I saw a couple of the posts here on stories of cervical cancer and thought someone might have words of wisdom. I have not yet had a hysterectomy although with many fibroids, a polyp, and massivly heavy bleeding it has been recommended.
I realized my increasing symptoms are what seems to be partial cervical stenois. It is very hard for fluids and blood to get through. blood mostly gets through when I sort of flex my vaginal muscles or after urination or a bowel movement. It's happening as well for ordinary discharge now as well.
when i look up causes, i have not had a cone biopsy or leep proceedure, nor was I born with it. (I did have a laser ablation WAY back in 1993 but the cervix healed perfectly). That seems to leave cancer - either of cervix or endometrium. That fits: after years of normal paps, I had 3 abnormal ones in a row, spread out over 6 years. since HPV was negative, they did not want to do a colposope, though i wanted one. when the 4th pap finally, 6 or so years later, came back as fine, they dropped the whole thing.
it's now been 3 years since my last pap. they are exttremely painful for me, not just during but for weeks after. I attribute that to both not having had sex for a long time and all the fibroids causing pelvic pain when aggravated. so i put it off.
but now these symptoms. oh, and also do have vaginal blood between periods (usually after a bowel movement); but since it happens during ovulation, they have been dismissing it.
one more thing to mention - they want me to have surgery for the polyp but I do not want to for at least a couple of years. now the issue becomes getting the gyn to deal with this issue - the cervical stenois and cancer - and NOT the polyp. they don't like that I have refused treatment for polyp (which is not likely to be cancer).
ok, so i'm not sure about the steps here. let's say I risk the month or so of pain and go for the PAP. if they can find endocervical cells and it loooks good, then what? only way to really be sure it's not cancer is thru biopsy, but if i have partial cervical stenosis, should i be asking for a more radical kind of biopsy? not that i want one, but i really think cervical cancer is a very likely possiblity here (back in 1993 i had severe grade dysplasia that was just on the other side of Carcinoma in situ).
since I don't have the other risk factors for cervical stenois, is there any other possible non-cancer cause for it? i don't see it anywhre - just see Leep, radiation, cone biopsy, repeated infection, surgery as causes - and the only other cause is cancer.
also have some questions about if cervical cancer goes behind the cervix towards th e rectum - like a couple of people posted about - can those be seen on ultrasound?
anyway, i really think i'm not going to be able to get the doc to listen. they won't believe me when I say i have cervical stenois, and i certainly don't want to say,go ahead and test and try to get a probe up there! am tryingt to do this swith as minimal invation as I can.
has anyone heard of any other casue for acquired stenois besides what i've discussed? and of course those other questions i asked- how can i be sure it's not cancer? how agressive should i be if pap is normal and colpo can't see anything (given the stenois and bleeding symptoms).
thanks much. i am very worried.