Back/hip pain-Endometriosis history-Want relief--Hysterectomy???

Please can anyone out there help me with my decision to have a hysterectomy?? I am new to this forum. I have had Endometriosis for 20 years. I am now 43. I understand that a hysterectomy will not cure my Endo. I plan on having an Endo specialist who will try to excise all my Endo. My problem is that I have had hip and back pain for 3 years now and my doctors think that it could be caused by Endometrial growth sitting on my nerves in my back. Has anyone had this problem and has a hysterectomy helped relieve your pain?? I would really appreciate any responses as I am in desperate need of some advice. Thanks!!

WELL I MUST SAY MY TAH/BSO DID CURE MY ENDO PAIN FOR NOW I AM 30 HAD ENDO FOR ONLY 7 YRS COMPARED TO YOUR 20 AND I HAD HAD ENOUGH, I HAVE TWO CHILDREN AND DECIDED WE DIDNT WANT ANYMORE AND IF THE SURG COULD TAKE THE PAIN AWAY I WANTED TO GIVE IT A TRY BUT AS YOU SAID IT IS NOT A CURE... I GUESS ITS JUST A CHANCE I WAS WILLING TO TAKE, I HAVE READ STORYS WHERE IT HELPS AND DOESNT HELP , AS YOU HAVE HEARD BEFORE EVERY ONE IS DIFFERENT FOR ME I WAS A GOOD CHOOSE FOR NOW IT SEEMS TO HAVE WORK FOR THE TIME BEING I TAKE ONE DAY AT A TIME .... THE PAIN OF THE SURG AND RECOVERY TIME IS NOTHING COMPARED TO THE ENDO PAIN AND FUSTRATION BEST WISHES TO YOU ON YOUR DECSION...THIS IS A GREAT WEB SITE WITH LOTS OF INFO

I have had hip and lower back pain for years. I tried all sorts of treatments , according to whatever doctor I had seen that week. I kept telling all of them that it had somrthing to do with my cycle and they suggested I go and see a psychologist. The nerve!
Now after all this time, I am getting a hysterectomy on April 1 and I hope it cures whats ailing me. They say there is no garuntee (sp) gbut , right now I can barely function more than 4 days out of the month.

Hi, I understand your frustration with the difficulty in diagnosing the cause of your pain. I have been having problems with endo for about 3 years now and was diagnosed only last October. However, I have problems with my bowels. I have episodes that involve severe, sudden abdominal pain with forceful diarrhea.

I have had tests on just about everything involving my digestive tract and the only thing they came up with was a bacteria called
c-difficile and a borderline malfunctioning gallbladder. This testing has taken about 5 months, but now I have piece of mind in knowing that I made the best decision to go ahead with this hysterectomy.

I, too, was speptical and confused about making my decision to have this surgery. I wanted to make sure that these episodes weren't related to something else going wrong with my body. The more normal test results I had the more secure I was in my decision about the hysterectomy.

You should see whatever other specialists your ob/gyn wants you to see to eliminate any other possible causes of your problems or you may have a hyst and find that your problems still exist. That would really not be good. Good luck and I hope you can get the answers you are looking for.

P.S. I found that writing my symptoms down in a little calendar, that I keep in my purse, very helpful in determining a pattern. If you can determine a pattern of your symptoms, it will better help your doctor and you to find the cause.

I am happy to say that my TAH/BSO (1-31-03) pretty much took care of my back pain, leg pain, etc. At first I thought it had something to do with my period, then they said I had arthritis in my hips, then the funky cycles started, then the ultra sound, then a group of several bc pills. Until I was in pain all the time, the worst back pain ever, it was horrid. It was discovered that I had endo.
I had to wait forever to get disabilty at work, but it was worth it.
I did have to wait 6 weeks afterwards before I went on HRT. That was just as bad, no sleep hot flashes. Had to kill off any endo that was left. I am doing much better, I am able to get some decent sleep and the hot flashes have greatly reduced.
I am still sore, but I can live with that.
I don't have children, I am 44. I questioned my decision while I was suffering through those first 6 weeks but....in the long run I don't feel debiliated by this illness.
This is a wonderful site to explore. Everyone here is just great and you will fing that your questions are answered by many, with different experiances.
Good Luck to You,
Vicki
Peace on Earth

PJ

I too have endometriosis. I have had it for 11 years and van't handle it any longer. I have tried every other darned treatment with no results. So I am in the same boat as you are and hoping the hyst will really help me out. I have hip pain that radiates down my inner thigh and vaginal walls. My doctors always used to act like I was crazy. But my new doc believes my adhesions have everything so tangled that it is pulling on everything else.I also have back pain that is unbearable and that is a symptom of endometriosis. Lets you and I keep our fingers crossed and our thoughts positive. You are always welcome to email me or send me a private message too. All I can say is good luck and let me know how things go with you. Thank goodness for the Hyster Sisters.

Sincerely
Brandi