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Upcoming surgery 1/15: Pelvic Organ Prolapse after hysterectomy? Upcoming surgery 1/15: Pelvic Organ Prolapse after hysterectomy?

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  #11  
Unread 01-05-2021, 07:52 PM
Upcoming surgery 1/15: Pelvic Organ Prolapse after hysterectomy?

  Quote:
Originally Posted by PandoraX View Post
I had my surgery on Sept 8th (everything out). Like you, I was scared to death of all the reported complications - including prolapse. If you google hysterectomy, one of the first things that pops up in the 'questions' sections is some site called 'hormones matter' that essentially claims that the operation will screw up your anatomy and turn you into a sexless zombie. Even this site is both a blessing and a curse. When you have a problem, it's reassuring to be able to receive support and advice and draw on others experiences - but then whatever problem you look up - you'll inevitably find a few people who have ongoing complications. The site also sends you messages (perhaps notifications can be turned off) - with scary articles articles such as "10 reasons why you should be concerned about incontinence!". I grilled my surgeon several times before deciding to get the surgery. He said the main risk factor for prolapse is having been pregnant. At any rate, so far every symptom I had in the first 2 weeks after surgery disappeared. I slowly went back to exercise (I was doing 8-10 hours of competitive racket sports before the operation). The first couple of weeks (after being given the green light to return to exercise 6 weeks after surgery) I wore one of those belts, then one day I forgot to use it. So since around 9 weeks following the operation, I've felt pretty normal doing my usual exercise routine. No loss of energy, etc. The main thing I'm dealing with are the hot flashes from having my ovaries removed, getting good sleep etc. But it's more of a nuisance than a major problem. I'm 57 but hadn't completed menopause before the operation. Anyway, I hope this is somewhat encouraging. Like any health related site, you're mainly going to hear from people who have on going complications - not the vast numbers of people who are doing fine and haven't bothered to go back and report how they're doing. Some times less information more. Then again, in my case (pre-cancer or atypical cells in my uterine lining) NOT having the hysterectomy wasn't an option. If you have options (like the previous poster), then that probably makes your decision more difficult - as there's no guarantee what will happen. I wish there were clearer info about risks, what to do, etc. The info and recovery guidelines are vague and outcomes so varied.
Really helpful of you to post this response as those sisters who are in the process of making this this impactful decision. I must confess that my decision to move forward was heavily influenced by speaking personally with individuals who had the surgery. Their experiences were overwhelmingly positive and so was mine when I eventually did it. There are indeed risks and some women do have adverse outcomes but we must understand that the later group is more likely to return and post.
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  #12  
Unread 01-05-2021, 07:54 PM
Re: Upcoming surgery 1/15: Pelvic Organ Prolapse after hysterectomy?

I had a complete hysterectomy in May 2014. I had prolapse surgery on November 12, 2020 for a prolapsed bladder, rectum and vagina. My prolapse was stage 3. Stage three is when the prolapse is past the vagina. I did go to a pelvic floor therapist before deciding on the surgery. I was told that this would not heal my prolapse but would hopefully make the muscles stronger to keep it from becoming worse. My body is still healing but I have high hopes that this surgery will be successful for me.
  #13  
Unread 01-05-2021, 10:01 PM
Upcoming surgery 1/15: Pelvic Organ Prolapse after hysterectomy?

  Quote:
Originally Posted by SpecialK8 View Post
I haven’t heard much talk of pelvic organ prolapse following a hysterectomy. How common is this? For this who have experienced this, can it ever be completely resolved where you feel like you did before surgery? I’ve read about some needing surgery for pelvic organ prolapse and many who experience it don’t require surgery. However, I didn’t know if that means they just have to live with it because it isn’t significant enough to warrant surgery? Any help or information would be greatly appreciated!
I had a LAVH 3 years ago and I've been everything bladder prolapse symptoms goes thes last year...due to covid it's taken me a long time to be seen. I saw my urologist back 3 months ago and finally will be serving a urogynocologist this Friday. So I don't know if I have a prolapse yet but I've done a lot of research. I asked questions on here and never received any answers. From what I've read surgery it's usually the last thing done unless it's a severe prolapse. There are things you can use inside your vagina to hold things in. There is a variety of pelvic floor therapy/ exercises and these are things that are tried before surgery. If I find out i do have a prolapse I will be happy to share more info. Good luck with your surgery!!
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  #14  
Unread 01-06-2021, 07:07 AM
Re: Upcoming surgery 1/15: Pelvic Organ Prolapse after hysterectomy?

Yes, even with a stage 3 prolapse I did discuss pessaries with my urogynecologist. I did include my husband in these discussions. After much thought and prayer I decided this was not something that I would be happy with in the long term so still opted for the surgery. At 8 weeks I am having some voiding issues that are getting better.
  #15  
Unread 01-06-2021, 09:57 AM
Re: Upcoming surgery 1/15: Pelvic Organ Prolapse after hysterectomy?

