I've got a diagnosis...finally! Not sure I'm too excited about it, but it is what it is, and that's that.
Intersistial Cystitis...inflammation of the interior of the bladder wall.....very painful. My GYN suspected it too.
The uro doctor was really, really nice...very concerned, compassionate and looked me straight in the eye. I liked that. He spoke in laymans terms too.
We talked, he examined me and then did a cystoscope exam, cathed me and then started the fill...oh my THAT was so incredibly painful for me!! Seems a normal women's bladder will hold 500 cc's before she feels like she's got to go. I felt it with 1/4 Cup in there....I was able to very painfully tolerate (barely) 400 cc's...he took a look in there and saw many ulcers, no tumors though, no cancer. The lower back pain has nothing to do with the bladder...a different issue. I see the GYN again on the 28th of January so we'll talk about that then...since the MRI came back negative it makes a stronger case for returning endo or adhesions...of which my body makes alot of. I found this out during a shoulder surgery I had in Dec. 00.
When I left his office I was in so much pain I really didn't think I'd make it for the rest of the day at work...but, I went back to the office, had a light lunch and took 2 Tylenol. Somehow I made it.
He prescribed a med called Elmiron, gave me a handout of foods to avoid..(quite a list too)...made an appt for 3 months and told me if I have no improvement in 1 month then to call and he will do a proceedure where he does exactly what he did today only with me out cold. There is no way I could have tolerated 1 more drop in there today...NO WAY!! Plus he told me I have a small bladder to begin with....Great. The proceedure he did today is both diagnostic and therapeutic.
I'm feeling very sore tonight and decided to skip Yoga class...doc did tell me I'd be sore today and tomorrow and will burn with urination....and I do. I really don't want to drink anything at all to avoid urination, but no choice, I've got to.
This is a chronic condition....no known cause, acute episodes will occur trigger by certain foods (high acidic types) and stress. Since I've been suffering for 2 months now, I doubt it's my breast issue....I'm a type B so I do internalize all my stress. I really don't feel much stress, except after thinking about it, I realized my Dh has been under treatment for Hep C for the past year (he's done now) and that has been extremely stressful for me. Alot more of the load was on me and he was so sick that I really was his nurse for the entire year and took care of everything....who knows if it had anything to do with it....but it could have.
Doc said the med will take a month or more to really kick in...thats the bad part....darn.
IC is where the interior of the bladder becomes inflammed and when urine starts to fill the bladder it irritates the ulcers and/or tumors which then cause the bladder to spasm and the urge incontinence kicks in....all makes perfect sense to me now.
I'm relieved (no pun intended) to have a diagnoses...however, this is a chronic condition and there is no cure. I will have to adapt my lifestyle to deal with it and that's what I intend to do...
For now my dear sisters, I'm going to bed. I'm very tired and hear my heating pad calling my name...
"Lori, Lori....I'm all warmed up for you!!!"
Take Care, Love you all....
Now, I just need to get through the biopsy on Thursday...please keep me in your prayers....I'm pretty freaked out about that whole thing to be honest with you. Type B or not.