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Unknown mass on cecum - UPDATE, endometriosis Unknown mass on cecum - UPDATE, endometriosis

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Unread 04-19-2021, 05:42 AM
Unknown mass on cecum - UPDATE, endometriosis

Hello , a CT Scan has found a 3cm mass on my cecum (where small intestine and colon meet) it could be endometriosis or it could be cancer.
I have to wait 10 days for a specialist radiographer to do a ultrasound and hopefully it's just endometriosis.
Has anyone had this experience?
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Unread 05-03-2021, 09:11 AM
Re: Unknown mass on cecum

Hi there, I'm sorry I missed this earlier. By now the 10 days are up - what was the conclusion of the radiologist?

I'm particularly curious about the findings because I recently had a blockage of the small intestine in the area before it entered the colon. I don't, however, have any personal insight into issues with the cecum.
Unread 05-03-2021, 02:29 PM
Unknown mass on cecum - UPDATE, endometriosis

Yes the mass is endometriosis.
I am going to see my gynaecologist to discuss hormone therapy to try to shrink the mass or else surgery to scrape it off the cecum.
If it is deep and there is a tear then that part of the bowel will have to be resected.
Both the gyno and the colorectal surgeon will do the surgery. Hopefully by keyhole not full laparotomy.
(Also found a cyst on one ovary and endo in vagina so they will be scraped too.
I might have ovaries and Fallopian tubes removed too)
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Unread 05-05-2021, 05:58 AM
Re: Unknown mass on cecum - UPDATE, endometriosis

I'm glad to read that the mass is not cancerous. I've moved your post to our Endometriosis Support forum in hopes that you will get input from our members who also deal with endo.

It does seem that endo can be a recurring issue. Have you sought the opinion of an endo specialist, or is your gyno a specialist? From what I understand, excision is the best solution for ending endo.

I know you joined us many years ago, but I don't know how much you've explored our site. In addition to this forum, we've got many articles on Endometriosis.

It's my hope for you that it doesn't come to surgery. Please keep us updated.

Unread 05-05-2021, 03:11 PM
Re: Unknown mass on cecum - UPDATE, endometriosis

Thanks for endo info.
I had my hysterectomy in 2011 but kept my ovaries. So it seems endo continued and is now a problem.
Unread 05-07-2021, 01:39 AM
Lightbulb - Unknown mass on cecum - UPDATE, endometriosis Re: Unknown mass on cecum - UPDATE, endometriosis

Hi, we may be talking about the same area as the Cecum is the 1st part of the large Intestine, wher the small intestine joins it.
How was your blockage treated? Hormone therapy to shrink it or keyhole surgery to excise it? thanks
Unread 05-12-2021, 07:42 AM
Re: Unknown mass on cecum - UPDATE, endometriosis


I had stage 4 Endometriosis and also had some in that spot. I have had 2 excision surgeries and a hysterectomy with the 2nd one. I recommend finding an Endometriosis specialist who does excision. Most gyno's do not know how to properly treat endo and hormones and ablation are not the gold standard. The only way to truly remove endo is with excision. I recommend looking up Nancy's Nook on Facebook and reading "The Doctor will See You Now," by Dr. Tamer Seckin. I found that the better informed you are the better you are able to figure out the best options for you and to advocate for the best treatment. It took me 8 providers before I got a proper Endo diagnosis and a doctor who aligned with my research and how to go about treating my endo. My goal in life is to prevent anyone from going down the rabbit hole of proper treatment and information about endometriosis. There is a lot of mis-information out there- especially among doctors.
Unread Yesterday, 11:33 AM
Re: Unknown mass on cecum - UPDATE, endometriosis

I have had endometriosis and had all my female parts removed (total hysterectomy). Was told that it was on my intestines and maybe bladder. No one told me that it feeds off of estrogen, I found that out the hard way when I ate flaxseed bread and got sick. When I did research, 6 out of 6 articles said that flax topped the list of foods high in natural estrogen (soy and gluten were next-respectively). I had already cut out gluten due to celiac disease. After that incident, I decided to cut out foods that were high in natural estrogen, something that usually happened the hard way, which forced me to research.
Finally when I asked my ob/gyn he said that some endo. produces its own supply of estrogen.
So I would be careful about HRT. Usually they contain estrogen, and that would make it grow, not shrink. The best method is to get it excised.
There is an 'endometriosis diet' (if you want to call it that). To avoid inflammatory foods like chocolate, sugar, caffine and for me gluten. I don't know if gluten is an inflammatory food for everyone with endo. or not. I know that the 4 friends that have endo. diagnosed, one has celiac disease, one cannot eat any grains at all, and the others are wheat sensitive. My current ob/gyn (I've gone through 3 of them), put me on an anti-inflammatory diet, including omega 3, and it did help a lot.

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