This is somewhat embarrasing....
For several years I have been having boils that appear on and off in the axillas (arm pits) or the pubic and genital area.
I had been tested for a variety of diseases and doctors end up saying that they are just ingrown hairs which produce these boils and that they go away.
Yes they do, but they tend to recur every 2 to 6 months and they are very painful.
Hidradenitis Suppurativa or acne inversa are boils that get infected, when the hair follicle clogs up. And even though they can appear in men, it is more prevalent in women, specially the ones that occur in the groin or pubic areas.
Right before my second surgery for RSO on June 26, another one showed up. I mentioned it to my gyn. since I have not had one in a few months, and I was given a course or antibiotics (tetracycline) which doesn't seem to be working.
I never related them to my menstrual problems and that is the reason why I am bringing it to this forum.
After doing some investigation on the matter I found out that not only it is the occlusion of hair follicles where the apocrine glands reside which produce this painful absesses, but there is also a hormonal theory in which:
.....improvement and relapse after pregnancy and contraceptive pill intake suggest that low levels of estrogens predispose to hidradenitis suppurativa....
.....this condition often flares in women with menses....
....A premenstrual flare in disease activity was reported ....
....a patient with hidradenitis suppurativa with premenstrual exacerbations, who was treated successfully with total abdominal hysterectomy and bilateral salpingo-oophorectomy combined with estrogen substitution.....
So, my question is:
Have you heard of this before?
Now I have one ovary left, and I am not sure it is working.
I was put on an estradiol patch of 0.05 mg for hot flashes, which is very small dose because of underlying depression (I was just changed to Effexor and Trileptol), and don't want to exacerbate the mood changes.
LSH on May 22 because of pain and continous bleeding; found out during surgery I had endo, fibroid, and adeno.; nothing showed in any previous exams and tests.
RSO on June 26 because of very painful hemorrhaging burst corpus luteum cyst.