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Need information on endometriosis! Need information on endometriosis!

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  #1  
Unread 01-31-2002, 06:34 AM
Need information on endometriosis!

Hi Everyone!

I am in great need of information on endometriosis. My 26 year old daughter has been experiencing ovarian cysts since the age of 19. She has been on various pills such as ALESE and now she is on YASMIN. The problem she is having now are severe nose bleeds especially during PMS and her entire period, usually lasting 5 days. She had a visit with an ear, nose and throat doctor this morning and he asked her if she had ever been tested for endometriosis.

My hyster was done because of fibroids and I know nothing on endometriosis. Please help us out in answering a few questions: What causes endometriosis? Can you have nose bleeds because of it? What are the tests done to find out whether you have it? How is it treated? Does it generally wind up in having to get a hysterectomy?

Thank you all so much for your help.

Rebecca

TAH/BSO July 24, 2001 Fibroids and ovarian cysts
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  #2  
Unread 02-08-2002, 12:29 PM
there is lots of info. on the web

You should go to Yahoo and look up some endometriosis websites. There is a lot of good info. out there, but make sure you filter it. Not everything you'll read is 100% true.

To answer your questions...there are several theories as to what causes endo, but no one can say for sure, you can have nosebleeds because of endo if it infects the cartiledge of your nose, the only sure "test" that can tell you if you have endo or not is a simple surgical procedure called a laparoscopy, it can be treated a variety of different ways such as: watching it and doing nothing, hormone supression, surgical approaches, etc. , women with endo do not normally wind up having to have a hysterectomy for the simple fact that there is no cure for the disease, only ways to manage it.

If your daughter has endometriosis interna (also known as adenomyosis) then she will more than likely end up needing a hyst. because that is the only cure for adenomyosis.

I hope I have helped shed a little light for you and I'm sure some other sisters will be along later to give you their opinions.

Please keep us posted as to how your daughter is doing.
And give her from us.

If you or her would like someone to talk to, please feel free to contact me at working_4_endo@hotmail.com


Endo_Chic
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