Results are pointing toward Hysterectomy | HysterSisters
HysterSisters Hysterectomy Support and Information
Advertising Info HysterSisters Hysterectomy Support Tutorial

Go Back   Hysterectomy HysterSisters > Hysterectomy Support Posts > Hysterectomy Options and Alternatives


HysterSisters.com is a massive online community with over 475,000 members and over 5 million posts.

Our community is filled with women who have been through the Hysterectomy experience providing both advice and support from our active members and moderators.

HysterSisters.com is located at 111 Peter St, Toronto, Canada, M5V2H1 and is part of the VerticalScope network of websites.

With free registration, you can ask and answer questions in our HYSTERECTOMY forum community, get our FREE BOOKLET, access Hysterectomy Checkpoints and more.

You are not alone. The HysterSisters are here for you. Join us today!
join HysterSisters for hysterectomy resources and support
Reply

Results are pointing toward Hysterectomy Results are pointing toward Hysterectomy

Thread Tools
  #1  
Unread 09-14-2021, 11:08 PM
Results are pointing toward Hysterectomy

I am dealing with severe anemia caused by a bunch of fibroids (can't remember if they defined 9 or 12 on the internal ultrasound).

My GP has been very proactive in treating the anemia with LOTS of iron in addition to exploring the cause. (It went undiagnosed for a while due to me not having medical insurance and neglecting to keep up with regular bloodwork in general and during 2020 in particular as our COVID #s are high in my area.).

Bloodwork revealed the anemia on 8/5/21. My doctor told me from Day 1 that his suspicion was menstral bleeding causing the anemia, which he confirmed through other testing. My internal ultrasound shows a bunch of fibroids some with blood supplies.

He initially was expecting to recommend a uterine ablasion, but while he still says he would support me if I want to go that route, he feels it is unlikely to deal with my main issue which is the fibroids. No issue with my uterine lining was apparant. His recommendation was hysterectomy.

He referred me to an OB once it was clear something would have to happen gynocologically. I saw her on 9/1. She did an exam to rule out polyps (I have none), and while she concurs with my GP that hysterectomy is going to be the best way to deal with my situation, my insurance required trying progesterone first. We all found this ridiculous since progesterone was definitely not going to solve fibroid issues, especially considering my terrible track record with tolerating hormones.

We gave it almost two weeks, but the constant cramps, headaches, vomitting, it delaying my cycle by more than a week, etc etc have caused us to declare progesterone a failure (as expected).

The OB then requires the next step to be an intrauterine biopsy to 'rule out anything scarier' before they move on to the next step, which she also believes needs to be a hysterectomy. She will not perform it. There is a specialist in the office who I will meet with either tomorrow when I have my biopsy or at an appt with him once the biopsy results come back.

My biopsy is scheduled for tomorrow, and I am really not concerned that I have cancer. There is no family history of uterine/cervical cancer, but I can't deny I will be happy once those results are back. I was told 3-4 days for that news.

I am not even sure what I am asking for here other than maybe other than asking for reassurance that we are doing all thr right things to arrive at a proper conclusion.. It seems.to me like we are. I have been able to ask all my questions and get good answers so far.

I had hoped for ablasion, but I understand why it is not being recommended for me. I do not want multiple surgeries, but considering I only found out the fibroids were causing this big of an issue 5.weeks ago, I am stunned at how quickly everything is moving. I have always had painful, heavy periods, but I'd been told 'some women do' , and I accepted that as my reality until menopause.

I am 48. No desire/need to preserve fertility. Great supportive family, and a husband who is agreeing with the doctors but will support anything I want to do. Other than obviously preferring to not have major surgery, I am not seeing any reason to say no if these further tests continue to push us toward a surgical solution. And honestly if I am. Going to have to have to have a recovery, this is not a bad time for it as even vaccinated ppl like myself are trying to still abide by Safer at Home protocols due to the high Covid #s. Everything I regularly need to do can currently be done from home.
Sponsored Links
Advertisement
 
