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Unread 04-11-2002, 04:42 PM

Hi.. I just found this site.. and thank GOD! I have been everywhere trying to find out info on hysterectomy and got a lot of negative info... so happy to find this site...

Ok.. here is my issue: I was diagnosed with endometriosis when I was 18... I was lucky enough to have 3 kids and now my insides are (to quote my OB/GYN) "a complete mess" and I am in pain. Dr recommends Hysterectomy and my mother agrees as she had the same problem and was happy with the outcome.

Problem is.. the friends and other family I have told have all jumped out of their skin and said.. OH NO... You are only 29.. you should have a 2nd opinion... don't let them do that to you.. etc.

Am I being naive by not worrying about this? I mean of course the thought of surgery is scary... but why wouldn't I want it??
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Unread 04-11-2002, 04:50 PM

I totally hear you. I am 19 and am having a tah/bso due to severe endometriosis that I've been battling for the last 7 years. I know where you're coming from. Why wouldnt' you want to have this surgery if it means that you can have a pain free life. I had a different reaction when I told everyone what I was having done. Everyone has known how much I've suffered and they all agree to go ahead with it. I know that it seems so drastic, but just think about how good it will be to have a normal and pain free life. I, for one, can't wait until May 2, just to know that I'll never be in this amount of pain anymore. Its gotten to the point where it hurts so bad just to walk. So, if you want to have the hyst and your doc thinks it will help you, go for it. You are the one who is living with this disease. I hope everything works out for you. Pain free wishes always.

Unread 04-11-2002, 04:52 PM
Thank you Bubbles

Thanks for the advice and the good thoughts.. all the same to you as well.
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Unread 04-11-2002, 05:00 PM

Oh Kiwi, you are not being naive. You sound as if you are prepared for the surgery. Some friends and family sound negative but they mean well. They don't like seeing loved ones in pain but their thoughts of surgery scare them too. Try to give them hugs for thinking of you. There are things that can be done about endometriosis, such as Lupron shots, that can be effective for a while, and other treatments I am sure, but no cure. A hysterectomy is the closest you can come to a cure, but if you are not totally set on the surgery, talk with your doctor and look at options. If you are ready for surgery, then by all means, go for it, and know the ladies on this site are here for you.

Once you and your doctor are fully sure (if not already) that this is how you want to proceed, then go into it with a positive attitude. Tell your friends and family that you've made your decision and are comfortable and thrilled with it. Once they understand this is how you feel and how it will help you, I am sure they will step right in and be as supportive as you need them to be.

Best Wishes!
Unread 04-11-2002, 08:31 PM

Thank you for the reassuring words.. these helped me a lot.. and you are right.. if I approach people positively.. they come back at me a lot different than when I say.. my dr is recommending a hysterectomy. Thank you!
Unread 04-12-2002, 06:05 AM

Isn't it amazing how other people think that they should be consulted about YOUR health!? That being said, I agree that it is probably because there are a lot of people that are really afraid of surgery. Just read some of the posts on this website and you will see that even some women that have made the decision to have this surgery are still scared to death of it.

I've had several surgeries, so I'm kind of used to it now, so I wasn't scared about the surgery itself. I had other reasons to be scared... You are doing what is best for you and it is really nobody else's business.

Good luck on your painfree and happy future!
Unread 04-12-2002, 11:03 AM

I'm 35 and 4 weeks post-op. I say if your life suffers, you are the only one who can determine the proper action to take to relieve it. Honestly, the only things that kept me from having a hyst 10 years sooner were 1) I didn't think any doc would do it when I was that young, and 2) I was terrified.

It's a very personal and individual decision. If you're done having kids, and if you're enough of a mess inside that you might not be able to carry more anyway, then why not have the surgery? It can be a pretty emotional experience -- was for me even though I never wanted kids -- but not necessarily a bad one.

I'm looking forward to a level of freedom I've never had. Imagine not having to consult a calendar when thinking about vacations! Woo-hoo!

Best of luck,

Unread 04-12-2002, 11:49 AM
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