Endo and Lupron Questions...Help Please
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12-04-2002, 02:47 PM
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Hyster Sister
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Endo and Lupron Questions...Help Please
Sheri and Adrite
Thank you so much for your words of kindness. Adrite your analagy hit home, thanks i needed that, you are right there is no reason if im uncomfortable at this time taking Lupron that they can not find another solution for me. Its just been a long battle for me being sent from one doc to the next and being told by some that its all in my head, im sure im not alone in that one, after awhile it starts to wear a person down, but i am going into my docs office with the information and with all my wonderful sisters and telling her NO! Thanks so much again this site is a blessing.
Elena
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12-10-2002, 09:13 PM
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Hyster Sister
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Hysterectomy: July 11th, 2001
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Endo and Lupron Questions...Help Please
Elena,
I know just how you feel about being scared to tell your doctor no. I have fibromyagia and take lorcet daily for the pain. My last appt my doc gave me a presciption for the duragesic pain patch to try. I didn't even ask for anything any stronger. I got scared about trying it and called back for a presciption for the lorcet and he told his nurse to tell me he'd only give me a presciption for he lorcet if I first tried the pain patch. I was about in tears and told the nurse I'd try it so he'd go ahead and call in the lorcet. Now I've been worried to death about what he's going to do when I go back in two weeks and tell him I didn't try it. I've thought about just getting the pain patch filled and telling him it didn't work or something. But, isn't it my choice to try a med or not. But, I've been scared if I did that he'd dismiss me from his care and it's hard to find a doc that will give you pain meds for fibromyalgia. Then on the other hand I've been thinking about trying it. It would be nice to not wake up in the moring in pain until you take a lorcet to ease the pain. I've just had some bad reactions to stadol and demerol and can't take them. I was afraid if I tried the pain patch and had a reaction it would take days to get out of my system. We'll all be with you in that waiting room. When I first was told I needed the lupron I was scared to take it. I asked the doctor if it was his wife would he tell her to take it. I should have known how bad it was when he wouldn't answer me--he just said it's up to you if you want to be pain free. Little did I know how wrong that choice would be. I found a web site before that listed over 250 side effect to lupron. I'll try to find it and post it back her for you.
Jonna
lavh
keep left over
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12-11-2002, 06:58 AM
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Hyster Sister
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Hysterectomy: November 23rd, 1999
Surgery Type: TAH
Ovaries: Removed both
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Duragesic
Duragesic is a very good way to control chronic pain. It's long acting and is less harmful for your liver and kidneys.
I know several people who are on that method of medication.
Here's some information about Pain and Pain managment. Please read it. Make up your own mind, but as with everything...be informed. Lots of people on the "Road" can help you with "how did this work for you" kind of stuff....
http://hystersisters.com/vb2/showthr...threadid=83221
We were all really scared to try that kind of thing. But I'm awfully glad I stumbled upon it.
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12-11-2002, 10:07 AM
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Hyster Sister
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Hysterectomy: December 12th, 2003
Surgery Type: LAVH
Ovaries: Removed both
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I haven taken Lupron 5 different times!!Pain or hot flashes--up to you!!!
I had my hyst. April 2001--kept the ovaries--Just had my left ovary taken out 11-22-02 due to endo on the bowel and the bladder. This is the third time it has been on the bladder and the bowel. I took lupron in 1993(6mos.), 1994(6mos),1995,(6mos),1997(6mos),2000(6mos). I had hot flashes and lost a few pounds with it, but the hot flashes were ok, I just wanted pain relief. I had to take calcium supplement the whole time I was on them, but to me It was worth it. I did so much research and my dr. gave me a lot of places to research it. I also wore a tens unit--electrically shocks pin pointed areas to help the pain--that too was a big help. I go back to the dr. 12-17, so I am not sure what my next step will be. Try it and if you can't do it then quit, I would at least give it a try, What do you have to lose????
I hope this helps, I am here anytime you want to talk.
Belindadawn
bdb1973@charter.net
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