Mixed up / emotional & in need of advice please!

Hello to all

I am sat here feeling patheticaly sorry for myself & wondering will I ever feel well. I am angry at life or should I say lack of it.
I am 9 months post hysto/BSO for chronic endometriosis & have had scan results this week which shows a reurn of endometriosis & sevre adhesions sticking my kidney tubes/ small bowel & bladder together. No wonder Im in agony again! I am trying to find the strength to say yes to more surgery but having a hard time convincing myself its worth it. This would be my 5th opperation in 18 months. The endometriosis is localised in this area instead of widespread through the entire pelvis like last time. The Doc says it will imrpove my quality of life & pain. But for how long. I was on HRT but ditched it 6 weeks ago due to pain. The pain has eased some but it is the adhesions where evrything glued up is killing me.
The plan is to excice all the endo/ lysis the adhesions & saty off the HRT for 6 months & introduce a natural progesterone only regime after this time lapse.
I think I need to here from anyone who has had succes with getting rid of endo monster & adhesions to spur me on. I have put a block on making a decison till after Christmas.
I am 32 years old have 2 children & am currently dealing with a mass under my tooth which has spread to the inner ear & is giving me vertigo. I am in the middle of a lupus flare & cant get an appoitnment to see my rhemy or a dental surgeon for a month. What else can strike me down I am battling so hard to stay on my feet & cope with all of this. My father has been in hospital for 2 months & my mother is dependant on me to take her a 30 odd mile round trip daily & I have had to pull the plug on her as I cant drive today I am so dizzy. My husband goes away on business at the weekend for 2 weeks &I am so tired of being strong & dragging my weary body out of bed to care for my family. Its not like I don't try by goodness I am doing everything I can I stick to a wheat/dairy free diet, I pay to see a refexologist & austeo path weekly I live in Hollands & Barrets the amount of herbal remedies & vitamines I take it would be cheaper to buy a share in the company
Please I must appologise for my outburst but I felt like I would implode if I didnt get this off my chest. I think I have after 14 years of agony & medical treartments & surgeries I have finaly ran out of steam. I have changed my profession so many times to compensate for my health but have hit an all time low & just resigned from my current teaching profession which I loved & kept me going. I have lived 14 years on the basis of mind over matter & just got on with life but the past 18 months have been unable to leave the house the majority of time & have worn me out.
Can someone reply to this mixed up surgical menopaused mad woman & give me some insperation to say YES
Thanks Tina2

Tina,

I'm sorry you're going thru all this.
I really can't offer advice--going thru similar situation and it feels like I'm doing it with my eyes blindfolded and my arms tied behind my back.

But I can offer a long-distance shoulder to cry on, a pair of ears to listen to you, and my sincere understanding of what you're going thru.

Sabrina

((((((Tina))))))) I'm so sorry you're still dealing with the endo and the adhesion monsters I can't offer any insight or any advice, since I have no experience with either of these awful conditions. However, I thought you might be interested in going through some of these websites, where you might find some of the answers you're looking for.

Here are some links to adhesions websites:

http://www.drdaiter.com/hyst_ecto/hyst3.html
http://homepage.tinet.ie/~pjlb/adhesions.htm
www.Adhesions.org
www.Adhesions.com
http://www.adhesions.org/Links/Doctor/resources.htm
http://www.adhesions.org/Links/Doct...clesprevent.htm
http://www.adhesions.org/forums/ADH....0201/0024.html
http://www.adhesions.org/images/DrReferLtr.pdf
http://www.hystersisters.com/vb2/sh...&threadid=24207
http://www.adhesions.com/patient.html
http://www.adlap.com/adhesions.htm
http://www.generalsurgeryinfo.com/gerhart5/index.html
http://www.drcook.com/adca15.html
http://www.hystersisters.com/vb2/sh...?threadid=19427
http://www.nurseminerva.co.uk/adhesion.htm
http://www.adhesions.org/patientguide/index.htm
http://www.pelvicfloor.com/library/...subcategoryid=8
http://www.pelvicfloor.com/library/...ubcategoryid=28
http://www.obgyn.net/cpp/ATE_0900.htm#Lap
http://www.ivillagehealth.com/exper..._171560,00.html

Here are some links to endo websites:

http://www.cdc.net/~wolfekat/endo.htm
http://w3.one.net/~dede/
http://www.ivillage.com/memberwebsites/error.html
http://www.geocities.com/HotSprings/Spa/9959/endo.html
has changed to:
http://www.geocities.com/endometriose/
www.endometriosistreatment.org

I hope this helps. Please hang in there and come here and vent anytime you feel like it.

Just want to say thankyou both for your kind replys. Today has been a very emotional day. I shall busy myself looking up the links tomorrow Dany I am sure they may help me work through this decision. Still feeling very woozy from the vertigo but having DH to give me some hugs & TLC has helped pick me up a bit. I think I am just at the end of a very long thether & could do with a break. Lets hope so.
thanks again
tina2 xxxxxxxxxx

*Tina*

I just want to tell you how sorry I am that you're going thru all this pain and misery. I am having problems with adhesions as well-and feel as though the endo is back...somewhere in there. It's hard for me to get out of bed sometimes...it's hard. Please know that we are here for you-and can lend a long-distance shoulder to cry on anytime. s for you sis!

Big ,

You are going through so much. I know you don't want to have yet another surgery, but if it is going to make you feel better, maybe it is worth a shot. I know how youfeel though, I was told by one dr that I needed to have surgery again to remove my reamaining ovary due to continued pain and cysts. I begged and pleaded noooooo. My second opinion said he wouldnt suggest surgery, he thinks I should keep the ovary, I was so happy to hear him say that. I am still torn between the "keeping the ovary with all it's pain" or having the surgery. It's a hard decision. Take the time that you need and think about it and decide what is best for you and your health in the long run. I do know that HRT aggrivates endo so that is something you need to consider also. It seems you already have since you have quit taking it, but that is a toss up too, I know.

I hope your dad gets better soon and I'm sure your mom understands. You don't have to be Superwoman although I know many of us try.

Good Luck, I know it makes you feel better to just vent and get it off your chest, I have done that many times here. Feel free to email or IM me if you just need to yell ,scream and holler, I might join ya!

Dawn

(((Tina)))) Just wanted to add that I know all about the inner ear infections and the vertigo and all: I had that, years ago, and ended up practically bed-ridden after a while, the vertigo was so bad. I remember that one day where I couldn't even watch TV or read a book because they would trigger the vertigo attacks

Do be careful not to eat anything that will aggravate the vertigo. This includes caffeine based products (remember: tea has cafeine), spicy foods, chocolate, etc.

Take care, sweetie, and I hope you feel better real soon.