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Gynecological Cancers - Ovarian Cancer - Uterine Cancer - Vaginal Cancer - Endometrial Cancer
HysterSisters
GYN Cancers and the HysterSisters

There is nothing scarier than being in a doctor's office or receiving a phone call after an exam and hearing the "C" word. Its frightening, forcing the hearer of the words to use energy to process the information with a thousand questions going through the mind.

Join Us For Support

There are several different types of gynecological cancers, some more known than others. Because HysterSisters isn't a medical information website, covering the details isn't possible. But we can (and do!) offer support!

On this page you will find the different aspects of support offered at HysterSisters.com for cancer concerns. Uterine cancer. Cervical cancer. Vaginal cancer. Endometrial cancer. Ovarian Cancer.

HysterSisters offers live discussions in our forums for cancer related questions for diagnosis and treatments. We offer resources links for great medical websites to help fill in the details from a medical point of view. We provide articles written specifically for the HysterSisters that may help you as you make your way down the path of cancer diagnosis and treatments.

The most important thing to know is...you are not alone. Come meet the HysterSisters who will offer their experiences wrapped in hugs.

Join HysterSisters.com and visit the HysterSisters GYN Cancer Forum.

Find a GYN Oncologist

If your doctor has said "cancer", your mind might have been suspended as all the thoughts and fears crowd out the accompanying words. Initially the communication with your doctor will be one way: doctor to patient.

We encourage you to focus. Gather your strength from family, friends and your faith and head into battle well-equipped.

Often the doctor who provides the initial diagnosis is not a specialist in oncology. While it is understood that you may feel emotionally attached to your physician, it is important for you to gather other opinions for your diagnosis and treatment options from a GYN oncologist.

Ask your doctor for a recommendation. Ask friends and co-workers. Find other women who have had a similar diagnosis and ask for the name of their oncologist.

Your journey from diagnosis through your treatment requires the plan and handiwork of a specialist. Partner your health needs with a GYN Oncologist!

Coping with Cancerhead

Submitted by Cathy Thomas

Any woman receiving a cancer diagnosis is likely to experience a wide range of fears. The best defense against these fears is accurate information. Although it may be difficult to imagine living with cancer, it is possible to learn to cope with the inevitable fears that accompany this disease.

I vividly remember the day I learned I had cancer. My doctor called with the pathology report from my D&C which stated I had endometrioid adenocarcinoma, FIGO grade 2. He reassured me that it was the "best" type of GYN cancer to have in that it tends to be slow-growing. Devastated, I hung up the phone. He would see me in his office in a couple of days to give me more detailed information on my diagnosis and discuss my initial treatment, which would be a total abdominal hysterectomy and removal of both ovaries. The surgery and staging of the cancer would be performed by a gynecologic oncologist, a doctor who specializes in the treatment of gynecologic cancers.

I would describe myself as a woman of strong faith with a positive outlook on life. However, with the cancer diagnosis came a deluge of "what-ifs," and cancer began to dominate my thoughts. Fear, anxiety, depression, anger, and sadness were common emotions that plagued me all hours of the day and night. In my quest for information, I discovered the Cancer Concerns Forum on the HysterSister's website. I learned that my "what-ifs" had a name - cancerhead. Time and again this term came up as women described their fears regarding cancer. I found that I was not alone. Psychologists and other experts agree that women diagnosed with cancer respond in similar ways.

1) Denial – There must be some mistake.
2) Anger – Why are you telling me this?
3) Why me? – What did I do, or not do, to deserve this?
4) Resignation – I can’t help myself; it’s beyond my control.
5) Acceptance – I will fight this with everything I’ve got in me.

As I struggled through these various stages, I felt like I was on an emotional roller coaster. I would not know the stage of the cancer in my uterus until the pathology report came back after the surgery. The stage would determine the course of treatment and my prognosis. I cried frequently due to the stress of waiting for doctor appointments and test results. I questioned whether the cancer had spread to other parts of my body, whether I would need to have radiation treatments, or even worse in my mind, chemotherapy. I did not want to take this journey or deal with the uncertainty of my future. All of these feelings were normal, but waiting for the answers was almost unbearable. Cancerhead is powerful!

