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Post-Op Hysterectomy 2 years and CT Scan surprises - UPDATED - scan was misread! Post-Op Hysterectomy 2 years and CT Scan surprises - UPDATED - scan was misread!

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  #1  
Unread 07-29-2021, 09:33 AM
Post-Op Hysterectomy 2 years and CT Scan surprises - UPDATED - scan was misread!

I had my hysterectomy with a bilateral salpingo-oophorectomy 9th of May 2019, all has been well up until last month. Pre-op I discussed with my then doctor/surgeon the removal of my uterus, both ovaries and fallopian tubes - cancer runs in my family and since I've had my children and was tired of the extremely heavy/painful periods I decided it was time. The next morning we decided last minute to have the cervix removed as well. Fast forward to June 2021. I have other health issues and since my surgery I have had 3 CT Scans, all full body scans. Imagine my surprise when it was noted in my CT Scan that both of my ovaries had been placed within the psoas muscle - not removed like everything else, but moved and placed elsewhere.

I asked the NP who ordered the scan if this was common practice, she had no answers and referred me to the doctor who did the surgery - that doctor is now in another state and the attending physician who assisted is still around. Yesterday, while in shock, because I had just found out - I left a lengthy message with the hospital asking what happened and why has no one seen this until now.

I'm still waiting to hear back and I'm asking - has this happened to anyone else here?
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  #2  
Unread 07-29-2021, 01:05 PM
Re: Post-Op Hysterectomy 2 yrs and CT Scan surprises

Wow! Do you have access to your post-op report? I have mine, and it details everything - including the count of the organs removed. I'm wondering if your ovaries were accidentally left behind?? Or were they purposefully placed there? Are they still functioning?
  #3  
Unread 07-29-2021, 01:08 PM
Re: Post-Op Hysterectomy 2 yrs and CT Scan surprises

and

What an odd turn of events for certain! I'm aware from past threads here that with regular ol' ultrasounds, ovaries can "hide" or inversely, a shadow of something else can mimic the looks of an ovary. That's less likely with a CT scan, but it's still an image which isn't as accurate as visual confirmation. OTOH, it sounds like both of them have been found! Was this only in one scan, the most recent one?

Another question: Did you get a copy your surgery report from your hysterectomy / BSO from 2019? That report should say what they did. I'd be curious if it confirms ovary removal. If you did not get a copy, you can still ask for it. I had a JPG copy of mine from 2016 (scanned by one of the surgeon's staff), and recently got a proper PDF copy via my patient portal.

Keep us posted as to what you find out.

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  #4  
Unread 07-29-2021, 01:18 PM
Re: Post-Op Hysterectomy 2 yrs and CT Scan surprises

  Quote:
Originally Posted by Michaelakeats View Post
Wow! Do you have access to your post-op report? I have mine, and it details everything - including the count of the organs removed. I'm wondering if your ovaries were accidentally left behind?? Or were they purposefully placed there? Are they still functioning?
I just requested a copy of the surgical report, pathology etc. The hospital has not contacted me yet, so I'm waiting on both. Those ovaries were to be removed, along with uterus, fallopian tubes and uterus. The other puzzling thing is, it states clearly on my records that I had this surgery and no one has questioned why I still have ovaries, in the wrong spot even - 2 yrs post surgery. As far as I know they are not functioning, but who knows. I do know that I hit menopause immediately afterwards and never once questioned anything else. I am still in shock and have been wondering why I have had some slight pain in that area off/on.
  #5  
Unread 07-29-2021, 02:10 PM
Re: Post-Op Hysterectomy 2 yrs and CT Scan surprises

According to my surgical report - the uterus, cervix, both fallopian tubes and both ovaries were removed and examined. According to that last CT Scan, I still have them (the ovaries)- I have no idea what is going on. I need to see if there is someone I can speak with before moving forward.
  #6  
Unread 07-29-2021, 06:18 PM
Re: Post-Op Hysterectomy 2 yrs and CT Scan surprises

That is completely unacceptable that they said one thing on the report but then did something else. If you've got the surgical report and the results of the CT scan, you should be able to ask for some answers - even if the answer is, "We messed up!" You deserve to know what happened, and it might help the hospital be more careful with their patients in the future.

So sorry this happened to you.
  #7  
Unread 07-30-2021, 09:07 AM
Re: Post-Op Hysterectomy 2 years and CT Scan surprises

Just got the call...a massive misreading of the scan! Apparently there's a practice where the ovaries were stitched into the abdominal wall? Who knew! But anyways the misread was by one who knew of the practice and wrongly assumed that that was what he was seeing. What they did see were bilaterally swollen gonadal veins. All organs have been accounted for and those ovaries are indeed gone.
  #8  
Unread 07-30-2021, 09:38 AM
Re: Post-Op Hysterectomy 2 years and CT Scan surprises - UPDATED - scan was misread!

Well, mystery solved, and it wasn't even a mystery! Yeah, if your pathology showed the removed ovaries having been examined, since that's a follow up to the surgery report, I'd be questioning the CT scan.

That's the shortcoming of imagery, no matter how advanced it is. It's a recreation of what it detects inside, and has to be interpreted.

  #9  
Unread 07-30-2021, 11:18 AM
Post-Op Hysterectomy 2 years and CT Scan surprises - UPDATED - scan was misread!

Thank goodness for that! What a relief! Glad you got to the bottom of the mystery.
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