HysterSisters Articles for Hysterectomy
SHARING IS CARING
When You're Given a Rare Diagnosis
From the GYN Cancer Articles List
My oncologist keeps telling me my situation is rare, but it happened to me! Why? I feel so alone and scared.
Being a rare jewel is one thing, but being diagnosed with a rare health condition is another. Especially when it’s cancer.
It doesn’t matter how often your oncologist says:
- You don’t have the typical risk factors.
- Your type of cancer is rare.
- You shouldn’t have had recurrence.
A lot of good those words do. You don’t like this kind of special. In fact, you don’t want to be special at all.
You’re left with a lot of questions and you don’t understand why it’s happening to you. Rare or not, you have cancer. How are you going to be able to move forward?
It’s tough, no doubt about it. But you can go on.
No matter how discouraged you feel, keep up with your follow up appointments.
You’ll be watched closely, so there may be a lot of them. But catching and treating things at the earliest possible stages helps keep things in check.
Talk to your doctor about his recommendations and get a second, third, or fourth opinion.
Another doctor may have some additional experience or suggestions that might be beneficial for your situation. Consider traveling to a specialist who has experience treating others with your diagnosis.
Find out if you have any risk factors that you can control; then make any changes you can.
Do all you can to support your health and well being – like eating healthy
, exercising regularly
, not smoking
, and making good lifestyle choices. Instead of feeling helpless, taking control of what you can let’s you make a difference in your physical, mental, and emotional health.
And for all the things you can’t control, look outside yourself for help.
Draw on a higher power. Seek counseling. Keep a journal. Get out in nature. Surround yourself with positive friends and family.
As long as there is breath, there is hope: So don’t give up.
You may have to dig deep to find your strength, but it's there. You have options, so work with your medical team and keep on fighting. Prove you are rare by beating your diagnosis.
This content was written by staff of HysterSisters.com by non-medical professionals based on discussions, resources and input from other patients for the purpose of patient-to-patient support.
09-07-2016 - 10:50 PM
SHARING IS CARING
Do you have a question?
If you have a medical support question related to this article, come JOIN US in our HysterSisters Community Forums. You will receive helpful replies to your questions from our members. See you there!
Options to Hysterectomy
Hormone and Menopause
Intimacy after Hysterectomy
Fitness after Hysterectomy
Grief and Loss
Ask A Doctor
Find a Surgeon
|Mayra J. Thompson, M.D.
5323 Harry Hines Blvd Dept OBGYN
Dallas TX 75290
|Susan D. Hunter, M.D.
626 Ed Carey Dr
Harlingen TX 78550
|Lauren Pinkard, M.D.
4225 W 95th Street
Oak Lawn IL 60453
|Geoffrey Cly, M.D.
Suite 101, 11123 Parkview Plaza Drive
Fort Wayne IN 46845
|Tiffany Jackson, M.D.
7217 Telecom Parkway #290
Garland TX 75044
|Debra Richardson, M.D.
Gynecological Oncology Clinic - SW Med
2201 Inwood Road Suite 106
Dallas TX 75390
|Ellen Wilson, M.D.
5323 Harry Hines Blvd - Dept of OBGYN
Dallas TX 75390
|James Kondrup, M.D.
161 Riverside Drive
Binghamton NY 13905
|Aileen Caceres, M.D.
Center for Specialized Gynecology/Florida Hospital
410 Celebration Place, Suite 302
Celebration FL 34747