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?s about endo after hysto ?s about endo after hysto

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  #1  
Unread 04-07-2002, 03:57 PM
?s about endo after hysto

Hi sisters.....I am wondering if after a TAH/ and possible BSO if any of you have experienced pain from any endo left that could not be removed????

I only have pain from my stage 4 endo during my period. It has always been this way and from what I read I must be very lucky.
So I am concerned that if they go in there and mess around with it that I will end up in more pain than I am now....is this possible??? All my pain is rectal as the uterus has attached itself to the wall outside my tush....gross...so sorry. Doc doesnt see it too be too big of a problem but I do!!

If I keep the ovaries will any leftover endo react monthly??? What have you ladies found to be true with your cases......

help

Cindy
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  #2  
Unread 04-07-2002, 07:39 PM
?s about endo after hysto

I feel fortunate in saying that I have had no complications or pain since my full recovery from surgery. Everyone is so different. You may wish to ask this question in the forum called The Road Less Traveled. This is where some gals discuss post-op pain. I wish you the very best and hope that soon your pain will be a distant memory.
  #3  
Unread 04-07-2002, 08:17 PM
?s about endo after hysto

Hi,

I had a TAH/BSO in October and the pain from endo was immediately relieved. (My uterus was stuck to my colon.) My ovaries were scarred so keeping them was not really an option. I have heard that the endo can sometimes react and recur when the ovaries remain. However, that's something to discuss with your dr.

If you do remove the ovaries, your dr may keep you off hormones for awhile. In my case, I'm on a low dose of natural hormones (estrogen and progesterone) in an effort to prevent menopausal symptoms without causing an endo reaction. I'm praying for the best! You can discuss this option with a knowledgable compounding pharmacist if your dr is not that familiar with it.

Best of luck!!



Laura
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  #4  
Unread 04-07-2002, 08:34 PM
?'s about endo after hysto

My doctor told me that it would be of my best interest to take out my ovaries because of the endo. he said there was no reason to get rid of some just to have some of it return.
  #5  
Unread 04-07-2002, 08:43 PM
?s about endo after hysto

HI!
I have my surgery tomorrow and wonder this exact same thing. My Dr gave me the option to keep the ovaries or not....won't know if they are endo ridden till he gets in there but I just want them OUT! Don't want to do this again down the road....

It's so hard to know what to do b/c everyone tells you something different. I just pray for the best. My pain has always been at ovulation time and of course period time. Horrid! So I keep thinking that since those body parts will be gone, you'd THINK the pain would be gone as there wouldn't be anymore bleeding to kind of fester the pain. The Dr wants me on HRT right away but from what I've read it doesn't seem very wise. So I'm at a loss as to what to do. UGH! Super good luck to you and if you would like to keep in touch, I'd be happy to let you know how it goes! KimAZ
  #6  
Unread 04-08-2002, 09:43 AM
?s about endo after hysto

a hyster does not, I repeat, does not get rid of endo! If they do not remove all the endo, you will continue to battle it. It doesn't matter if you leave the ovaries or take them, it doesn't matter if you take hormones or not since endo produces its own. Pop over to the webmd.com endometriosis message board and post your question and talk to salmonl who has been down this road as have I. I lost my uterus in 91 and my ovaries in Dec 01 and am still dealing with endo. Please see an endo specialist for excision surgery to completely rid yourself of the disease.
  #7  
Unread 04-08-2002, 10:10 AM
I'm there, too

Hi! I'm right along with you. As the last post stated, a hysterectomy does not guarantee a cure for endometriosis. It just depends where the cells are. However, it is the best cure for all the pain you are going through right now. I've had 4 laparoscopies/otomies for the endo. One time my uterus had fused to my rectum, too. Crazy stuff, I know. I'm getting my surgery on the 10th. I chose to go through all the laps first because I wanted the opportunity to have children, and thankfully, I was blessed with 2 without the use of fertility drugs. They were miracles though, and my heart goes out to anyone who struggles to conceive. My aunt has endo, too, and they were able to conceive only after 2 attempts at in vetro. I can't say whether or not the endo will return. I haven't tried it yet, and I don't know the percentages. I know there is some kind of surgery that certain doctors perform that removes not only the brown or black lesions, but the flesh colored ones as well. Still, it's no guaranteed cure. I'm just willing to go along with the hyst because I have my children, and I'm tired of living in pain. If it doesn't work, so be it. At least I tried, right? The decision is ultimately yours on how you want to treat your disease. My doctor wanted me to get a hyst at 18, but I told him no. Even now, I want to fight it, but I know there really isn't any other intelligent option. Do some research on the subject, get other people's opinions who have been through it, and evaluate what you want your decision to be. This was the best decision for me, but it may not be for everyone else. You'll be in my thoughts and prayers!

Jen
  #8  
Unread 04-08-2002, 10:24 AM
thanks Jen

for the wonderful reply....I am hopeful that since I only have pain 3-7 days total a month from the endo that it will not increase. I am lucky (I guess) as I have stage 4 endo and I have pain only during ovulation and period times. some women have very little endo and lots of pain. I think the hyster is the only option due to the fibroids and the bleeding. To be honest I could probably live with the amount of pain I have had since I was 16 but the bleeding has gotten out of control. It causes me too much aggravation. So I will tough it out and go in two weeks.....

God Bless you and good luck on Weds. I will be thinnking of you.

Cindy
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