HysterSisters Hysterectomy Support and Information
Advertising Info HysterSisters Hysterectomy Support Tutorial

Go Back   Hysterectomy HysterSisters > GYN Genetics Articles

HysterSisters Articles for Hysterectomy


SHARING IS CARING

BRCA | Testing Positive

From the GYN Genetics Articles List

 Woman has found out she’s BRCA positive and is now wondering what choices she has for minimizing the risks associated with this?I am BRCA positive. What choices do I have for minimizing the risks associated with this?


You have several options for managing your risk factors. The options you and your medical team choose will include variables other than being positive for BRCA mutations.

According to Facing Our Risks of Cancer Empowered (FORCE), options will fall into three categories:
  • Surveillance
  • Chemoprevention
  • Prophylactic Surgery

Surveillance:
Surveillance, or expectant management, can include a number of steps would could help with early detection. While no medications or surgeries would be performed with this type of care, a variety of testing would need to be done on a regular basis. The following tests are recommended by the National Comprehensive Cancer Network:
  • Monthly breast self-exams beginning at age 18
  • Semiannual clinical breast exams beginning at age 25
  • Annual mammogram and/or MRI beginning at age 25 or 10 years early than the earliest age a family member was diagnosed with breast cancer
  • Semiannual transvaginal ultrasound preferably on the 1–10 days of the menstrual cycle by age 25, or 5–10 earlier than the earliest age a family member was diagnosed with ovarian cancer
  • Semiannual CA-125 preferably after day 5 of the menstrual cycle by age 30, or 5–10 years earlier than the earliest age a family was diagnosed with ovarian cancer.
  • Semiannual pelvic exam

Chemoprevention:
Chemoprevention involves using medication to prevent or lower the risk of cancer in those without cancer. Keep in mind however, that there are risks involved. Work with your cancer specialist to determine which choice is right for you based on your particular situation. Options include the following:
  • Tamoxifen
  • Raloxifene
  • Aromatase Inhibitors
  • Nonsteroidal anti-inflammatory medications
  • Statins
  • Deslorelin
  • Fenretinide
  • Vitamin D

Prophylactic Surgery
Prophylactic surgery is the removal of healthy organs to prevent disease. For those who test positive for a BRCA mutation, prophylactic surgery could prevent cancer. When choosing this route, you must seek services from a highly skilled surgeon to maximize the chances of all of the cells being removed. Also be aware that this is an extreme choice with many physical and emotional ramifications; thus, before making a final decision about this treatment plan, you should seek counseling from professionals who specializes in prophylactic surgery for women at high risk for cancer. The surgeries you can consider are these:
  • Mastectomy
  • Oophorectomy
  • Salpingectomy
  • Hysterectomy

Whichever treatment path you choose, work with a knowledgeable physician and genetic counselor to stay up-to-date on research and treatment data. If you have a higher risk factor based on personal and family histories, your physician make also suggest other, more extensive testing. You may also want to consider participating in clinical trials for cancer prevention which might allow you to be part of cutting edge research and treatments. Joining a support group could also be helpful for your emotional health and for keeping you in touch with others dealing with similar risk factors so you can share news about treatment and prevention options.

Finally, you should also share your test results with family members so they can take proactive steps with their health too.


This content was written by staff of HysterSisters.com by non-medical professionals based on discussions, resources and input from other patients for the purpose of patient-to-patient support.

09-19-2013 - 11:42 AM


SHARING IS CARING


Do you have a question?

If you have a medical support question related to this article, come JOIN US in our HysterSisters Community Forums. You will receive helpful replies to your questions from our members. See you there!


HysterSisters Free Hysterectomy Booklet

What 350,000 Women Know About Hysterectomy with pages of information, helpful tips and hints to prepare and recover from hysterectomy. Free download for members.




HysterSisters Articles

Diagnosis
Options to Hysterectomy
Treatment Alternatives
Pre-Op Hysterectomy
Post-Op Hysterectomy
Separate Surgeries
Hormone and Menopause
Intimacy after Hysterectomy
Pelvic Floor
Separate Surgeries
Fitness after Hysterectomy
GYN Cancer
Breast Health
Grief and Loss
Endometriosis
Uterine Fibroids
GYN Genetics
Hysterectomy Stories
Ask A Doctor




Find a Surgeon

HysterSisters Doctor Directory
Lori Warren, M.D.
3900 Kresge Way
Suite 30
Louisville KY 40207
502-891-8700
Lauren Streicher, M.D.
Gynecologic Specialists of Northwestern, S.C
680 N. Lake Shore Dr., Suite 117
Chicago IL 60611
(312)654-1166
Geoffrey Cly, M.D.
Suite 101, 11123 Parkview Plaza Drive
Fort Wayne IN 46845
260-969-5530
Aileen Caceres, M.D.
Center for Specialized Gynecology/Florida Hospital
410 Celebration Place, Suite 302
Celebration FL 34747
(407) 303-4573
Theresa Holladay, M.D.
War Memorial Hospital Women’s Health
509 Osborn Blvd., Suite 120
Sault St Marie MI 49783
906-635-3002
Antonio Gargiulo, M.D.
Brigham and Women's Hospital
75 Francis Street
Boston MA 02115
617-732-4222
Stephen Zweibach, M.D.
515 S Kings Ave
Brandon FL 33511
8135712777
Ken Sinervo, M.D.
1140 Hammond Dr., Ste. F6220
Atlanta GA 30328
770-913-0001
Shaghayegh DeNoble, M.D.
20 Wilsey Square
Suite C
Ridgewood NJ 07450
2019577220

Advertisement

Hysterectomy News

August 13,2020

CURRENT NEWS

HysterSisters Takes On Partner To Manage Continued Growth And Longevity
I have news that is wonderful and exciting! This week’s migration wasn’t a typical migration - from one set ... News Archive

TODAY'S EVENTS

Calendar - Hysterectomies - Birthdays


Request Information


I am a HysterSister

HYSTERECTOMY STORIES

Featured Story - All Stories - Share Yours

FOLLOW US


Your Hysterectomy Date


CUSTOMIZE Your Browsing  



Advertisement


Advertisement