On my third day post-op, my pathology report was available. The stage of the cancer was 1b, grade 2. The cancer cells had spread beyond the lining of the uterus, but less than 50% of the uterine wall had been invaded. This meant no further treatment was deemed necessary. I will be followed closely for the next five years, but my prognosis is excellent!

End of story, end of cancerhead, right? Wrong! Although time and healing lessen its effects, all cancer survivors know that cancerhead can come knocking at the door at any time. Women undergoing radiation treatments or chemotherapy must conquer new fears of the unknown. Fear of recurrence is common for all, and cancerhead is likely to show up a week or two before a follow-up exam. Waiting for test results is particularly stressful. Simple aches and pains or symptoms of any common illness can lead to fear that it must be cancer. And so it goes. I had a mild attack of cancerhead before my first follow-up exam. The gynecologic exam was normal, but a mammogram came back abnormal with a recommendation for breast biopsies on two suspicious masses. Cancerhead returned with a vengeance! Even though statistically 80% of breast lumps are benign, I felt myself spiraling into depression over the "what-ifs."

If cancerhead cannot be entirely eliminated, can it be minimized? The answer is "yes." I have adapted nine suggestions from a breast cancer website, which I feel would be helpful to those with GYN cancer as well.

1) As you begin gathering information to make decisions, get to know the people on your medical team and make every effort to meet them in person. Turn faceless doctors into known resources. These are the people you've hired onto your team to help you. You'll find out who is the best communicator, who can answer which questions, who is available to help you when you need it most.

2) Find a doctor who communicates with you in a way that is comfortable for you, who invites your questions and takes your concerns seriously, who gives you as much or as little information as you feel comfortable with at any given moment.

3) Find out what to expect (from tests, procedures, treatments). Minimize surprises.

4) Make plans with your doctor about how to receive test results in a prompt way. If possible, try to schedule important tests early in the week, so you don't have to wait over a long weekend, when lab work may slow down or doctors aren't communicating with each other.

5) When you know you're going to have a challenging week (a test coming up or a round of chemotherapy), don't plan to do things that are stressful for you (balance the checkbook? make Thanksgiving dinner for twenty? run a big meeting at work?). Use your support systems—friends, movies, prayer, biofeedback—anything that works to help you get through it.

6) If well-meaning people try to tell you stories about others struggling with cancer, stop them RIGHT AWAY and say: "I only listen to stories with happy endings!"

7) If you reach a point where difficult emotions are getting in the way of your functioning or taking care of yourself, speak with your doctor about the role of medications that might help ease your anxiety, depression, or sleeping problems.

8) Join a support group—a place to share your cancer experience openly with people who understand. Do whatever makes you feel connected to others in a positive way, as a woman who is moving beyond cancer.

9) Work on ways to feel more positive about your life: Seek out productive, life-enhancing experiences; accept yourself for who you are; spend time with positive people who affirm who you are and how you've chosen to deal with this disease.

I found several of the above suggestions helpful in dealing with cancerhead. However, while having a positive attitude is a worthwhile goal, it is not easily attained. According to Kleban (2002), a social worker who supports women dealing with cancer, "Having bad feelings and down days is neither good nor bad - it's just normal.” The best reason for having a positive attitude is that you will enjoy better days and find your emotional recovery less difficult.

As for the rest of my story, the breast lumps were benign. Once again, I have swept cancerhead under the rug - at least for now. Most women, including myself, find that working through cancer fears makes them stronger. Reading advice and encouragement from hystersisters who have traveled the road before me with undeniable courage and strength, often brings tears to my eyes. I have learned that despite all our fears, there is hope.

