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Restless Leg Syndrome Restless Leg Syndrome

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  #1  
Unread 04-06-2002, 10:23 PM
Restless Leg Syndrome

Hello Ladies,

Another concern I have is due to Restless Leg Syndrome, which can be described as:

Restless Legs Syndrome causes creepy-crawly sensations in the limbs, primary in the legs (but occasionally in the arms and trunk). The sensations have the following features Occur during periods of inactivity
Become more severe at night
Are tied to an overwhelming urge to move the limb
Are relieved by movement of the limb
Often cause difficulty staying or falling asleep, which lead to feelings of daytime tiredness or fatigue
May cause involuntarily jerking of the limbs during sleep and sometimes during wakefulness
(Website: Restless Leg Syndrome Foundation)

For me, this has been passed on to me from my mom's side of the family, and the location of my RLS is on the right side of my abdomen. Mine started when I was 17 years old. Currently, the only way I can fall asleep is by sitting up, eventually I go down horizontal during the night.

I can’t even imagine what I’m going to do if it flairs up while in the hospital!!! If there are those of you who have experienced this please let me know. While talking to my GYN this past week, I made mention of this to him (I never had to before). He said there would be no problem of raising the upper part of the bead. I can’t even imagine staying put in bed for more than 5-10 minutes without finding someplace else to go lie down, or not moving about. Those of you out there who go through this nightmare know what I’m talking about!

Pinkie
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  #2  
Unread 04-06-2002, 10:49 PM
Boy, Do I ever Know About It

Dear Pinkie,

I too have RLS and it is horrible. Are you anemic? Because the New York Times had a great article about it and said that anemia can be a cause of it or make the symptoms alot worse.

Of course I didn't know that when I went to a sleep clinic, I didn't realize I was anemic, just felt horrible. They prognosis was I do have many RLS movements all night. I wanted to tell them "No Kidding". Anyways, the neurologist presrcibed mirapex for me and it helped.

But after I read the article about it being linked to anemia I told both my DR and they said they weren't aware of that.

I feel for you and hope you will get some rest. Also opiates give some folks relief so they can get a decents night sleep.

Love & many
  #3  
Unread 04-07-2002, 01:46 AM
RLS

I have been suffering from this for several weeks now and also read that it could be connected to anemia. I am scheduled for tah on 5/14 and had d&c last wed. i am very anemic and dr. is trying to get my blood within safe range for surgery. my mother has suffered from rls for yrs. and my grandmother had it also. mine is both legs. that is why it is 4:42am and i am wide awake. are you anemic, pinkie?
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  #4  
Unread 04-07-2002, 03:08 AM
Pinkie's Response

Honestly Ladies,

I don't know. I'm due back to the GYN May 31 for a repeat pap, I'll ask him then if I don't hear from him earlier.

Pinkie
  #5  
Unread 04-07-2002, 07:03 AM
Re: Boy, Do I ever Know About It

<Snipped For Space>


  Quote:
Originally posted by colmar13
Dear Pinkie,

I too have RLS and it is horrible. Are you anemic? Because the New York Times had a great article about it and said that anemia can be a cause of it or make the symptoms alot worse.


Also opiates give some folks relief so they can get a decents night sleep.

Love & many
Hi Pinkie and sorry to hear you are having troubles. I just wanted to comment and let you know, as well as others who might read this thread to be very cautious of the use of opiates. Opiates are strong and users of them can become addicted (not saying those whom become addicted are drug addicts. It can happen without even knowing it). I hope you can get in touch with your doc and seek some relief. I know what it is like to loose sleep (as I have insomnia). Let us know what happens.

  #6  
Unread 04-07-2002, 07:44 AM
Restless Leg Syndrome

WOW!
This is the first time I've ever heard anyone else describe what I go through almost every night! My husband calls me "Jimmy Legs" cause I'm always moving around while watching TV and after I fall asleep I have leg spasms that keep HIM awake. (lucky me, I must sleep right through them!) I've asked my doctors and they never mentioned anything about being anemic. I wonder if there is any other connection between this and the problems that have resulted in getting a hyterectomy? I also have concerns about this prior to my surgury, will I be able to lay quietly while recovering?
Best of luck to you Pinkie, thanks again for the information.
Nancy
  #7  
Unread 04-07-2002, 10:34 AM
OOPS

Hi All,
Sorry, I'm not trying to advocate opiate use. I take mirapex, it is a drug for parkinson's disease and its pretty effective for me.
It has something to do with dopamine production and the article states that iron deficiency interrupts the prodution of dopamine.

The article was in "The New York Times, Science, on November 27, 2001.

Anyway it is truly a miserable condition & hopefully it won't happen while you are in the hospital.

Love and Kindness
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