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57.5 yo & unsure on hysterectomy (fibroids) 57.5 yo & unsure on hysterectomy (fibroids)

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  #1  
Unread 01-09-2021, 01:25 AM
57.5 yo & unsure on hysterectomy (fibroids)

I'm 57.5 years with a ten-year history of fibroids. Three different types ranging in size from 9cm to 5cm. I'd been hoping that my fibroids would shrink at the menopause. However my menopause has been a bit stop-start with little shrinkage so far.

During a rare period (last one was in October '20 and before that January '20) there was a huge amount of blood for 2-3 days, then trailed off and stopped entirely by day 8. I call it a period but because of my age it is considered post-menopausal bleeding (I'd had a period perhaps 9 months before, but not the requests 12 months to be said to be definitely in the menopause. FSH was 48 so they said, nope, we have to investigate as this is post-menopausal bleeding.

I got an ultrasound and was given some choices. I could get (another!) biopsy to rule out endometrial cancer, the biopsy due in part to how difficult it is to see/assess the state of my endometrial lining. I was also told I could get a hysterectomy as the fibroids are still quite large, 9 cm for one that is subserosal at the top of the uterus and another that is 5cm. There may be a 3rd. They are smaller than they were, but not a lot smaller.

Most of the time I'm fine apart from having a larger than normal uterus and a backache that has been persistent for years. Because of my age, I no longer get regular periods. How many women had crampy, lower back pain that cleared up after hysterectomy? It sounds as though some of you have WORSE back pain post-op!

Due to my age-related decrease in estrogen, my abdomen doesn't protrude as much and I have fewer urinary incontinence problems. However, perhaps going through years of an abnormally large uterus may prove troublesome down the road as I'm older now. My endometrial cancer risk is higher than other women due to having a late menopause, so hysterectomy would prevent that.

Would I be crazy to consider a hysterectomy? The reasons would be bulky uterus, medium/large fibroids possibly (not sure!) contributing to back pain, and because I'm going to spend a lot of time getting biopsies otherwise.

I'm not overweight (okay a few pounds!) and feel relatively healthy so part of me thinks I should get the op while "young" (haha...but I'm younger than I'll ever be again!).

I *do* feel like I'm in the menopause (hot flashes, dryness, all that) but the fibroids aren't really shrinking much...perhaps they will?

Any thoughts gratefully appreciated as I have to make a decision next week. That decision can, of course, to be to postpone.
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  #2  
Unread 01-11-2021, 08:04 AM
57.5 yo & unsure on hysterectomy (fibroids)

Speak to an Interventional Radiologist to get fibroids embolized so they are able to shrink. As long as fibroids have a blood supply they will grow. I had UAE at 51 for a 9cm fibroid. Not only did my bleeding stop immediately my tumor has shrunk by 90%. I avoided hysterectomy by having this one procedure. I was facing losing everything by GYN’s who allowed them to grow huge. Go around them. Speak to an Interventional Radiologist who specializes in uterine bleeding disorders. There are lots and a Google search tool.

  Quote:
Originally Posted by Martha615 View Post
I'm 57.5 years with a ten-year history of fibroids. Three different types ranging in size from 9cm to 5cm. I'd been hoping that my fibroids would shrink at the menopause. However my menopause has been a bit stop-start with little shrinkage so far.

During a rare period (last one was in October '20 and before that January '20) there was a huge amount of blood for 2-3 days, then trailed off and stopped entirely by day 8. I call it a period but because of my age it is considered post-menopausal bleeding (I'd had a period perhaps 9 months before, but not the requests 12 months to be said to be definitely in the menopause. FSH was 48 so they said, nope, we have to investigate as this is post-menopausal bleeding.

I got an ultrasound and was given some choices. I could get (another!) biopsy to rule out endometrial cancer, the biopsy due in part to how difficult it is to see/assess the state of my endometrial lining. I was also told I could get a hysterectomy as the fibroids are still quite large, 9 cm for one that is subserosal at the top of the uterus and another that is 5cm. There may be a 3rd. They are smaller than they were, but not a lot smaller.

Most of the time I'm fine apart from having a larger than normal uterus and a backache that has been persistent for years. Because of my age, I no longer get regular periods. How many women had crampy, lower back pain that cleared up after hysterectomy? It sounds as though some of you have WORSE back pain post-op!

Due to my age-related decrease in estrogen, my abdomen doesn't protrude as much and I have fewer urinary incontinence problems. However, perhaps going through years of an abnormally large uterus may prove troublesome down the road as I'm older now. My endometrial cancer risk is higher than other women due to having a late menopause, so hysterectomy would prevent that.

Would I be crazy to consider a hysterectomy? The reasons would be bulky uterus, medium/large fibroids possibly (not sure!) contributing to back pain, and because I'm going to spend a lot of time getting biopsies otherwise.