  #2  
Unread 09-15-2021, 07:46 AM
Re: Results are pointing toward Hysterectomy

Speak to an Interventional Radiologist to see if you are a candidate for UFE. This is a radiology procedure that targets the blood supply feeding the fibroids. Sounds complicated but made a HUGE difference for me. My bleeding stopped immediately after the procedure and since the fibroid has shrank by almost 90%. Works well for multiple fibroids as well as singular large ones. It’s not well known but many Interventional Radiologists are uterine and fibroid specialists however they intervene to stop the chaos v. invasive surgery. It worked amazingly well and spared my uterus.
  #3  
Unread 09-15-2021, 08:52 AM
Re: Results are pointing toward Hysterectomy

Hey Courtney,

Sounds like your doctors are doing everything they should be doing. It sounds similar to what I went through while I waited for my PE (blood clots in the lungs) to become stable enough for surgery. I do have to agree with Sisterduke about the interventional radiologist or even just looking up information for UFE. It is an option, and although I would probably be a good candidate for it since I have fibroids and adenomyosis I decided to go with the hysterectomy since I really don’t want to have to heal repeatedly from these non invasive procedures and potentially still need a hysterectomy. I bled everyday for almost 3 months and never want to deal with that being a possibility again. I also needed a blood transfusion and I’ve got the potential to need another if I start bleeding like that again. So for me hysterectomy is the best option, but you may decide on a different option. Hope the reassurance helped and that you consider not only UFE but maybe a second opinion. I know it took several doctors and lots of ultrasounds before anyone even noticed my adenomyosis.
Sponsored Links
Advertisement
 
  #4  
Unread 09-16-2021, 08:37 AM
Results are pointing toward Hysterectomy

Well my biopsy yesterday was a failure. Absolutely could not get my cervix to dialate. Tried and tried. Blamed it mostly on never having had children. Caused some bleeding, and it was just a no go. They are going to put me into twilight sleep tomorrow and do it like a D&C. I am not thrilled about being put to sleep at all.

I asked my OB to check if the surgeon (who is going to do the procedure, ) who will already be in there with a camera anyway, and genuinely feels an ablasion ould relieve enough of the excessive bleeding to make a hysterectomy unnecessary, if it could be done at the same time. I expect to hear that is ank, but I feel like having to do all this just for a biopsy is ridiculous. I'd like to feel like something better could come of it and end this Rollercoaster.

I really appreciate the responses here!!!

I have discussed and researched embolizing the fibroids, and I don't seem to be a good candidate for several reasons. One being sheer number of fibroids and the very real chance that they will. Continue coming back. I am not thinking that route is one I want to play with for the same reason we have been told ablasion will not do enough for my problems.

I have painful, heavy periods and I would like that to stop, but the real issue is the anemia. I need something to resolve that as soon possible. The pain isn't as big of a deal as ending the excessive bleeding even if it doesn't stop it all.

Any comforting about D&C procedures are welcome. Not hapoy about this development.
  #5  
Unread 09-16-2021, 10:23 AM
Re: Results are pointing toward Hysterectomy

Sorry to hear they have to do another procedure to get the biopsy. So frustrating! There’s no harm in asking the surgeon and giving consent on the off chance tho might well depend on how many fibroids and how big they actually are.

I also considered and rejected UFE. In my case, it might have shrunk a melon to a grapefruit but that’s still a lot to be carrying around. Reading the some of the posts here for it, I also noticed a lot of hysterectomy dates several years later. Although most seemed happy that they’d given it a shot and we’re in a better headspace for the hysterectomy.

Best of luck tomorroww
  #6  
Unread 09-16-2021, 05:41 PM
Re: Results are pointing toward Hysterectomy

  Quote:
Originally Posted by Courtney999 View Post
I am dealing with severe anemia caused by a bunch of fibroids (can't remember if they defined 9 or 12 on the internal ultrasound).

My GP has been very proactive in treating the anemia with LOTS of iron in addition to exploring the cause. (It went undiagnosed for a while due to me not having medical insurance and neglecting to keep up with regular bloodwork in general and during 2020 in particular as our COVID #s are high in my area.).

Bloodwork revealed the anemia on 8/5/21. My doctor told me from Day 1 that his suspicion was menstral bleeding causing the anemia, which he confirmed through other testing. My internal ultrasound shows a bunch of fibroids some with blood supplies.

He initially was expecting to recommend a uterine ablasion, but while he still says he would support me if I want to go that route, he feels it is unlikely to deal with my main issue which is the fibroids. No issue with my uterine lining was apparant. His recommendation was hysterectomy.

