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I am so tierd of the pain I am so tierd of the pain

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  #1  
Unread 04-04-2002, 11:30 PM
I am so tierd of the pain

Hi all, this is my first post to the message board. I am a 30 year old suffering from painful (don't know where I'm staged at) endometriosis and recently an abnormal pap result which requires surgery. I've had one lap done in 1999 for the endo. Prior to the lap, I did the 6 month regiman of Lupron (i know what to expect with hot flashes now) and also took the Depo-Provera for quite some time until I was bleeding almost every day. I menstruate twice a month now and am just miserable with the pain. I have taken so much Advil... that I bruise when someone just looks at me. I have a RX for Cataflam but I don't take it because I'm drowsy enough without it. I feel like my insides are ready to fall out and am embarrassed at the fact that I'm only 30 years and can hardly get to the bathroom before I'm leaking. I am scheduled for a hysterectomy 4-18-02. The doc said he would like to leave an ovary but will see once he get inside. I am a little nervous about this surgery, but this message board has been really supportive. Sounds to me like the pain from surgery is significantly less than the endo pain I am currently experiencing. So I'm looking forward to hopefully being pain free for the first time in years. I have two weeks left and already can't sleep at nights. Just within the last month or so, I have been feeling something (I can't describe it) awkward in my upper abdomen area. It feels like that perhaps something is pushing up into my abdomen cavity. Has anyone else experienced this feeling or am I have pre-surgery anxiety?
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  #2  
Unread 04-04-2002, 11:56 PM
WELCOME

Awwwww Hugs, it sure sounds like you are at the end of your tether. Mate I can so relate to you about the Endeo. I had Endeo severe and it sure does not make life easy does it>
I can tell you that the pain from a Hyst is not as bad as from the Endeo, infact I never really had actual pain, just a feeling of being abit uncomfortable, and abit of backache.
I did manage to keep one ovary, which I was pleased about, my surgeon told me it looked good unlike the other one which was stuck to the abdomanal wall. I know that there is a slim chance that later on i may have to have that ovary out, but I am glad the ovary for now is doing great and HRT is not something I have to take. since Surgery I feel so much better, so nice not to have periods anymore, to be pain free. It has made all the difference and was the best thing I have ever done.
We will be here whenever you need us do not hesitate to ask for help or support. good luck with your Hyst, just keep telling yourself that it is all nearly over and you will soon be on your way to feeling one hundred per cent better. Hugs Vicki
  #3  
Unread 04-05-2002, 12:10 AM
Welcome!

Hi, Betmarie! Welcome to HysterSisters, best site on the Web! Glad you are finding some support and encouragement here. It sounds like you will be feeling so much better and healthier after you have your hyst. I tried Depo Provera, too, with not good results. I decided a hyst would be the way to solve my uterus problems, and it was the right choice for me. I feel great 9 months after my hyst. The upper abdominal pain you are having could be referred pain from the pelvis, since the nerves send messages up to the diaphragm and it feels like the pain comes from higher up. (I had some of that diaphragm pain, since I had a fibroid growing onto the ligament next to my hip.) Your dr will check everything out during surgery to make sure it is normal. If you haven't found the pull-down menus on the home page, you might like to read those for LIWs (Ladies in Waiting). And if you would like to search for endometriosis or Lupron, etc. you can go up to the "search" button at the top of the page to read past threads about subjects you're interested in. We'll be here to see you through this journey. s and best wishes to you!
Ruthie
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  #4  
Unread 04-05-2002, 05:08 AM
ohhhh, can I relate!

Betmarie: Ohhhhh....can I relate to you! I, too, suffer from endometriosis. Lately, besides the pelvic and back pain, I find that I am exhausted all the time. I used to be extremely active and outgoing....now, within the last two months, I have gained 13 lbs! and live for my heating pad, couch and sleep. I go to work, come home and grab my lovely heating pad, lay down, make dinner for DH and lay down again. I'm usually in my nightgown by 6:30 or 7:00 pm. I:cry: myself to sleep last night at about 7:45 pm while DH sat there helplessly staring at me telling me he's calling someone, doesn't know who, but calling someone because he thinks I've lost it. Actually, I feel like I have too! I know I'm depressed which isn't helping matters. I am physically and emotionally drained and can't help but feel like it's just me. At least I know that I'm not alone. I want sooooo much to be the old me and hope that I will find myself again after the surgery!


Only a few more weeks and then, we'll finally be turning the corner!
  #5  
Unread 04-05-2002, 05:43 AM
hey endo friends

How about this....I have been told by four doctors prior to the last two, that its just the way your built. Some women have pain some dont. ARRRRRRRGGGGGGGHHHHHH!!!!!

Finally my primary care physicain listened to me. He ran the reg exam, all normal, pap normal, mamo normal, cultures normal. And then I said well then why the new pain in between periods. I have always had horrible periods but this is new.....thank heavens he listened. Off I went for an ultrasound which revealed cysts, fibroids and a hemoraghhic cyst in the right ovary. So off I go to a gyn he recommended, she did another ultrasound and off I go for a lap. Way too much to be fixed as I have endo...imagine that 27 years of pain and she was the first to tell me I have endo, she says it stage 4 and has to be removed surgically. The uterus has decided the rectum is its best friend. Thus the fact that sitting is next to impossible some months. So am I relieved....heck no.....scared silly. But I am optimistic that the outcome will be better than it is right now. Although in between periods isnt too bad so I keep thinking I will change my mind

Heres hoping to a pain free month for all of us.

sindee
  #6  
Unread 04-05-2002, 05:52 AM
I am so tierd of the pain

sindee:

I couldn't help but notice that SHE found your endo after 27 years! For several years, I went to different male ob-gyns who told me that what I was suffering from was a hormone imbalance - try new birth control pills and get out of the office. I did that for three years or so until I found a female ob-gyn. SHE took the time to examine me and LISTENED. Before you know it, I was having a lap and what a surprise, I was diagnosed with endo. SHE cleaned me up the first time and treated me following that with Lupron, etc. Now, she retired on me! Said that malpractice insurance costs are too high etc and went in to teaching!

It's not just the way your built.....it's the easy way out for them to tell you that!

Good luck to you and to a pain free month!
  #7  
Unread 04-05-2002, 11:48 PM
Endeo

Weird eh? Well I mean that there is mostly male DR's that do not tend to listen well or do something about finding out alot of our problems in the womans derpartment. Instead finding words like :It's the way you're built". I had a lady GYN and oh she was the nicest most sympathetic woman I have ever had the priveledge to meet. she listens and is so human. I am not saying all male GYNs are like that but just funny how woman seem to get things investigated when there is a woman DR. My GYN specialises in Endeo, has had seminars on it and is top of her field. she calls it the silent epidemic, and has told me she is seeing girls of 12 onwards in her surgery with it. Endeo the curse of modern living eh. To all out there suffering please find someone who will listen. Hugs Vicki
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