- Read the full article with footnotes and suggested reading here


HysterSisters
From the HysterSisters Cancer Forum

If you haven't browsed through the HysterSisters Cancer Concerns Forum, you are missing out on the core of our website. Our members support each other through diagnosis and treatments and waiting with hearts of gold and a basket of kindness and spunk. Come join us!

Recent Discussions From the HysterSisters Cancer Forum
FRUSTRATING CONE BIOPSY RESULTS, PLEASE HELP! Very Scared!

Posted by apilo2

!

I just had an extremely large cone biopsy on 1/24, due to a regular cervical colposcopy/biopsy which indicated I had severe dysplasia and possible cancer. When I first saw my OBGYN Oncologist her diagnosis was cancer,uterine, cervical adenocarcinoma. I was told at this time I would know what type of hysterectomy was indicated from the results. I just went on Wednesday 2/1 for a post-op appointment. Unfortunately I left very frustrated and in extreme pain from that appointment. I was told by my OBGYN Oncologist that the very large cone b
..... [Read more of this discussion]

[/B] frustrating Cone Biopsy Results PLEASE HELP! Very Scared!

Posted by apilo2

I just had an extremely large cone biopsy on 1/24, due to a regular cervical colposcopy/biopsy which indicated I had severe dysplasia and possible cancer. When I first saw my OBGYN Oncologist her diagnosis was cancer,uterine, cervical adenocarcinoma. I was told at this time I would know what type of hysterectomy was indicated from the results. I just went on Wednesday 2/1 for a post-op appointment. Unfortunately I left very frustrated and in extreme pain from that appointment. I was told by my OBGYN Oncologist that the very large cone biopsy, i ..... [Read more of this discussion]

2 months past surgery and experiencing pain

Posted by purpleprez

Hi Ladies,

I hope everyone is doing well. I have been doing great up until this week. I am 2 months past surgery and I really haven't experienced pain since mid Dec. and of course I was to the onc/gyn last week and things were doing fine.

Now this week I am experiencing pain in the area of where the drain was. The incision looks just like the other incision, however, when I get in the van, when I'm standing, and sitting there is pain. I'm unsure whether or not to call dr. because when I look at the area nothing seems to be wrong. Sho
..... [Read more of this discussion]

1 Year hyster-versary!

Posted by lovemyjules

Hi Ladies -

Haven't been on here in ages. Today is my 1 year anniversary of my surgery. 1 year ago today I was recovering from laprascopic hysterectomy - and told that I had ovarian cancer in addition to Endometrial cancer. After 4.5 mnths of chemo (carbo/taxol) - I still am NED!!! Other than a small amount of neuropathy and some tiredness I am back to my regualr life.

For all the ladies out there - stay strong and keep fighting the fight!!!

36 years old - 1 beautiful 3 year old girl + married
Endo Ca St. 1A Gr. 1
Ov Ca St
..... [Read more of this discussion]

surgery is set-now I wait

Posted by Heart & Home

I went to see my gyn/onc today for my pre-op appt. The date for my surgery is Feb.17. I'm glad I was able to get it on the calender this soon! But the waiting is still kind of hard.
My CT scan came out good so that is positive. She told me that the cells are Grade 2 and I don 't know if that's good or bad. I'm going to have the DaVinic surgery and I'm happy about that!
What do you do while you're waiting? I know it's best to keep busy and try not to think about it.
..... [Read more of this discussion]

Barium enema and large fibroids

Posted by Marsk

Hi,

I am scheduled for a barium enema next week and am quite nervous. In addition to have some bowel problems, constipation and gas and bleeding, (sorry for so much detail) I also have 3 very large fibroids and am wondering if anyone else has had this test and had large fibroids as well. I really don`t know if there`s any room for the barium or air.

Thanks!
..... [Read more of this discussion]

I am so scared.