I'm not overweight (okay a few pounds!) and feel relatively healthy so part of me thinks I should get the op while "young" (haha...but I'm younger than I'll ever be again!).

I *do* feel like I'm in the menopause (hot flashes, dryness, all that) but the fibroids aren't really shrinking much...perhaps they will?

Any thoughts gratefully appreciated as I have to make a decision next week. That decision can, of course, to be to postpone.
  #3  
Unread 01-12-2021, 05:13 PM
Re: 57.5 yo & unsure on hysterectomy (fibroids)

I am 58 and had my surgery on August 31st.

I had bad issues with my uterus/fibroids during perimenopause and things calmed down after menopause, or so I thought.

One day, I just started hemorrhaging. I didn't know what to think, my uterus wasn't even a thought.

As it turns out, my massive fibroids had been growing and filling with blood. One day the dam burst.

I required two blood transfusions before they could even do the surgery on me.

My only regret it life was not having done it sooner.
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  #4  
Unread 01-12-2021, 05:56 PM
Re: 57.5 yo & unsure on hysterectomy (fibroids)

Hi!
6 weeks ago on Dec 1st I had a hysterectomy with tubes, ovaries, cervix, and uterus removed.

I was days short of being 62 years old.

I have a family history of ovarian cancer and I had post menopausal bleeding. I started my period at the age of 11 and I entered menopause late.

Everything was removed vaginally and it was a more difficult surgery than expected because the uterus was so much larger...vaginal tears in addition to the vaginal cut took place.

Results: Atrophic type endometrium Marked adenomyosis Benign cervix with ulceration of the squamous mucosa Bilateral ovaries with scattered inclusion cysts and focal endometriosis of left ovary Benign bilateral fallopian tubes with paratubal cyst

I'm glad I had the surgery. Recovery has gone well. The only thing that was more of a bother was all of the vaginal stitches that didn't seem to want to dissolve. I went back to work after 4 weeks. I took a lot of vitamins pre and post surgery, but that's my norm. I do tire easily. I'm overweight.
  #5  
Unread 01-12-2021, 06:11 PM
Re: 57.5 yo & unsure on hysterectomy (fibroids)

I had so many problems with large fibroids and adenomyosis. Last year I had a myomectomy but they just came back. So last Wednesday I had an abdominal hysterectomy (I never had kids - uterus was too large for vaginal). I was so afraid before surgery, worried about the pain, etc. Let me tell you, I came home one day after surgery, used Tylenol for 2 days and nothing since. Piece of cake!! I feel great. Planning on going back to work 2 weeks post op. I’m 53.
  #6  
Unread 01-12-2021, 06:17 PM
Re: 57.5 yo & unsure on hysterectomy (fibroids)

Hi,
I’m 46 and had a TAH on the 11th of December due to a large ‘fibroid’ above my uterus as well as a few other pesky issues. This ‘fibroid’ was found over 6 years ago when I was pregnant with my first child. Didn’t cause any real issues during that pregnancy or the next so was left alone.
Fast forward to late last year and I was feeling super bloated all the time, and was often suffering from pain that radiated down one leg and also sometimes up to my shoulder/neck.
During surgery it was found the lump was actually not a fibroid but a cystic tumour coming from my appendix, so my appendix was removing along with everything else (one ovary was left).
When pathology came back I was told I had two rare unrelated cancers of my appendix. I won’t go into too much detail, but the drs are hopeful it was all taken out and won’t cause any more issues, I just need blood tests, scans etc going forward to make sure nothing is growing (it’s a slow growing cancer). I’m not trying to scare you, I just feel lucky that my drs and surgeon were proactive about surgery as without that I would have ended up in a much worse situation.
The radiating leg pain has completely gone along with the bloated feeling. Although I’m only about 4.5 weeks post surgery I feel SO much better already and SO glad I went ahead and had the surgery. All the best to you.
  #7  
Unread 01-12-2021, 06:39 PM
57.5 yo & unsure on hysterectomy (fibroids)

  Quote:
Originally Posted by Martha615 View Post
I'm

57.5 years with a ten-year history of fibroids. Three different types ranging in size from 9cm to 5cm. I'd been hoping that my fibroids would shrink at the menopause. However my menopause has been a bit stop-start with little shrinkage so far.

During a rare period (last one was in October '20 and before that January '20)there was a huge amount of blood for 2-3 days, then trailed off and stopped entirely by day 8. I call it a period but because of my age it is considered post-menopausal bleeding (I'd had a period perhaps 9 months before, but not the requests 12 months to be said to be definitely in the menopause. FSH was 48 so they said, nope, we have to investigate as this is post-menopausal bleeding.

