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Gynecological Cancers - Ovarian Cancer - Uterine Cancer - Vaginal Cancer - Endometrial Cancer
HysterSisters
GYN Cancers and the HysterSisters

There is nothing scarier than being in a doctor's office or receiving a phone call after an exam and hearing the "C" word. Its frightening, forcing the hearer of the words to use energy to process the information with a thousand questions going through the mind.

Join Us For Support

There are several different types of gynecological cancers, some more known than others. Because HysterSisters isn't a medical information website, covering the details isn't possible. But we can (and do!) offer support!

On this page you will find the different aspects of support offered at HysterSisters.com for cancer concerns. Uterine cancer. Cervical cancer. Vaginal cancer. Endometrial cancer. Ovarian Cancer.

HysterSisters offers live discussions in our forums for cancer related questions for diagnosis and treatments. We offer resources links for great medical websites to help fill in the details from a medical point of view. We provide articles written specifically for the HysterSisters that may help you as you make your way down the path of cancer diagnosis and treatments.

The most important thing to know is...you are not alone. Come meet the HysterSisters who will offer their experiences wrapped in hugs.

Join HysterSisters.com and visit the HysterSisters GYN Cancer Forum.

Find a GYN Oncologist

If your doctor has said "cancer", your mind might have been suspended as all the thoughts and fears crowd out the accompanying words. Initially the communication with your doctor will be one way: doctor to patient.

We encourage you to focus. Gather your strength from family, friends and your faith and head into battle well-equipped.

Often the doctor who provides the initial diagnosis is not a specialist in oncology. While it is understood that you may feel emotionally attached to your physician, it is important for you to gather other opinions for your diagnosis and treatment options from a GYN oncologist.

Ask your doctor for a recommendation. Ask friends and co-workers. Find other women who have had a similar diagnosis and ask for the name of their oncologist.

Your journey from diagnosis through your treatment requires the plan and handiwork of a specialist. Partner your health needs with a GYN Oncologist!

Coping with Cancerhead

Submitted by Cathy Thomas

Any woman receiving a cancer diagnosis is likely to experience a wide range of fears. The best defense against these fears is accurate information. Although it may be difficult to imagine living with cancer, it is possible to learn to cope with the inevitable fears that accompany this disease.

I vividly remember the day I learned I had cancer. My doctor called with the pathology report from my D&C which stated I had endometrioid adenocarcinoma, FIGO grade 2. He reassured me that it was the "best" type of GYN cancer to have in that it tends to be slow-growing. Devastated, I hung up the phone. He would see me in his office in a couple of days to give me more detailed information on my diagnosis and discuss my initial treatment, which would be a total abdominal hysterectomy and removal of both ovaries. The surgery and staging of the cancer would be performed by a gynecologic oncologist, a doctor who specializes in the treatment of gynecologic cancers.

I would describe myself as a woman of strong faith with a positive outlook on life. However, with the cancer diagnosis came a deluge of "what-ifs," and cancer began to dominate my thoughts. Fear, anxiety, depression, anger, and sadness were common emotions that plagued me all hours of the day and night. In my quest for information, I discovered the Cancer Concerns Forum on the HysterSister's website. I learned that my "what-ifs" had a name - cancerhead. Time and again this term came up as women described their fears regarding cancer. I found that I was not alone. Psychologists and other experts agree that women diagnosed with cancer respond in similar ways.

1) Denial – There must be some mistake.
2) Anger – Why are you telling me this?
3) Why me? – What did I do, or not do, to deserve this?
4) Resignation – I can’t help myself; it’s beyond my control.
5) Acceptance – I will fight this with everything I’ve got in me.

As I struggled through these various stages, I felt like I was on an emotional roller coaster. I would not know the stage of the cancer in my uterus until the pathology report came back after the surgery. The stage would determine the course of treatment and my prognosis. I cried frequently due to the stress of waiting for doctor appointments and test results. I questioned whether the cancer had spread to other parts of my body, whether I would need to have radiation treatments, or even worse in my mind, chemotherapy. I did not want to take this journey or deal with the uncertainty of my future. All of these feelings were normal, but waiting for the answers was almost unbearable. Cancerhead is powerful!

