Maybe I can get some support here....
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07-28-2002, 08:38 AM
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Hyster Sister
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Hysterectomy: January 8th, 2002
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Maybe I can get some support here....
Hello thar y'all. I've posted on other forums with my concerns/frustrations/feelings and checked by days in a roll and my post is still sitting there and buried up by posts that have tons of responces. That hurt, since I have no where else to turn to deal with this stuff. I came here at the end of 2001 and this place really helped me out. I was so down and out.
I had my tah/bso on jan 8th and it was a struggle to make the choice, but I was so miserable, I didn't feel I could just live with the pain. Well, I am now having the same kinda pain and almost as intense. Only difference now, is that I don't bleed with it.
I found that I have multiple prolapses and that its possible they are causing the pain. I wonder now, if that was the problems before and if that's so, that just completely depresses me.
Even if I still needed the hyst, I could have at least had these repairs done at the same time. My hormones are outta whack on top of this all.
I don't know what I am asking, other than I need some support. I don't know where else to turn.
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07-28-2002, 09:35 AM
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Hyster Sister
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Hysterectomy: June 5th, 2002
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Maybe I can get some support here....
Charity,
I am so sorry you are going through this. I don't have any help to offer, since i haven't had your porblmes, but i can offer my concern and caring.
What has your doctor said about what is going on ?
Nancy
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07-28-2002, 09:51 AM
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Hyster Sister
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Hysterectomy: January 15th, 2002
Surgery Type: TAH
Ovaries: Kept 1 or both
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Maybe I can get some support here....
(((Charity)))
I'm sorry about not getting any responses. Most times, people respond to what they are familiar with. You said you didn't ,"know what you were asking here." You are asking for support and that is what Hystersisters is all about.
I am going to assume, because you know about the prolapses, that you have seen your doctor. Has he offered a reason why, if they were occuring before surgery, that they were not taken care of then? If this is something new, I would not hesitate to have them fixed. I know that sounds overwhelming. ( my hyst.was Jan.15, o1) and the thought of surgery again isn't appealing. I will tell you though, your life can be better when you are "put together".
See another dr. See two or three; whatever it takes to get your life on track. You need help in the hormone dept too. A good dr. will make sure you are not suffering. Some ladies can not take HRT. Have you read through the Hormone Jungle? I encourage you to do so. It is wild over there,  you'll need to read slow! Ask your dr.for complete blood work to be done.
Like I said, I know the thought of starting over , or again, however you look at it, is awful. I'm still going to encourage you to do it and I am going to keep the  warm and the  's going out. We're in your corner here and look forward to sharing in your path to renewed health , even if that path is hard. Keep us posted.  Karlene
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07-28-2002, 12:06 PM
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Hyster Sister
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Hysterectomy: August 23rd, 2001
Surgery Type: TVH
Ovaries: Kept 1 or both
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Maybe I can get some support here....
Dear Charity,
I'm sorry that you didn't get the responses that you were hoping for. I don't know which forum you posted on, but there are some which have so many new threads started, that the posts end up on the second page very, very quickly. I'm glad that you decided to post again.  's
I had my hyst for prolapses of all three - uterus, bladder and bowel, and in my case, it was very obvious to me that there were problems. Not to be too graphic, but in order to have a bowel movement, I had to actually push against the wall of my vagina because the bowel wall was bulging into it. Every time I urinated, I had to push my bladder back up, because it felt as if it was sitting right at the entrance to my vagina (like a ball that was in there). So, in my case, I knew I had problems and was able to tell the doctor about them. Your prolapses may not have been noticeable to either you or your doctor at the time that you had your hysterectomy.
I would suggest that you might make an appointment with a Uro-gynecologist, and discuss all of your options with him, in case there is a non-surgical solution to your problems. I'm sorry that you are having pain again, and hope that you will feel better soon.
Please let us know how you are - we care.
 's
Karen
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07-28-2002, 12:07 PM
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Hyster Sister
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Hysterectomy: June 18th, 2001
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Maybe I can get some support here....
Hi Charity..  and  s
I am very sorry that you didn't get any response .... Karlene is right sometimes the gals answer to what they have experience in...... But sweetie please don't feel hurt.... We at hystersisters care about you VERY VERY much  And you can get support on any site... So Im glad you came here..... I don't have any experience in this... But I know someone will be along to help......Did you go over to the road less travled???????I know I read gals with the same issues.......I so understand how overwhelmed you feel....... But keep on the DR for answers......I myself have med issues... And I feel like I live in DR.s waiting rooms..Grrrrrrr.