I got an ultrasound and was given some choices. I could get (another!) biopsy to rule out endometrial cancer, the biopsy due in part to how difficult it is to see/assess the state of my endometrial lining. I was also told I could get a hysterectomy as the fibroids are still quite large, 9 cm for one that is subserosal at the top of the uterus and another that is 5cm. There may be a 3rd. They are smaller than they were, but not a lot smaller.

Most of the time I'm fine apart from having a larger than normal uterus and a backache that has been persistent for years. Because of my age, I no longer get regular periods. How many women had crampy, lower back pain that cleared up after hysterectomy? It sounds as though some of you have WORSE back pain post-op!

Due to my age-related decrease in estrogen, my abdomen doesn't protrude as much and I have fewer urinary incontinence problems. However, perhaps going through years of an abnormally large uterus may prove troublesome down the road as I'm older now. My endometrial cancer risk is higher than other women due to having a late menopause, so hysterectomy would prevent that.

Would I be crazy to consider a hysterectomy? The reasons would be bulky uterus, medium/large fibroids possibly (not sure!) contributing to back pain, and because I'm going to spend a lot of time getting biopsies otherwise.

I'm not overweight (okay a few pounds!) and feel relatively healthy so part of me thinks I should get the op while "young" (haha...but I'm younger than I'll ever be again!).

I *do* feel like I'm in the menopause (hot flashes, dryness, all that) but the fibroids aren't really shrinking much...perhaps they will?

Any thoughts gratefully appreciated as I have to make a decision next week. That decision can, of course, to be to postpone.

I had the same diagnosis as you have . Thought fibroids would shrink was told not to go on hormone replacement just suffer through menopause since HRT might cause fibroids to grow.

I had the hysterectomy 2 years ago. Since then I have seen 31 doctors for a central nervous disorder and fibromyalgia that came on 12 weeks after I had my surgery.
Please read up on the side effects of what happens after they remove the framework of your abdomen. I thought I did bright research but I did not. I should have just stuck it out with the Lowe pack pain and break through bleeding,
Hope you are well
  #8  
Unread 01-12-2021, 06:40 PM
Re: 57.5 yo & unsure on hysterectomy (fibroids)

I had my hysterectomy in 2018. Was 54 and had gone over a year without a period. I had found out I had fibroids in 2015. There was 3 with the biggest being 10 cm. I did the waiting game, figuring they would shrink during menopause. But I finally had to go to the doctor because it was becoming very painful to have intercourse. My family doctor ordered an ultrasound. They sent my to obgyn #1. He said he would have to do an abdominal hysterectomy. He said I couldn’t have a vaginal and that he couldn’t do a laparoscopic. He also said that it might not fix any of my problems. So I asked to be referred to another obgyn.
Obgyn #2. He was an Expert on performing Da Vinci hysterectomy’s. After an exam and reviewing CT scan and ultrasound, he said that all my problems would go away with the surgery. The problems were: painful intercourse, getting up every 2 hours at night to pee. Getting full, bloated feeling without eating very much. Back hurting.
The doctor was right. It fixed all my problems. However, when he did the surgery, he said I had 20 fibroids and the biggest was the size of a baby’s head. Ultrasound only showed 4.
If you do decide to have a hysterectomy, I would recommend finding a doctor experienced in Da Vinci hysterectomy’s. It is minimal invasive, has less recovery time. Very small incisions. The second obgyn said fibroids typically only shrink 30% once you have gone through menopause. The don’t completely go away. Had I known this in 2015, I don’t think I would have “toughed it out” for as long as I did. Good luck with your decision.
Hugs
  #9  
Unread 01-12-2021, 07:15 PM
57.5 yo & unsure on hysterectomy (fibroids)

I had similar issues and decided to undergo a hysterectomy 2 years ago at age 53. I was not yet in menopause. It was the best decision as all my issues when away, I feel healthier (no more heavy bleeding, anemia and nagging lower back pain) and now have an overall better quality of life. You may want to consider options to shrink the fibroids first before doing the hysterectomy as it’s still major surgery that comes with some risks.
  #10  
Unread 01-12-2021, 07:50 PM
57.5 yo & unsure on hysterectomy (fibroids)

I also had the unhappy option of undergoing multiple future biopsies to make sure cancer hadn't set into my uterus. My gyn sent me to oncology gyn and I am so glad I had a specialist. He said my cervix was closing due to regular menopausal changes (I'm 63) plus scarring from 2 LEEP procedures. Future biopsies couldn't be done without surgery. I chose to have a total hysterectomy on 12/3 and just be done with it. Pathology showed multiple ovarian cysts I had not suspected, plus plenty of uterine fibroids. My recovery is going well. I have no other medical issues except being overweight. Best wishes to you as you make your decision.
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