On my third day post-op, my pathology report was available. The stage of the cancer was 1b, grade 2. The cancer cells had spread beyond the lining of the uterus, but less than 50% of the uterine wall had been invaded. This meant no further treatment was deemed necessary. I will be followed closely for the next five years, but my prognosis is excellent!

End of story, end of cancerhead, right? Wrong! Although time and healing lessen its effects, all cancer survivors know that cancerhead can come knocking at the door at any time. Women undergoing radiation treatments or chemotherapy must conquer new fears of the unknown. Fear of recurrence is common for all, and cancerhead is likely to show up a week or two before a follow-up exam. Waiting for test results is particularly stressful. Simple aches and pains or symptoms of any common illness can lead to fear that it must be cancer. And so it goes. I had a mild attack of cancerhead before my first follow-up exam. The gynecologic exam was normal, but a mammogram came back abnormal with a recommendation for breast biopsies on two suspicious masses. Cancerhead returned with a vengeance! Even though statistically 80% of breast lumps are benign, I felt myself spiraling into depression over the "what-ifs."

If cancerhead cannot be entirely eliminated, can it be minimized? The answer is "yes." I have adapted nine suggestions from a breast cancer website, which I feel would be helpful to those with GYN cancer as well.

1) As you begin gathering information to make decisions, get to know the people on your medical team and make every effort to meet them in person. Turn faceless doctors into known resources. These are the people you've hired onto your team to help you. You'll find out who is the best communicator, who can answer which questions, who is available to help you when you need it most.

2) Find a doctor who communicates with you in a way that is comfortable for you, who invites your questions and takes your concerns seriously, who gives you as much or as little information as you feel comfortable with at any given moment.

3) Find out what to expect (from tests, procedures, treatments). Minimize surprises.

4) Make plans with your doctor about how to receive test results in a prompt way. If possible, try to schedule important tests early in the week, so you don't have to wait over a long weekend, when lab work may slow down or doctors aren't communicating with each other.

5) When you know you're going to have a challenging week (a test coming up or a round of chemotherapy), don't plan to do things that are stressful for you (balance the checkbook? make Thanksgiving dinner for twenty? run a big meeting at work?). Use your support systems—friends, movies, prayer, biofeedback—anything that works to help you get through it.

6) If well-meaning people try to tell you stories about others struggling with cancer, stop them RIGHT AWAY and say: "I only listen to stories with happy endings!"

7) If you reach a point where difficult emotions are getting in the way of your functioning or taking care of yourself, speak with your doctor about the role of medications that might help ease your anxiety, depression, or sleeping problems.

8) Join a support group—a place to share your cancer experience openly with people who understand. Do whatever makes you feel connected to others in a positive way, as a woman who is moving beyond cancer.

9) Work on ways to feel more positive about your life: Seek out productive, life-enhancing experiences; accept yourself for who you are; spend time with positive people who affirm who you are and how you've chosen to deal with this disease.

I found several of the above suggestions helpful in dealing with cancerhead. However, while having a positive attitude is a worthwhile goal, it is not easily attained. According to Kleban (2002), a social worker who supports women dealing with cancer, "Having bad feelings and down days is neither good nor bad - it's just normal.” The best reason for having a positive attitude is that you will enjoy better days and find your emotional recovery less difficult.

As for the rest of my story, the breast lumps were benign. Once again, I have swept cancerhead under the rug - at least for now. Most women, including myself, find that working through cancer fears makes them stronger. Reading advice and encouragement from hystersisters who have traveled the road before me with undeniable courage and strength, often brings tears to my eyes. I have learned that despite all our fears, there is hope.

- Read the full article with footnotes and suggested reading here


HysterSisters
From the HysterSisters Cancer Forum

If you haven't browsed through the HysterSisters Cancer Concerns Forum, you are missing out on the core of our website. Our members support each other through diagnosis and treatments and waiting with hearts of gold and a basket of kindness and spunk. Come join us!