We are here for you and care very much...... Keep posting any time
God bless.... SIS
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07-28-2002, 03:13 PM
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Hyster Sister
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Hysterectomy: July 9th, 2002
Surgery Type: TAH
Ovaries: Removed both
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Maybe I can get some support here....
I am sooo sorry you are going through everything you are. I too, offer a  of friendship.
I am not familiar with the medical problem you are going through but I am too familiar with outa whack hormones and the helpless feeling it can cause. Please keep us posted and join us in chat if you feel comfortable about that. The people here are wonderful and caring. Welcome!
My best to you,
Carole
cakara on board
ohio cakara on chat
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07-30-2002, 10:36 AM
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Hyster Sister
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Hysterectomy: December 6th, 2000
Surgery Type: TAH
Ovaries: Removed both
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Maybe I can get some support here....
Hi there, I was taking .0 vivelle patch. Because of my complaints of moddiness, short temper, laziness, fatigued, etc... doc upped my meds to .75. I'm trying it out for a month to see if that helped me any. So, maybe that is all you need right now. Just go to your doc and find out the problem. Have him to do some of those blood work and rule out all the possiblities. It is worth the visit again. We are here to give you a hand when one needs a hand. Don't feel hurt. We usually respond to the topic that interests us at the time, usually that the "problem" I have and repond to that issue. We do not mean to ignore you. You are not alone in this as I get no response sometimes. Just hang in there and one will come along.
Big hug to you,
Dale
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07-31-2002, 10:06 AM
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Hyster Sister
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Hysterectomy: September 21st, 2001
Surgery Type: SAH
Ovaries: Kept 1 or both
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We're listening...
I'm "talkative" on the site one day, a mere lurker the next.
I have a few questions for you, if that's ok....
After your surgery did you at any point see any improvement in you pain levels?
Are you still working with your doctor, telling him/her how you feel? I wasn't a "good patient" after my surgery and did not tell my physician EVERYTHING that I should have. I ended up having a lot of pain needlessly - she couldn't fix what I didn't tell her about.
I wouldn't know where to start on the hormone issues, I kept my ovaries. A lot of ladies over in The Hormone Jungle talk about using anti depressants to help with both depression and hot flashes. We can't kid ourselves, this can be a really tough surgery to get over, and I have certainly fallen prey to depression with the types of complications I have had post op. But it has truly helped me to talk about my feelings and to understand that I'm not just depressed but Angry, and that my anger is justified. Its ok to be upset when your body (or anyone/anything else!) fails you.
Write back, lets talk.
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08-02-2002, 02:05 PM
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Hyster Sister
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Hysterectomy: August 6th, 2002
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Hugs, too
Nel,
I didn't even realize this forum was here!! I'm so sorry you felt neglected. The sisters here are really amazing as you can tell by all the previous posts.
I'm 6 years past natural menopause but knew I could never take HRT. My mom's family is riddled with cancers, especially reproductive organ cancers.
I started on anitdepressants last September. It was a really bad year until then and I realized I couldn't cope alone. I can honestly say it saved my life and my marriage. I was ready to walk out on my husband, didn't care about anything, just wanted to sleep. I told my husband I was taking the drugs and we should wait 6 weeks before talking. He agreed. It saved my marriage because my outlook was out of the "mud".
I was also having post menopause spotting. If I hadn't been on the antidepressants, I probably wouldn't have even bothered to go to the doctor and nag my way through to a uterine biopsy. Taking the drug freed me from the "mud" and allowed me to push for my health care. The cancer is very early and very curable. Without the antidepressants, I probably would have let myself die.
Talk to your doctor again. You control your future. My good thoughts and lots of  s are with you.
Laura
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08-02-2002, 04:33 PM
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Hyster Sister
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Hysterectomy: December 13th, 2001
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Maybe I can get some support here....
Hi Charity,
I'm sorry to hear your are having such a hard time. Please know that my prayers are with you.
I, like you, struggled with the decision for this surgery. I am over 7 months post op and am doing much better. I have just recently gotten my hormones somewhat under control. I still have a bit of a problem with my emotions, though. Things will get better in time for all of us.
I'll keep you in my prayers. Take care of yourself.
 's,
Charity
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