Posted by April 1965

My head is spinning. Yesterday I saw my gyn, to be told I have Adenocarcinoma? He's not sure if it's uterus or cervical yet. He thought uterus but histology thought cervical. It was the last thing he expected, as he thought I just had a fibroid. I don't know if i'm coming or going. I did not sleep last night and can't stop crying. I have to have an MRI within the next 2 weeks.

How do I cope? I know I have to have a Hysterecomy, as I was having one anyway due to the fibroid. Is it a fibroid? I am soooo confused.

Does anyone know t
..... [Read more of this discussion]

Update.

Posted by Dragonteacher

Last night I had a complication as a result of my cone biopsy I had on January 12. I went to use the bath room and suddenly started pouring blood. My husband called the neighbor to watch our son and off we went to the ER. When we got there we got a room right away but still had to wait. The ER doctor cleared out a bunch of blood clots with me still bleeding heavily. They were able to call my local gyn (who didn't do the surgery). He also cleared out a bunch of clots and was able to stop the bleeding with some kind of medicine and a packing.

..... [Read more of this discussion]

care of suprapubic catheter w/bladder susp AND hyster?

Posted by canadian67

Besides dealing with the pathology concerns with CC, I am interested in knowing if anyone else has had a retropubic suspension, with a suprapubic catheter? But because of the CC, I thought this would be a better forum than the bladder one to ask my question

My doctor recommended the SP catheter over self-catheterization, but didn't guess at how long it may be left in place. I've read it may take 5 days before bladder function resumes, so I'm just wondering what the experiences are here with TAH and that type of catheter. Did you go hom
..... [Read more of this discussion]

Adenocarcinoma in situ... lots of q's!

Posted by sugar magnolia

hi there,

just joined and hoping to find some information. i'm in my early 30's and went from several clear paps to stage 0 adenocarcinoma in situ. i very quickly had a cone biopsy done and have since had several followups all showing clear margins. it's been almost 10 months since the biopsy and my dr is pushing me to make a decision as to whether to have kids or have a hysterectomy. i'm scared! i think my husband and i have come to the decision to have the hysterectomy, but i'd like to go to another dr for a second opinion. additionally, my
..... [Read more of this discussion]



Browse the entire GYN Cancer Concerns Forum - [Click Here]







HysterSisters
Our Cancer Stories

This information has been gathered and prepared for you. The HysterSisters call these "Checkpoints" as there are specific points along your surgery timeline where information might be more important to you.

Most Recently Submitted Cancer Story
Family History has me running scared
Submitted by Terra22