Recent Discussions From the HysterSisters Cancer Forum
Pap failure???

Posted by ccd39275

Does anyone know and/or have any statistics for how often a pap smear does not catch cervical cancer? I'm searing for info online, but coming up essentially empty-handed (except for a law firm that specializes in such cases! )

The reason I ask is because I had seven years* of perfectly normal pap smears--including one two weeks before my >4 cm cancerous tumor was discovered!--and I'm just wondering how often this happens to women and if the pap should be trusted as much as it is.

What's really super scary to me is tha
..... [Read more of this discussion]

New, Worried About Complex Ovarian Mass

Posted by tagreen0927

First off, what a wonderful site connecting such compassionate women! Thank you for doing this.

I feel like I'm in a dream a bit. I went to my pcp only for a routine physical to get a document signed for insurance purposes. While there, she discovered some tenderness in my lower left abdomen. I had been having some mild tenderness in this area for about a month or so, but wasn't going to mention anything -- it wasn't really bad. (Also have become accustomed to having an upset stomach -- just thought it was part of everyday life and stress re
..... [Read more of this discussion]

Abnormal Pap Smear After Hysterectomy

Posted by IrishMari

Hello; I just had my first gyno exam & pap smear last month since my hysterectomy (Uterus,cervix removed;kept ovaries, A&P repairs) back in July 2008. They called me yesterday and said there were abnormal cells, HPV results were negative. I asked if it was pre-cancerous and she said yes but 'sometimes cells heal themselves'. (that seems odd to me) I have to go back in January for another pap smear. I"m curious if any one else has experienced this ? Thank you. ..... [Read more of this discussion]

Cancer?

Posted by ekcutshall

Ok, so I'm only 29 and haven't had a hysterectomy yet, but may have to. I have a history of endometriosis and ovarian cysts, and recentyly had a period that lasted for 30 days. I went in for an u/s after the period finally stopped, and they found a cysts on my left ovary and that my linning was on the thicker side. I just went in yesterday for another u/s, and the ovary is enlarged, the cysts is bigger, and my linning is now measuring 12.1 mm. I talked w/ the NP (see GYN Mon) and she thinks I need a lap, DNC, and biopsy. Also, the u/s tech said ..... [Read more of this discussion]

3 wks post op and still no definitive pathology

Posted by knitchick627

I am a 50 year old woman. Here's my story. I had been having pain on my left side for the last two years now, and had ultrasounds showing cysts, but the ultrasound at the end of September showed a cyst that was "full of junk" (per my gyn). So she had me take the CA-125 bloodtest that came back at 167.2. So next thing I know, she has me see a gyn/surgeon in her practice and am told that I need a complete hyste. Totally blew me away. Also said he wanted to consult with an oncologist colleague.

The oncologist then took over my case. I
..... [Read more of this discussion]

Well-meaning Friends...

Posted by ccd39275

I have stage 1b2 cervical cancer with, as I was told yesterday by my gyn onc, some marginal involvement. Radiation is being recommended and I'm struggling with the decision about doing it or not.

This is day eight post-op (radical hysterectomy). Except for my doc's appt, I haven't been out of the house. I have a suprapelvic catheter that is driving me insane. I have a 2-yr old I can't pick up who doesn't understand why mommy won't hold him. And now, after thinking my path report looked really good, I'm facing the huge decision of whethe
..... [Read more of this discussion]

Need opinions: Radiation Therapy or not

Posted by ccd39275

Last month I was diagnosed with stage 1B2 cervical cancer (seven years after having been diagnosed with cervical cancer in situ, which was removed with a cone biopsy).

Last Tuesday I had a TLH and lymphectomy. Today I had my post-op appt. and my path report looks good insofar as there isn't any lymphovascular or lymph node involvement, BUT there is marginal involvement, meaning that the tumor is (was) < 1mm from remaining healthy tissue. So my gyn. onc. is recommending radation therapy, essentially as a "better safe than sorry" course of a
..... [Read more of this discussion]

Post-coital bleeding 8 yrs after SA hysterectomy?