My mom had a hysterectomy at age 65 to repair years of uterine and bladder prolapse that therapy and pessaries did nothing for. She has been pain-free for 9 years now with no issues. It doesn't happen to everyone.

I had my surgery a month ago. I am worried about complications like prolapse, sexual disfunction, cuff tear, etc. too, but I viewed it this way-- I was miserable, anemic, and in constant pain. Our sex life was poor because I was bleeding nearly constantly and felt anything but sexy. I did not have a great quality of life before the surgery. No way was I willing to deal with that for another 20 years until menopause and HOPE it went away then. Just...no. I had the surgery and I guess if complications arise, I will deal with them. A guarantee of pain and misery vs. a chance of complications? It was a simple choice for me. Might I regret it later? Maybe. But I also would have regretted feeling like I have for the past 20 years, too.

I have not spoken to anyone in-person who regrets having a hysterectomy. Not one. A few have had complications but said they would still do it again if they had to do it over.
  #16  
Unread 01-11-2021, 01:37 PM
Re: Upcoming surgery 1/15: Pelvic Organ Prolapse after hysterectomy?

  Quote:
Originally Posted by tess99 View Post
I had an abdominal hysterectomy (kept ovaries) 9/20. I was super-worried pre-surgery about prolapse, but my gyn said she never sees it in her hysterectomy patients and that I had none of the risk factors: obesity, smoker. Three months post hysterectomy, I found out I have the beginning stages of prolapse. I'm still processing this. I'm angry because my hematologist (I would see him prior because of iron infusions for blood loss due to fibroids), begged me NOT to get a hysterectomy, as the patients he sees who have had them all have prolapse issues. I really regret not listening to him and listening to my gyn instead. Also, I later learned another major risk factor for
prolapse is a history of major cough (from bronchitis, etc.). I have a history of cough, as whenever I get sick I usually get an awful cough. But, my gyn never bothered to ask me this. I delayed having a hysterectomy for so long. I agonized over the decision. I'm just hoping my prolapse doesn't progress. I've made an appmt for pelvic floor therapy where they teach you exercises to strengthen your pelvic floor.

I feel like I got rid of one problem (fibroids/hysterectomy) only to inherit another big problem: prolapse. I may not have the courage for quite some time to read any replies to this, as I'm still emotional and processing this. have a friend who is near my age (50) and had a hysterectomy and has had NO prolapse issues, so everyone is different of course. If you were my sister, I would tell you to do everything you can to explore ALL options and look at ALL risk factors. II wish you the best in your decision.

I am right there with you. I had a LAVH (removal of uterus, cervix, left ovary and tube....already had right ovary removed) 3 years ago Dec 19. I had no risk factors for prolapse, never had kids, not a smoker, etc. And yet I just found out Friday I have a rectocele grade 2. I also was diagnosed with Interstitial cystitis and tight pelvic floor. I too feel like I traded one big thing for another. I’m feeling very discouraged at the moment. I had to do pelvic floor therapy a year after my hysterectomy for painful sex due to tight pelvic floor and it helped sooo much....but I had a really hard time keeping up with the internal massage part and thus find myself right back where I was 2 years ago....with an added prolapse. I don’t regret having had my hysterectomy but geez.
  #17  
Unread 01-22-2021, 03:42 PM
Upcoming surgery 1/15: Pelvic Organ Prolapse after hysterectomy?

I had my hysterectomy almost 4 years ago, no children, surgeon assured me a chance of Prolapse rare since everything was still "tucked up nice and tight." But I ended up with an entero/cystocele/rectocele repair in 2019, I used a different surgeon who was experienced in these situations and did several tests to make sure surgery was my best option..
I also have terrible IBS-C. My pelvic floor physical therapist suggested that may have caused it.

Bottom line, these are all people's personal experiences. There is no guarantee its going to happen to you. Don't let it scare you out of surgery. If a Prolapse does happen, there are surgical and non surgical ways to deal with it.
  #18  
Unread 01-22-2021, 09:26 PM
Re: Upcoming surgery 1/15: Pelvic Organ Prolapse after hysterectomy?

I had pelvic organ prolapse but it was BEFORE my hysterectomy. I literally asked my Dr. if after my hysterectomy my vagina would be swinging to and fro. Exact words. He said, no, and that he would be stitching the top part of my vagina to ligaments to hold it up. Ask your Dr. about this. Not all Dr. do this procedure. It's possible to prolapse after a hysterectomy but is it caused necessarily by one? No. Aging, smoking, weight issues, heavy lifting, lack of esrogen or vaginal estrogen, etc. etc. can cause it. So a woman that has a prolapse 5 years after her hysterecomy didn't have one necessarily because of the hysterectomy. And it would be hard to know if she did. There is always a risk of prolapse for any woman is what I'm saying.
  #19  
Unread 01-23-2021, 01:40 PM
Re: Upcoming surgery 1/15: Pelvic Organ Prolapse after hysterectomy?

My understanding is that it is SOP for surgeons to stitch ligaments to the top of the vagina for support. But prolapse can happen for a variety of reasons, especially if you have certain risk factors.

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