Hello All. I am 46 years old with a family history of cancer. My paternal grandmother died of breast cancer, my sister died two years ago of rectal cancer, another sister died this past April of ovarian cancer, and my mother died two days after my hysterectomy of lung cancer. It's been a nightmare. However, I do not regret my decision to have a hysterectomy AT ALL. During my second sisters fight, I was diagnosed with adenomyosis. I asked for a hysterectomy because I was tired of the debilitating pain and periods and i was running scared. He refused and offered me an IUD instead..stating that I was too young for a hyst. I did my own research and then scheduled an appointment with his partner and asked him to run several tests. After reading my profile, he immediately disagreed with his partner and ordered a series of tests: BRACA, Colaris, and Ca125. While the first two were negative, a series of Ca125s consistently showed elevated levels of cancer proteins in my ovaries. We have a 10 year old daughter and it was a no brainer for me. My doctor agreed and I had the surgery on June 1st. I had no time to recover as I had my mom's funeral to plan. I healed very quickly. My scars totally healed and I was pain free without pain medication and walking lightly on the treadmill within 10 days. My doctor said it was miraculous mind over body. Over the next two weeks, I had debilitating hot flashes with dizziness, tingling, headaches, and rollercoaster drops. My doctor prescribed an HRT patch and the next two weeks were fantastic. I had never felt better in my life. My mood was great and my libido was through the roof. I had to beg my husband to make love because it had not been 6 weeks, my doctor said "NO", and my husband was afraid he would hurt me, but i know he's glad we did. It was absolutely fantastic! 3 weeks into using the HRT, i got my mammo results which showed benign abnormalities. I wasn't taking any chances. I took the patch off immediately. My hot flashes, mood swings, insomina, tingling, and rollercoaster drops came back within 48 hours. I had been doing intensive research from day one so I knew it was time to try the natural route. I read a lot about resveratrol and decided to give it a try. I purchased Resevertral for Menopause, Biotin supps, and Calcium supps in addition to my already prescribed multivitamins and iron supps. My reaction has been good so far. My hot flashes are no longer debilitating. I still get them, but they are quite mild. I do not have anymore dizziness or rollercoaster drops, and I haven't noticed any hair loss (fingers crossed). I have also not experienced any vaginal dryness yet, but the crazy, hot libido has taken a rest. I hope to stir it up some time soon. I still have orgasms, but it has been difficult squirting. I had multiple orgasms and squirt episodes on the HRT but only orgasms now. My libido has definitely decreased, but i am still turned on by my husband so we continue to have great intimacy and sex. However, I will say that losing weight has been quite difficult. i can't seem to get past that initial 5lbs and ive been trying for two months. Usually, i can lose weight rather quickly once I focus, but it just won't come off this time. I want to lose 15lbs, but i just might except it and tone up instead of worrying about the weight. My husband loves my curves anyway. I am now going to find out if i can get a biopsy on the benign lymph node in my breast, as i am not quite sure how they know it is benign since i only had a mammo and no biopsy. I will keep you all posted on the natural supplements and the rest of my journey. I have gotten so much out of reading your posts and i only hope I can be as helpful to others as you all have been to me. TTYL.


Our Invitation - Submit Your Story

Hystersisters inspires members and visitors through various journeys including the diagnosis and treatments of GYN cancer. You, each of you, inspire and encourage each other with your words of support and your very own personal journey's story.

We invite you to document your journey for the strength and encouragement of others. Submit Your Story here (You must be a registered member to submit your story. Join here.)


Browse More Cancer Stories

Family History has me running scared - submitted by Terra22

Diagnosed...endometrial early stage post menapause - submitted by Jojo56

Stage 4 Endo. Cancer/MRSA/Rad & Chemo - submitted by Pixel Princess

Endometrial Cancer at 30 - submitted by bwaybrunhilde

Now I have Leukemia - submitted by farmer

My Ovarian Cancer Story-- So Far - submitted by SopranoKitteh

I am still here !!! - submitted by poohbear1013

Wisdom after 20 years - submitted by Jackie2010

Cancer Surprise (long!) - submitted by RangersFan

My Cancer Story - submitted by dshadow1963

Cervical cancer found after hysterectomy - submitted by edsell5

My Cervical Cancer Story - submitted by larc04

Clear after almost 7 years.. - submitted by vilasini

The "C" word: Is my ego in worse shape than my uterus? - submitted by Irescuedogs

