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Large  Uterus  adenomyosis Large Uterus adenomyosis

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Unread 11-03-2012, 11:25 AM
Large Uterus adenomyosis

I'm 51 [still having periods] with 3 children 15 20 and 22.... for 6 years I have had heavy painful periods backpain bloating, anemia etc..I had the mirena for 3 years, in the end I thought it made my symptoms worse, so had it taken out... Recent US scan says I have a large uterus [15 weeks] with adenomyosis..
My gynae has started me on progesterone and will see me again in 3 months.. He will maybe recommend a hysterectomy. My question is, I am hopefully nearing menopause, and by all accounts my symptoms should get better then???? will my uterus stay the same size or will it shrink, at the moment it presses on my bladder, and is very uncomfortable.. Thanks.
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Unread 11-03-2012, 11:42 PM
Re: Large Uterus adenomyosis

Hi, I'm 10 yrs younger than you but also had an enlarged uterus with adenomyosis. A few years ago I told my gynae that I would put up with all my issues until menopause and I remember she told me that there was no guarantee that my symptoms would improve on menopause.
So I'm sorry but I don't know if the uterus does shrink??
Unread 11-26-2012, 09:49 PM
Re: Large Uterus adenomyosis

I am going to have a hysterectomy Dec 5. My uterus is 14 cm with adenomysis. I look like I am five months pregnant. I can't stand it!

< Admin Note: question (and reply) moved to new thread in the Pre-Op Support forum: >
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Unread 11-27-2012, 12:07 AM
Re: Large Uterus adenomyosis

My uterus seems to be smaller than yours around 15 weeks pregnant, but none the less unsightly and very painful.

Can I ask how old you are?? and did you have any treatment before coming to a decision about a hysterectomy?? Good luck for the 5th..
Unread 11-27-2012, 12:19 AM
Re: Large Uterus adenomyosis

I am 51, so the decision was easy. My uterus is retroverted, pushing on my colon, causing extreme constipation and bloating. I.hemorrhaged very badly. Getting diagnosis was a nitemare. I started having symptoms in July. I was sent from Dr to Dr. Test after test. Wasn't until I went to an outside specialist, that my own Drs listened to me. My reg ob/gyn said " your uterus can't the problem" women have enlarged uterus all the time when they are.pregnant! So anyway, the hormones didn't shrink my uterus, it got even larger and at this point I just want it out. I suppose it wpuld be.more of an issue for me if I was younger and wanted more children etc. I am just sick of feeling like a circus.freak with this giant belly. Want my life again.
Unread 11-27-2012, 12:28 AM
Re: Large Uterus adenomyosis

I believe the only definitive treatment for adeno is the hysterectomy. They say that menopause will sometimes shrink fibroids, but I will bet your uterus remains about the same. Symptoms (pain, excessive bleeding) should resolve, but it'll still be taking up all that space. That's the part I couldn't take, was having to go to the bathroom every 30 min !
Unread 11-27-2012, 12:42 AM
Re: Large Uterus adenomyosis

Hello girls,
The more I research it, I am definitively swaying towards a hysterectomy, especially when I see my sister with her new lease of life following hysto.

Because of my age, my gynae is a 'wait and see' guy. But this could go on for another couple of years. AAAHHHH.

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