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Upcoming August 5th hysterectomy Upcoming August 5th hysterectomy

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  #1  
Unread 06-30-2020, 04:22 AM
Upcoming August 5th hysterectomy

I don't yet know exactly which version I'll be having to post the letters you guys have. I have an appt on July 9th for an updated ultrasound and can get those answers.

Had we done surgery in June as originally planned I may have had better answer. But the COVID delay happened and my pre-planning April appointments got canceled. And the delay has caused a myriad of horrific symptoms I didn't have in Feb when I had my last ultrasound.

I've gotten significantly worse in the past 2 cycles. July 9th is a pushed up appointment I requested yesterday from my July 27th pre-op ultrasound so they can check me before my final cycle. The past 5 days has been horrific.

I had an ablation in hopes of avoiding a hysterectomy, in Oct. 2019. 2 months later I was in bad shape again with worse bleeding than I had pre-EA. Bio-identical progesterone helped for a short time only.

And this week is unlike anything I've ever had and no pain meds can touch the pain. So it's been scary. It makes me wonder if the 'easier' hysterectomy is still possible like I was told in Feb.

I have a fibroid that in Feb had grown to 7.8cm from 3.1 two years ago when first measured. In Feb, the opinion was if I had a hysterectomy it would be the 4 incision / laparoscopic kind not full abdominal cut and I'd keep ovaries. It would be a one night hospital stay. I'd keep ovaries unless he saw something during surgery that told him I can't.

I have no idea the answer to the cervix question I've seen lots of you guys post about.... I'll put that on my list of questions for July 9th. Anything else I should ask?

What's the recovery differences between abdominal and laparoscopic?

Is there any safe way to stop the final cycle from coming? I have some stroke risks related to the MTHFR mutant gene, so I haven't been willing to take estrogen / birth control or LYSTADA (sp?) because it's a clotting med to lower bleeding.

Although after this week I'm wondering if for one cycle it would be worth it, just to not go through what I've gone through this week. (Which included Sunday being in the bathroom for 11 out of 13 hours straight.) How is it possible to even have any blood left???? And yet the clots still come ... going on day 5 now. I haven't passed out though so I assume no blood transfusion needs. But I will ask for a lab work up on July 9th as well.

Any help would be appreciated. Talking myself into finally having this surgery wasn't an easy journey. Now after this month the day can't come fast enough!
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  #2  
Unread 06-30-2020, 08:53 AM
Re: Upcoming August 5th surgery

and greetings from a fellow fibroid sister!
My largest fibroid was 10 cm across; because it was pressing on my bladder, my main symptoms were urinary in nature. My surgeon prescribed 2 monthly shots of Lupron to shrink everything to the point where I could have my surgery done laparoscopically; it works by temporarily halting estrogen production, so your fibroid will shrink, and your periods will stop. He had originally planned to do an LAVH, which would have mandated removal of my cervix; I pushed for a supracervical approach, because my research indicated that it would be more appropriate for my individual situation. We have an article that can help you to weight the pros and cons of keeping your cervix versus having it removed, plus another one filled with suggestions on what to ask him; hopefully, one of our hostesses will be along soon and able to provide you with a few links. A few suggested questions: under what circumstances would you remove my ovaries, and what are the chances of that happening; how long do you expect the surgery to take; how long can I expect to be in the hospital; how will my pain be managed; I currently take (insert supplement/medication here), will I have to stop taking it beforehand, or can I take it with me to the hospital; what restrictions will I have on driving/lifting/sex/other activities, and for how long; when should I arrange for a follow-up. Regardless of what type you end up having, you're still having an organ removed from your body, along with several sets of ligaments and blood vessels cut, and that can require up to several months for a full recovery; as long as you follow your surgeon's instructions, and stick with us, I think you'll do just fine! Wishing you all the best for a successful surgery and a smooth recovery!
  #3  
Unread 06-30-2020, 11:38 AM
Upcoming August 5th hysterectomy

I havent had fibroids, mind was endometriosis based surgery but I can tell you that it was the best decision I ever made! My periods were so miserable and the pain lasted 3 weeks then the period would come again and pain last 3 weeks. I finally went on birth control pill to stop my periods because I couldnt take any any longer. After I got on the pill I decided to seek out a specialist and she said I needed surgery. I took the birth control up until the day of surgery and i have bee pain free since day 3 of recovery! I have never felt this great!!

I believe the laprascopic surgery had a quicker and less painful recovery. My incisions are tiny, only 1/4” long and I have 5 of them, everything removed was sent through my vagina. I did not keep my cervix, I had no choice. I am happy its gone because I dont have to worry about removing it later but the vaginal cuff scares me. I also have an appointment July 9th for my 6 weeks post op. I will ask her many many questions about my cuff and what my risks are. This is the only thing I am worried about. I read cuff tears are rare but I want to know my risks.

Anyway, my surgery was a breeze! It was 6 hours long, lots of endo to remove but it was over fast for me since I was knocked out and i was home that evening!

  Quote:
Originally Posted by Joyfulnoise777 View Post
I don't yet know exactly which version I'll be having to post the letters you guys have. I have an appt on July 9th for an updated ultrasound and can get those answers.

Had we done surgery in June as originally planned I may have had better answer. But the COVID delay happened and my pre-planning April appointments got canceled. And the delay has caused a myriad of horrific symptoms I didn't have in Feb when I had my last ultrasound.

I've gotten significantly worse in the past 2 cycles. July 9th is a pushed up appointment I requested yesterday from my July 27th pre-op ultrasound so they can check me before my final cycle. The past 5 days has been horrific.