Posted by eurika

Quick run down: After normal pap, a year later had biopsies and diagnosed with HSIL CIN2 and Cryo done to remove it in 1991. Was diagnosed with multipul complex ovarian cysts and endometrial hyperplasia after saline uterine sonogram found a 5cm dense mass in uterus at 24 yrs old. Hystoscopy followed with biopsies (benign). Endometrial Ablation/looking for endometriosis followed due to heavy, irregular, and painful bleeding (BC, and Provera did not help). No Endo found. Ablation failed, and CAT/MRI followed with a diagnosis of Adenomyosis. SA hy ..... [Read more of this discussion]

Why me?

Posted by AZArmywife37

Hello!
I was dx on Oct. 29 with Endometrial Cancer and already have a date for my hysterectomy - LVAH (Nov. 17). I was going to a RE for infertility and was feeling really good about it. After having a laparoscopy and D&C, I thought for sure this "cleaning out" would help me conceive. But now I'm dealing with cancer. I break down for no reason and I'm feeling useless. I'm having a pity party and wish these feelings would go away. Does anyone have any tips on how to deal with it? I've read a lot of the forums and realize that it will be
..... [Read more of this discussion]

scared it could be cancer.

Posted by stephanie76

Just before bed on September 18th I went to the bathroom before climbing into bed. To my horror I had urinated a lot of brown blood. I couldn't tell my husband that this had just happened because he would have made me go to the hospital right then. And while I should have probably gone I knew that the following day was the surprise 40th birthday party for my husband that I had been planning since July. I had a ton of his high school and college friends coming in from out of town and couldn't cancel the party at that point. I knew that my p ..... [Read more of this discussion]



Browse the entire GYN Cancer Concerns Forum - [Click Here]







HysterSisters
Our Cancer Stories

This information has been gathered and prepared for you. The HysterSisters call these "Checkpoints" as there are specific points along your surgery timeline where information might be more important to you.

Most Recently Submitted Cancer Story
cancer found after RSO, Radical TAH 6 weeks later
Submitted by HysSis2009


Hello princesses! Please forgive the length of my post but I thought I would be as thorough as I could for anyone else who may gain some encouragement or support from my story. When I went for my annual gyno visit 5/15/09, my noticed something was different from last year's visit. After the intrusive part of the visit, she accompanied me to have a trans-abdominal sonogram & diagnosed a large cyst on my right ovary that would need to be removed. Abdominal incision would be needed due to the size of the cyst/ovary mass. Surgery was scheduled for 7/6/09. The procedure went well and surgery time was less than expected. My biggest souvenir from this was a 9 inch "bikini cut."
At the staple removal appointment a week later, I was told some of the pathology was sent to a very prestigious and well know entity for a 2nd opinion but was probably nothing to worry about since the entire ovary was removed with the cyst (almost 6 lbs!). Two days later, my Gyne called that they found borderline mucinous adenocarcinoma in the ovary/cyst and she wanted me to see a Gyn Oncologist. She informed me this was a very unusual type of cancer to be found in an ovary and especially someone of my age.
When I went to the Gyn Onc on 7/29/09, I was told from my medical records that I would need a total hysterectomy including removal of: cervix, uterus, left tube & ovary, appendix, lymph nodes, and anything else needed pending scan & blood results. Blood was taken that day to check for ovarian and colon cancer markers. I was then scheduled for cat scans of my chest, abdomen and pelvic area on 8/14/09 and surgery scheduled for 8/18/09. Evidently, the type of cancer cells are most common in breast, digestive tract, appendix and some other areas, so aggressive was the way to go to be as cautious as possible.
All bloodwork was very good as well as the cat scan results, so it was planned for the above mentioned organs to be removed and some random tissue samples for pathology. I would need a vertical incision this time so they could have better access to the upper abdomen.
Surgery went well and lasted about 3 to 3 1/2 hours. My recovery was much easier after this surgery since they had a local pain controller which kept the incision topically numb until it was time to go home. The hospital stay was 2 days as it was for the RSO in July.
I was informed when I went for the staple removal the next week that ALL of the pathology was CANCER FREE, including 27 lymph nodes, lots of answered prayers there. I was also told it may still may be recommended to have a small regimen of chemo due to the nature of the initial pathology when the cancer cells were found. I am expecting to hear from the Gyn Onc office tomorrow about the chemo (she wanted to discuss it with pathology, radiology and other oncologists before she makes a decision).