He referred me to an OB once it was clear something would have to happen gynocologically. I saw her on 9/1. She did an exam to rule out polyps (I have none), and while she concurs with my GP that hysterectomy is going to be the best way to deal with my situation, my insurance required trying progesterone first. We all found this ridiculous since progesterone was definitely not going to solve fibroid issues, especially considering my terrible track record with tolerating hormones.

We gave it almost two weeks, but the constant cramps, headaches, vomitting, it delaying my cycle by more than a week, etc etc have caused us to declare progesterone a failure (as expected).

The OB then requires the next step to be an intrauterine biopsy to 'rule out anything scarier' before they move on to the next step, which she also believes needs to be a hysterectomy. She will not perform it. There is a specialist in the office who I will meet with either tomorrow when I have my biopsy or at an appt with him once the biopsy results come back.

My biopsy is scheduled for tomorrow, and I am really not concerned that I have cancer. There is no family history of uterine/cervical cancer, but I can't deny I will be happy once those results are back. I was told 3-4 days for that news.

I am not even sure what I am asking for here other than maybe other than asking for reassurance that we are doing all thr right things to arrive at a proper conclusion.. It seems.to me like we are. I have been able to ask all my questions and get good answers so far.

I had hoped for ablasion, but I understand why it is not being recommended for me. I do not want multiple surgeries, but considering I only found out the fibroids were causing this big of an issue 5.weeks ago, I am stunned at how quickly everything is moving. I have always had painful, heavy periods, but I'd been told 'some women do' , and I accepted that as my reality until menopause.

I am 48. No desire/need to preserve fertility. Great supportive family, and a husband who is agreeing with the doctors but will support anything I want to do. Other than obviously preferring to not have major surgery, I am not seeing any reason to say no if these further tests continue to push us toward a surgical solution. And honestly if I am. Going to have to have to have a recovery, this is not a bad time for it as even vaccinated ppl like myself are trying to still abide by Safer at Home protocols due to the high Covid #s. Everything I regularly need to do can currently be done from home.
I love your attitude. It seems like you've thought it through. Taking one step at a time sounds like the best path IMO. Knowledge is what helps us make decisions.

I had one fibroid which post-menopause grew which was of concern. You don't know yet what will happen as you are not in menopause yet. But the heavy bleeding does sound like perimenopause. I was in such a state at your age. One sneeze during a period and my pants were soaked with blood. It was a nuisance.

More recently, I was bleeding heavily post-menopausally, and felt anemic but blood tests didn't show it. I took iron anyhow. Was very fatigued and weak. I, as with you, took one step at a time. The word Hysterechtomy combined with the phrase Possible Cancer gave me a jolt. I thought not way, not me.

My one-step at a time included: blood tests, two types of ultrasound, a cervical biopsy, and an MRI. Due to covid each was backlogged. I first contacted the doctor November and the final operation was not until June.

The biopsy was negative, the ultrasounds were not conclusive enough as my bladder was hiding the fibroid. The MRI was to show it better.

In that time, my OBGYN was able to answer a lot of my questions by email. Not many do that so I REALLY appreciated it.

If you feel this is a good time for the recovery, that's good. Mine being delayed until June took away a lot of what I love to do in the summer. This is a good time of year (fall approaching).

What I discovered was my fibroid was actually the size of a grapefruit and was pressing on my bladder which likely was causing my urgent needs to pee. There may be some benefits you don't even know about yet.

I was surprised they do so many hysterectomies as I was sure they had other procedures these days, but they have to be careful if anything in there is cancerous not to spread the cancer. And for me, they wouldn't know if the fibroid was cancerous or not until it was removed.

All the best. Hope something I said helps.
  #7  
Unread 09-16-2021, 06:14 PM
Results are pointing toward Hysterectomy

  Quote:
Originally Posted by Dom Mel View Post
Sorry to hear they have to do another procedure to get the biopsy. So frustrating! There’s no harm in asking the surgeon and giving consent on the off chance tho might well depend on how many fibroids and how big they actually are.

I also considered and rejected UFE. In my case, it might have shrunk a melon to a grapefruit but that’s still a lot to be carrying around. Reading the some of the posts here for it, I also noticed a lot of hysterectomy dates several years later. Although most seemed happy that they’d given it a shot and we’re in a better headspace for the hysterectomy.

