Info related to Pelvic Pain

I had a total hysterectomy Back in 2012 due to stage 4 endometriosis. I am now getting severe pain and pressure/fullness in my lower pelvis. When it hurts I can’t move without discomfort and the pain is constant. It is not like my interstitial cystitis pain and I don’t have a UTI. This is a different pain then I have ever felt and I will be going in to see Gyno. It’s been going on for about 6 months now and it comes more frequent than before. Any extra pressure even snug panties or Jeans cause more pain. Has anyone experienced symptoms like these and if so what was your diagnosis?

Hi Sandra - I saw your post on our "In Search Of" forum, and I'm thinking our Pelvic Floor and Bladder Issues forum might have a bit more traffic related to what you're experiencing.

I see you had surgery for endo along with your hysterectomy. Is it possible that your endo has returned? If a part of any lesion is left behind, it could grow again. I think it would be worth seeing your gyn or an endo specialist to see if this might be happening.

Also, you don't mention whether you kept your ovaries. If you did, could you be dealing with ovarian cysts on your left ovary?

Another possibility is adhesions, or even something digestive since the home stretch of the colon is on the left side. I've got diverticulosis, and there are times when my left side has this dull throb due to something I ate or being slightly constipated.

I'm hoping some other Sisters may be able to offer even more perspectives from their own experiences. It's good that you've made an appointment - please let us know how it goes.

Hi Sandra,
Do you know if they excised your endometriosis when you had your hysterectomy? If not, most likely it is endo that is causing your pain. A hysterectomy without excision does not relieve endo or make it go away. A good way to find out would be requesting your op report and read what was done. I am sorry you are having pain, I also had stage 4 endo and it was on my intestines.

I too had a total hysterectomy for endometriosis. I thought it would cure it, because no one told me that it could come back. I had stage 3 and it was on my intestines, reproductive organs, and maybe bladder.
i too have issues with bloating, pain, trapped gas etc (all symptoms of intestinal endometriosis). My drs have not told me what it could be, but when I asked if it could be endo. they say that "It should be dead now." I feel like it is adhesions, but no one is saying. However if I have surgery to remove the adhesions, it will create more adhesions.

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Originally Posted by SandraD2012 I had a total hysterectomy Back in 2012 due to stage 4 endometriosis. I am now getting severe pain and pressure/fullness in my lower pelvis. When it hurts I can’t move without discomfort and the pain is constant. It is not like my interstitial cystitis pain and I don’t have a UTI. This is a different pain then I have ever felt and I will be going in to see Gyno. It’s been going on for about 6 months now and it comes more frequent than before. Any extra pressure even snug panties or Jeans cause more pain. Has anyone experienced symptoms like these and if so what was your diagnosis?

Sandra ... it's good to meet you dear. I am sorry you are having low pelvic pain/pressure. Have you been able to get in with your GYN? I developed another prolapse after my hysterectomy and it created lots of low pelvic pain and pressure ... that is another possibility. My thoughts and prayers are with you dear ... please keep us posted.