Our Invitation - Submit Your Story

Hystersisters inspires members and visitors through various journeys including the diagnosis and treatments of GYN cancer. You, each of you, inspire and encourage each other with your words of support and your very own personal journey's story.

We invite you to document your journey for the strength and encouragement of others. Submit Your Story here (You must be a registered member to submit your story. Join here.)


Browse More Cancer Stories

cancer found after RSO, Radical TAH 6 weeks later - submitted by HysSis2009

Preparing for Radiation/Chemo - submitted by beblessed

I survived - submitted by butterfly40

Endometrial Cancer at 32 - submitted by reggyosu

Cancer as a sabbatical - submitted by Anna1961

My cervical cancer story - submitted by limolady

Always Laugh, my Cancer Story... - submitted by crystalsunshine

I am woman. I am strong. - submitted by BlueFall

Another cancer story: Leiomyosarcoma - submitted by Newcal

My story - We didn't expect to find endo cancer - submitted by tauruslady

My Story- Adenocarcinoma in situ - submitted by zambezi

Stage III endometrial cancer in 2005 - submitted by dking

Ovarian Cancer IIIC, Grade 3 age 31 - submitted by pokadot

My Story a Year Later - Living with MMMT/Carcinosarcoma - submitted by bj444

Cancer: It can happen to anyone - submitted by Nessie

to much cancer - submitted by lunaticb5

Lieomyosarcoma fears - submitted by m1chelez

Peace in the Storm - submitted by Peaceful Storm

I survived cervical cancer - submitted by Codemannorth

My Story - submitted by Ialwaysworry

Thanksgiving-The Princess and the Toad - submitted by sptgplyr

Uterine tumor - submitted by Carriana

Leiomyosarcoma at age 33 - submitted by Singa

Stage 1a ovarian cancer at 37 - submitted by desertday

My Story -Stage 1A Ovarian x 2 - submitted by Alsgal1070

A year of many losses - submitted by vikingprincess

Cancer of Vulva - submitted by Chipper2

my niece Alicia - submitted by southern1

It can happen to anyone - submitted by Krissey

endo cancer x2 - submitted by jewels73

making it through the holidays - submitted by pritynpink79

Surviving Christmas with Cervical Cancer - submitted by jitter bug

Papillary Serous Uterine/Endometrial cancer - submitted by born ready

Endometrial Cancer - The Surprise - submitted by Pink Peony

Summer of many losses... - submitted by Mellybug

Cervical cancer 1b1 - submitted by Jasmine3

Still Going stronG!!!! - submitted by vilasini

Ovarian and uterine cancer at 34 - submitted by CHRISTMASANG

5 years Cancer Free! - submitted by Miss Patches

Itinery for life - submitted by juliao

Ovarian Cancer and European Vacation - submitted by tinyrufus2006

Cervial Cancer in situ - submitted by kelpn

Cervical Adenocarinoma- 16 weeks pregnant - submitted by anomymous

stage 1A1 Cervical Cancer, and now abnormal PAP after hysterectomy - submitted by dagiffen

Cervical Cancer stage 1b - submitted by littlemrs

Infertility saved my life - submitted by SurvivorStacy

2005 - What a year - submitted by asiaminor

Fibroids saved my life - submitted by millet4261

A little comfort and reality for everyone with cancer! - submitted by dragonfly71803

My Ovarian Cancer Story (Quick One) - submitted by ozlem_trejo

Browse ALL GYN Cancer Stories of Bravery



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