Best of luck tomorroww
Thank you for your experience!!

I have noticed a lot of the same thing you have as far as later hysterectomy dates with ablasion and UFE. I don't fault anyone for trying less invasive options with the hope of avoiding major surgery or for any other reason, but I am more of a one and done person as far as my goals. If ablasion or UFE would resolve my issues, I would be all for it. The experts are saying no though.

Meeting with the surgeon tomorrow at least should get some questions answered. And if ablasion is warranted based on what he finds, I really would love him to just do it since it will avoid anesthesia an extra time.
  #8  
Unread 09-16-2021, 06:19 PM
Results are pointing toward Hysterectomy

  Quote:
Originally Posted by Jammywammy View Post
I love your attitude. It seems like you've thought it through. Taking one step at a time sounds like the best path IMO. Knowledge is what helps us make decisions.

I had one fibroid which post-menopause grew which was of concern. You don't know yet what will happen as you are not in menopause yet. But the heavy bleeding does sound like perimenopause. I was in such a state at your age. One sneeze during a period and my pants were soaked with blood. It was a nuisance.

More recently, I was bleeding heavily post-menopausally, and felt anemic but blood tests didn't show it. I took iron anyhow. Was very fatigued and weak. I, as with you, took one step at a time. The word Hysterechtomy combined with the phrase Possible Cancer gave me a jolt. I thought not way, not me.

My one-step at a time included: blood tests, two types of ultrasound, a cervical biopsy, and an MRI. Due to covid each was backlogged. I first contacted the doctor November and the final operation was not until June.

The biopsy was negative, the ultrasounds were not conclusive enough as my bladder was hiding the fibroid. The MRI was to show it better.

In that time, my OBGYN was able to answer a lot of my questions by email. Not many do that so I REALLY appreciated it.

If you feel this is a good time for the recovery, that's good. Mine being delayed until June took away a lot of what I love to do in the summer. This is a good time of year (fall approaching).

What I discovered was my fibroid was actually the size of a grapefruit and was pressing on my bladder which likely was causing my urgent needs to pee. There may be some benefits you don't even know about yet.

I was surprised they do so many hysterectomies as I was sure they had other procedures these days, but they have to be careful if anything in there is cancerous not to spread the cancer. And for me, they wouldn't know if the fibroid was cancerous or not until it was removed.

All the best. Hope something I said helps.
I appreciate your message very much! I hadn't even thought there could be extra benefits that we haven't conaidered yet. That is a comforting thought for sure.

I am very thankful at how quickly things have moved for me, but it does make my head spin quite a bit. I was surprised by the anemia (shouldn't have been), and took a but to get my head around ablasion. Just as I did so, I had my ultrasounds and most.of the hope of that went out the window.

Having had your surgery in June, may I ask how you feel now?
  #9  
Unread 09-17-2021, 09:12 AM
Re: Results are pointing toward Hysterectomy

  Quote:
Originally Posted by Courtney999 View Post
I appreciate your message very much! I hadn't even thought there could be extra benefits that we haven't conaidered yet. That is a comforting thought for sure.

I am very thankful at how quickly things have moved for me, but it does make my head spin quite a bit. I was surprised by the anemia (shouldn't have been), and took a but to get my head around ablasion. Just as I did so, I had my ultrasounds and most.of the hope of that went out the window.

Having had your surgery in June, may I ask how you feel now?
I am doing well. I took it seriously first 4 week, by the end of week 4 was getting bored so did some light outdoor trimming of shrubs and drove where I needed to go. I was cleared to do normal stuff after 6 wks and did too much week 8 and had a setback in that my prostaglandins released an inflammatory response that felt like labor pain. I had to pull back, take a pain pill I still had, and lower my activity for a full week.

We become introspective trying to assess every little pain but it's hard to say if anything is surgery related. Like days of fatigue, for instance. I've always had that so likely just me.

I really was surprised how well I felt after relase. It was more discomfort, huge swelly belly, gas and bloating, constant hot flashes. I wore my belly belt almost all 4 weeks and then as needed. I put it on today as I ate pizza last night and feel my belly is bloated, so this supports gravity IMO.