I had an ablation in hopes of avoiding a hysterectomy, in Oct. 2019. 2 months later I was in bad shape again with worse bleeding than I had pre-EA. Bio-identical progesterone helped for a short time only.

And this week is unlike anything I've ever had and no pain meds can touch the pain. So it's been scary. It makes me wonder if the 'easier' hysterectomy is still possible like I was told in Feb.

I have a fibroid that in Feb had grown to 7.8cm from 3.1 two years ago when first measured. In Feb, the opinion was if I had a hysterectomy it would be the 4 incision / laparoscopic kind not full abdominal cut and I'd keep ovaries. It would be a one night hospital stay. I'd keep ovaries unless he saw something during surgery that told him I can't.

I have no idea the answer to the cervix question I've seen lots of you guys post about.... I'll put that on my list of questions for July 9th. Anything else I should ask?

What's the recovery differences between abdominal and laparoscopic?

Is there any safe way to stop the final cycle from coming? I have some stroke risks related to the MTHFR mutant gene, so I haven't been willing to take estrogen / birth control or LYSTADA (sp?) because it's a clotting med to lower bleeding.

Although after this week I'm wondering if for one cycle it would be worth it, just to not go through what I've gone through this week. (Which included Sunday being in the bathroom for 11 out of 13 hours straight.) How is it possible to even have any blood left???? And yet the clots still come ... going on day 5 now. I haven't passed out though so I assume no blood transfusion needs. But I will ask for a lab work up on July 9th as well.

Any help would be appreciated. Talking myself into finally having this surgery wasn't an easy journey. Now after this month the day can't come fast enough!
  #4  
Unread 06-30-2020, 12:43 PM
Re: Upcoming August 5th surgery

Wow, CJARBELL. Interesting and encouraging. 6 hours seems really long! Mine is estimated at 1 1/2 hours and I feel like I should ask if it would be longer for endo. I've never been checked to know for sure if I have that too but he said based on symptoms very likely. I'm glad you felt so good by day 3. I've felt so horrible now for 5 days I question will those first few be that much harder? I hope not. But thanks for the encouragement and I've put the cuff on my list of questions to ask.
  #5  
Unread 06-30-2020, 12:46 PM
Re: Upcoming August 5th surgery

Hi, Tiger_Eye. Thanks for the info and your experiences and suggested questions. I'm glad to be going for an earlier appointment so I don't need to bombard him at a pre-op. I always feel like the fibroid presses against my bladder and I barely make it 30 minutes without having to go to the bathroom. So annoying. I hope that's one of the benefits to going through with surgery. Thanks for your help.
  #6  
Unread 06-30-2020, 12:50 PM
Upcoming August 5th hysterectomy

The only pain I had was trapped gas. Nothing else hurt! So day 1 trapped gas is miserable but it gets better from there. I didnt need any pain meds. The constant pain from periods was way worse!! My ovaries had massive endometrial cysts and one burst during surgery. I watched the video, she had to burn and cut it all to seperate things, all my parts were glued together, so the long part was to get all my parts unstuck and separated before she could remove them and clean out all the endo. She said mine was one of the worse she has seen BUT it caused me no pain! I havent had any complications. She said i lost very little blood. It was long but smooth. She said she didnt know how I lived day to day with that giant stuck together mass. I did for years, i had no idea all of that was going on! Crazy!

  Quote:
Originally Posted by Joyfulnoise777 View Post
Wow, CJARBELL. Interesting and encouraging. 6 hours seems really long! Mine is estimated at 1 1/2 hours and I feel like I should ask if it would be longer for endo. I've never been checked to know for sure if I have that too but he said based on symptoms very likely. I'm glad you felt so good by day 3. I've felt so horrible now for 5 days I question will those first few be that much harder? I hope not. But thanks for the encouragement and I've put the cuff on my list of questions to ask.
  #7  
Unread 06-30-2020, 07:16 PM
Re: Upcoming August 5th surgery

Hi Joyfulnoise777 -

Whether or not you keep your cervix (which is simply the neck of the uterus) can sometimes be a personal decision, and other times be medically required that it be removed. This was my case, and I lost everything: uterus, cervix, tubes and ovaries. I have had no issues with prolapse and it has been over nine years.

Here are articles that may provide information:
10 Questions to Help You Decide about the Cervix
Hysterectomy, Cervix, and Intimacy
Hysterectomy, Cervix, and Pelvic Organ Support


Make sure your entire medial team knows about your MTHFR gene mutation. Here is some information regarding pre-op appointments:
Making the Most of Your Pre-op Appointments for Hysterectomy
Questions for Your Pre-Op Hysterectomy Appointment


Here also are 10 Tips for Preparing for Your Hysterectomy. What I found most useful were the following (some may not be available due to the pandemic):
-Meals in the freezer that can be put in the microwave
-Easy foods for breakfasts and lunches
-Loose fitting clothing
-Prepare your recovery corner with pillows and blankets
-Plan entertainment for your brain
-Small pillow to hold against your tummy for coughs and sneezes (or pet visits)
-Super clean your house
-Get your hair cut

Having a hysterectomy is MAJOR SURGERY. No matter the type, you still have much internal healing to do. You really need to think in terms of weeks and not days. You will not be bedridden, but you will need to rest much. You will need help with cooking, cleaning, dishes, laundry, shopping, driving, etc. You will take brief but frequent walks as these help you heal. Here is general information on
Hysterectomy Recovery Time
.

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