I'm vegan, what else is there? So I am eating absolute crap processed foods with zero nutritional value and I am starting to feel better, huh? I went vegan because I wanted to avoid the hormones, antibiotics, and steroids from meat and dairy, I'm terrified of endo pain coming back. I haven't even had tofu since my surgery because of the estrogen like properties I have been lead to believe. Is this true? Before surgery I did enjoy cheese and on occasion organic free range eggs. Today I must say that I managed to get the nausea Under control within an hour of waking up from almost 6 hours of sleep! Miracle! Still am dizzy and uneasy on my feet. For some odd reason my severe nausea seems to be tied with my bowel movements so i am guessing i wont have a bm today. I had more bloodwork done yesterday and will be seeing both my surgeon and my regular drs again Thursday and Friday. I already know my surgeon/obgyn is going to push the hormones on me and my gut is telling me no frisking way! So here are my questions, how do I handle the dr when she suggest estrogen? I have been battling painful endo, cysts, and fibroids for the last 10 years, have a family history of heart disease, my mother died at the age of 57 from Pulminary Embolism, I was a smoker for 25 years and have only recently quit smoking April 16th. I am already osteopenia having lost about 3% bone mass each year over the past 3 years. I am small framed but always been very athletic despite being a smoker. I am only 43 and I feel like I have aged 15 years overnight. So I have some reason to consider HRT but really the answer is No. Is 5.1 estradiol really so low that it is causing all my other glands to shut down? Do I really need to take a giant step backwards in order to regain normalcy? Talk about a complete failure, both surgical and emotional if I start taking HRT to fix my symptoms and there is something else wrong with me and I end up right back where I started, endo, pain, and now hormonal problems despite having nothing left but a vagina. No, no, no. I have dropped 14 lbs since surgery, I weighed 144 before and am now down to 130 and at 5'6 I can't afford to lose much more. I get it that I can't continue to live this way, my business had its worst month on record despite it being one of our busiest times of the year, my fault for thinking I'd get through this much easier. I am not prepared to lose everything because of my health but I can't risk my health either. Something has got to turn around. So I am hoping with this new day and very much needed 6 hours of sleep without waking up dripping wet and having to change beds has put a little spring in my step this morning, and with that, in the spirit of enjoy the moment, I am going to go wake my husband and ask him to drive me to the studio and get back to what I love to do, my glass artwork. Will check in later ladies! Wish me luck!

Wow you and I could be twins. And my guess you are in full blown surgical menapause. Everything you describeded I had. What a freakin mess. Im not an expert and I do no alot about soy and estrogen. Not sure if the amount in food would cause endo to return. I do know the lack of estrogen can cause all the symptoms. So if you dead set against it I have heard trazadone may help it is a ssri something you may want to ask your doct about. It helps with the heart racing panick feeling and sleep. Transdermal estrogen may be a option as it does not pass through the liver. Im sure if you choose none of these at some point it would get better as there are millions of women going through this the question would be how long.

its me again ! when i lay down everything is fine but when i get up its instant nausea and i feel like i am so full did that happen to you?

Yes, standing does sometimes but not always make the nausea worse. Wow did I hit the wall today. I was doing so well, the brain fog wasn't to bad, the nausea under control so I tackled some paper work, bah ha ha! Thanks god my husband and partner at the Art Gallery noticed that I have written all the checks this morning out of the wrong account and the bills had already gone out! What a freaking nightmare I create just by trying to be helpful. To make matters worse, the checkbook for the checking account was no where to be found, my brain totally and completely shut down! I couldn't remember what I was doing one minute to the next so I walked around the house with a post it note in my hand reminding me to stay focused on where I had put the checkbooks before surgery so we could write a check to deposit before 3pm to cover all the checks I wrote out of the wrong account. Of course my husband was so patient and understanding but I know he just wants to kill me but he won't because somehow he still loves me. All the feelings of panic started to happen before my hubby came to pick me up at the studio, and I can not imagine what is going thru his mind right now. Awoken by me just revved up he drops me off and two hours later comes back to find dr Jekyll dry heaving over the sink. Seems food was the trigger this time. Dry wheat toast, who knew it might turn my body from feeling good to puking and panic in just a matter of minutes. Furthermore, the. saddest thing is, even though I did not pick up a piece of glass, I am now terrified to go back to work. What if I program the kiln wrong? Accidentally put something that should not be in there into the kiln. I have absolutely zero faith in anything I do right now and I am dangerous. Unsteady on my feet, unable to think or retain information, unable to remember how to do the simplest of tasks and my biggest creative outlet and livelyhood scares the death out of me right now. I did manage to load the kiln, no I didn't pick up anything over 10lbs, but now I am terrified to run it and be at the studio by myself. Well, the day started out good, let's see if I can turn it back around. Took a xanax to calm me down and managed to get an hour nap. Of course all my shakes, heartburn, racing heart, have returned and the clarity I thought I had this morning is only a short memory soon to be forgotten. Good grief.

Oh yeah, I still have nausea when I lay down but it's standing up that causes dry heaving. I do not have a full feeling but I have absolutely nothing in my tummy usually, I haven't been able to keep down more than 1000 calories a day, and that's a good day. Today I am at 200 calories so far but I think most of that went down the drain.

That doesnt sound good. I hope you call your doct and let them know. You also may benefit from a nutritionist. If you cant do estrogen. I use omega blend fish oil. Mag for the anxiety. Evening primrose. Maca. Of course always talk to doct before using anything. Can I tell you my est was at 40 I thought I was dying I was so freaked out about est and doct kept changing it adding and I got worse. Was in er several times heart docts blood tests. Sick it was anxiety from tbe lack of hormones. It set off insomina. Panick. I was a mess. I know you have your reasons for not using est. But cant they monitor you on it. Or try a ant dep. Or anxiety med. I feel your pain they do help for alot of who cant use est or cant get them balanced. Just a thought hope you find relief soon