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I am so scared 09-18-2005 - 07:41 PM
I guess journaling will be my outlet. I have so much fear inside of me I don't know what to do. These days waiting to hear from the neuro surgeon are lasting way too long. I've done alot of research on here this weekend and now I am terrified! Alot of my symptoms are causes for immediate back surgery. Just too bad the neuro office don't seem to think I need to get in right away. I have no vaginal feelings (no sensations from my recent surgery). I had no sexual sensations and no sensations from my posterior surgery in Jan. According to urodynamic testing in July I held way too much water before feeling a need to go.They said that was not normal, but didn't know what was causing it. I had been under the care of a colon rectal dr. for months. I was on all kinds of fiber, laxatives, suppositories, but I still had to push in my vagina to have a bm. These bowel and bladder symptoms are reason to have surgery right away. What scares me is this has been going on for a very long time. I wish one of these dr's would have sent me for a MRI months ago when I complained of no sensations. I wouldn't have to be going through all of this now. I am trying to recover from the tvt and anterior repair surgery and at the same time have to deal with my back problem. I can't sleep for long before waking up with my legs, hips and back killing me. My legs also tingle and go numb. I have leg spasms too.I realized today that I probably have upper spine problems too. I pop and crackle between my shoulder blades. I also noticed a couple weeks ago I had pain in my left arm and left ribs. I had to hold my arm close to my chest while walking to keep it from hurting so much.I also get pain in my left hand off and on. I had xrays on it in Dec., but didn't find a cause. I notice I drop things alot when at work.My GP thought maybe I had some carpel tunnel. I don't think so now.These are all symptoms of upper spine problems. I didn't tell the neuro office about this. I was hurting so bad in my lower back that I never thought to say anything about it. Right now as I sit here typing my left leg and foot is tingling and going numb.I don't feel I can go many more days like this. I just wish my uro/gyn who did my surgery last Monday would call the neuro office tomorrow and tell them I need to be seen now. My uro/gyn is the one who ordered me the MRI while I was in the hospital. He wanted me to have a neuro consultation before I was discharged Wed., but it was not possible.It is so hard for me to believe that everyone of these dr's are too busy to make a phone call in my behalf. I am afraid I will wake up paralized one day if something doesn't get done soon. I better go now as tears are building up and I won't be able to see to type soon.

cow32323 said at 09-18-2005 - 11:15 PM

its quite alot on your plate to cope with . i too cant believe that they couldnt just pop in to visit you while you were in

if you were being treated ina general hospital it would have been easy to send them to you on their morning rounds . I dont ge it

eitherw ay I hope that it gets resolved and soon



Dylli said at 09-18-2005 - 11:52 PM
Dear Peggy,

I'm sorry for all that you are going through. I have lower back problems...numbness must be scary. I only get radiating pain down my leg. In any case, I hope you can get help. Back surgery has come a long way. I would consider it for myself if the odds/risks were good. Know that we are thinking about and praying for you.

s Dylli


jmberg said at 09-19-2005 - 12:06 PM
I am so sorry for all that you are going through. I think by now I would be on that phone calling the doctors. I don't understand why things have to move so slowly either and that is so frustrating.






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