Best wishes for all.
  #10  
Unread 09-17-2021, 10:22 AM
Results are pointing toward Hysterectomy

  Quote:
Originally Posted by Jammywammy View Post
I am doing well. I took it seriously first 4 week, by the end of week 4 was getting bored so did some light outdoor trimming of shrubs and drove where I needed to go. I was cleared to do normal stuff after 6 wks and did too much week 8 and had a setback in that my prostaglandins released an inflammatory response that felt like labor pain. I had to pull back, take a pain pill I still had, and lower my activity for a full week.

We become introspective trying to assess every little pain but it's hard to say if anything is surgery related. Like days of fatigue, for instance. I've always had that so likely just me.

I really was surprised how well I felt after relase. It was more discomfort, huge swelly belly, gas and bloating, constant hot flashes. I wore my belly belt almost all 4 weeks and then as needed. I put it on today as I ate pizza last night and feel my belly is bloated, so this supports gravity IMO.

Best wishes for all.
Thanks again for responding!! And I am so happy that you are doing well. I fear I will overdo and cause a setback too. I am not a person good at resting. Since this has come up as a likelihood, My husband and I have been working on all the projects that need to be done around the house so I won't be tempted to tackle any during recovery.

I went for my surgical biopsy today and I am so happy to say the surgeon felt it was unnecessary. He talked to my husband and I about all our options and his recommendation of a DaVinci robotic laproscopic hysterectomy leaving both ovaries as long as they are as healthy as they appear upon closer examination. We agree with him.

If he recommended hysterectomy, which no one was surprised by at this point considering he was doctor #3 to recommend it, this is the one I hoped he would choose and he has done over 1600 of them so I am very confident in his ability.

Is that the type of hysterectomy you had too? I see your ovaries were removed, but it was also laproscopic. How did your Dr feel about thr belly band? That is something I forgot to ask about at my appt today, but they said they are available phone and email.

They can't schedule the surgery anyway as all hospitals and surgery centers in our area are exclusively taking Covid patients. He is hoping to have me in by the end of the year. 80.surgeries are currently ahead of mme.

Working on figure out what prep I need to do and buy to be the most ready to make the quickest recovery that I can
Reply

booklet
Our Free Booklet
What 350,000 Women Know About Hysterectomy: Information, helpful hints as you prepare and recover from hysterectomy.
Answers to your questions
Register




Thread Tools

Forum Jump

Similar Threads
From This Forum From Other Forums
21 Replies, Last Reply 08-29-2019, Started By Sollicita
13 Replies, Last Reply 12-31-2016, Started By Danimarie526
2 Replies, Last Reply 12-28-2015, Started By lth
12 Replies, Last Reply 08-25-2014, Started By Queen Utereen
7 Replies, Last Reply 06-04-2014, Started By labchick9396
3 Replies, Last Reply 04-09-2014, Started By Carol99
7 Replies, Last Reply 01-21-2014, Started By CheerCoachTrish
6 Replies, Last Reply 10-30-2011, Started By Freakin45out
7 Replies, Last Reply 11-02-2010, Started By wenky
17 Replies, Last Reply 10-23-2007, Started By jinglejangle
10 Replies, Pelvic Floor and Bladder Issues
4 Replies, Hysterectomy Recovery (post hysterectomy)
6 Replies, Endometriosis Support
2 Replies, Pelvic Floor and Bladder Issues
66 Replies, Preparing for Hysterectomy (pre hysterectomy)
5 Replies, Hormone and Menopause Central
10 Replies, Aching Hearts
7 Replies, Hysterectomy Recovery (post hysterectomy)
4 Replies, Cancer Concerns - GYN
11 Replies, Hysterectomy Recovery (post hysterectomy)



Advertisement

Hysterectomy News

October 26,2021

CURRENT NEWS

HysterSisters Takes On Partner To Manage Continued Growth And Longevity
I have news that is wonderful and exciting! This week’s migration wasn’t a typical migration - from one set ... News Archive

TODAY'S EVENTS

Calendar - Hysterectomies - Birthdays


Request Information


I am a HysterSister

HYSTERECTOMY STORIES

Featured Story - All Stories - Share Yours

FOLLOW US


Your Hysterectomy Date


CUSTOMIZE Your Browsing  


$vbulletin->featuredvideos is not an array!
Advertisement


Advertisement