Ready for the 2nd half of life! (very long) - submitted by Onken

There is hope for survival! - submitted by millet4261

cancer found after RSO, Radical TAH 6 weeks later - submitted by HysSis2009

Preparing for Radiation/Chemo - submitted by beblessed

I survived - submitted by butterfly40

Endometrial Cancer at 32 - submitted by reggyosu

Cancer as a sabbatical - submitted by Anna1961

My cervical cancer story - submitted by limolady

Always Laugh, my Cancer Story... - submitted by crystalsunshine

I am woman. I am strong. - submitted by BlueFall

Another cancer story: Leiomyosarcoma - submitted by Newcal

My story - We didn't expect to find endo cancer - submitted by tauruslady

My Story- Adenocarcinoma in situ - submitted by zambezi

Stage III endometrial cancer in 2005 - submitted by dking

Ovarian Cancer IIIC, Grade 3 age 31 - submitted by pokadot

My Story a Year Later - Living with MMMT/Carcinosarcoma - submitted by bj444

Cancer: It can happen to anyone - submitted by Nessie

to much cancer - submitted by lunaticb5

Lieomyosarcoma fears - submitted by m1chelez

Peace in the Storm - submitted by Peaceful Storm

I survived cervical cancer - submitted by Codemannorth

My Story - submitted by Ialwaysworry

Thanksgiving-The Princess and the Toad - submitted by sptgplyr

Uterine tumor - submitted by Carriana

Leiomyosarcoma at age 33 - submitted by Singa

Stage 1a ovarian cancer at 37 - submitted by desertday

My Story -Stage 1A Ovarian x 2 - submitted by Alsgal1070

A year of many losses - submitted by vikingprincess

Cancer of Vulva - submitted by Chipper2

my niece Alicia - submitted by southern1

It can happen to anyone - submitted by Krissey

endo cancer x2 - submitted by jewels73

making it through the holidays - submitted by pritynpink79

Surviving Christmas with Cervical Cancer - submitted by jitter bug

Papillary Serous Uterine/Endometrial cancer - submitted by born ready

Endometrial Cancer - The Surprise - submitted by Pink Peony

Browse ALL GYN Cancer Stories of Bravery


HysterSisters
HysterSisters GYN Cancer Resources

Read through our resources to find helpful information for your GYN cancer journey.

Articles

  • Cancer Diagnosis - Extra Questions
  • Diagnosed. What Next?
  • HPV - Reinfection with Intercourse?
  • Types of Cancer Cells
  • Cancer: Endometrial/Uterine Cancer Fact Sheet
  • Cancer: Ovarian Cancer Fact Sheet
  • Cancer: Cervical Cancer Fact Sheet
  • Chemotherapy: What to Expect
  • Cancer Detected After Hysterectomy
  • When Are You a Cancer Survivor?
  • Clueless About Nodes
  • Overview of GYN Cancers
  • Being Proactive Didn't Stop the Bad Report!
  • Fallopian Tubes and Ovarian Cancer
  • Don't Want to Insult My Doctor by Getting a Second Opinion
  • How to Handle the Waiting
  • Types of Specialists
  • Don't Know How to React to Cancer Diagnosis
  • Bleeding/Spotting Many Years Post-Hysterectomy
  • Chemotherapy-Induced Anemia
  • HPV - Monogamous with an HPV Diagnosis
  • Trachelectomy -- What Is It?
  • What is Pelvic Washing?
  • Minimally Invasive Hysterectomy for Endometrial Cancer?
  • Confusion after Second Opinion
  • CA-125 Test
  • Fibroids or Cancer?
  • HPV and Cancer Risk
  • What is colposcopy?
  • Wht is LEEP?
  • What to Expect: Endometrial Biopsy
  • Brca
  • Pelvic Radiation
  • Hyperplasia, Atypia, and Cancer
  • Brachytherapy
  • Cancer - Grading vs. Staging
  • Diagnosed with Cancer - I need to feel empowered!
  • Treatment or Hospice?
  • Lynch Syndrome
  • Lymphedema
  • Reduce Your Chance for HPV?
  • Possible Cancer Diagnosis - Feeling Alone and Sad
  • Cancerhead - Coping with GYN Cancer Fears
  • Prevention Tips for Lymphedema
  • Lymphedema - Signs, Symptoms & Treatment
  • Endometrial Biopsy?
  • Pathology Report - Dictionary of Terms
  • Cancer Leiomyosarcoma
  • Pathology and Surgical Reports
  • Vaginal (Cervical) Pap Smear Post-Op?
  • Browse all Cancer Articles
  • Link Directory
  • Cervical Cancer
  • Endometrial and Uterine Cancer
  • Vaginal and Vulva Cancer
  • Ovarian Cancer
  • Cancer Treatments
  • Cancer Nutrition
  • Cancer - Other Links
  • Forum Help

    Visit our forum discussions to ask your questions, find friends and gain support while you learn from other members!

  • GYN Cancer Concerns Forum
  • Our Cancer Stories of Bravery



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