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Upcoming hysterectomy (TLH) 2/2 with *large* fibroids Upcoming hysterectomy (TLH) 2/2 with *large* fibroids

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  #1  
Unread 01-08-2021, 10:27 AM
Upcoming hysterectomy (TLH) 2/2 with *large* fibroids

Hi ladies - So, my doctor has gone over my MRIs and even sent me for a blood test that can help diagnose sarcoma v. fibroids and is confident they are all benign fibroids. She is confident she can do my hysterectomy laparoscopically despite the size of my fibroids and uterus. To be extra cautious she wants to do a mini lap where she'll do the surgery laparoscopically and then do a ~4cm c-section incision to remove everything after only cutting things up slightly (inside a bag) rather than cutting them into many small pieces. (They do not do power morcellation, only contained hand morcellation). The alternative would be a 20+ cm vertical incision, which I absolutely want to avoid.

Has anyone had a TLH with a very enlarged uterus? Or this hybrid type surgery? I have a great deal of trust in my surgeon and her team. This is what they specialize in and she said she'd not attempt this if she didn't think it was appropriate and possible. But, I'd still love to hear other people's experiences! I know there is always a chance the approach could change once I'm in there, but I do love the idea of trying the least invasive method possible.

I also have a very large cervical fibroid that makes the surgery a bit more complicated around the ureters. Has anyone else had a large cervical fibroid?

Thanks!
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  #2  
Unread 01-09-2021, 04:00 AM
Upcoming hysterectomy (TLH) 2/2 with *large* fibroids

and greetings from a fellow fibroid sister!
My surgeon had originally planned to do an LAVH because he wanted to avoid morcellation in light of a small cancer concern, among other things, but I pushed for a supracervical approach because my research indicated that it would be more appropriate for my individual situation. We discussed it at our next meeting, and settled on LSH, with power morcellation done inside a bag, which turned out quite well. Because the surgery was done less invasively, it and my recovery were relatively uncomplicated. However, regardless of how it's done, you're still having an organ removed from your body, with multiple sets of blood vessels and connective tissues cut and sewn or cauterized, and full recovery needs to be thought of in weeks, or even months; you'll be given specific instructions for your recovery, which you'll need to follow to avoid any complications. Best wishes for a successful surgery and a smooth recovery!
  #3  
Unread 01-16-2021, 07:49 AM
Re: TLH with *large* fibroids

I had an LSH rather than a TLH (tons of large fibroids but none on the cervix so I chose to keep it). But, my uterus was very large at 23cm and my surgeon was able to do it laparoscopically, with the mini lap so he could bag and morcellate. I was also really worried about them having to convert it to a large vertical incision in the middle of surgery, but that was not the case, and all went well! Good luck!!
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  #4  
Unread 01-16-2021, 08:05 AM
Re: TLH with *large* fibroids

  Quote:
Originally Posted by Abh387 View Post
I had an LSH rather than a TLH (tons of large fibroids but none on the cervix so I chose to keep it). But, my uterus was very large at 23cm and my surgeon was able to do it laparoscopically, with the mini lap so he could bag and morcellate. I was also really worried about them having to convert it to a large vertical incision in the middle of surgery, but that was not the case, and all went well! Good luck!!
Thank you! How has your recovery been? I know mine will be a bit different with the cervix removed. I've been finding a lot of women with this approach recently, which is nice. I hadn't really heard of it before my surgeon suggested it. The first surgeon I saw wanted to do a long vertical cut with no negotiation. I've had a long vertical cut before, for an emergency myomectomy, and I definitely want to avoid that!
  #5  
Unread 01-16-2021, 09:23 AM
Re: TLH with *large* fibroids

I know that not having to deal with a vaginal cuff made everything easier, but my recovery has been excellent--absolutely zero complaints! The mini lap was the most difficult part, and it really wasn't bad at all (certainly nothing compared to the long vertical cut you've already experienced). I'm 6 months out now and wish I'd done it a decade ago. Not having periods (especially horrible, debilitatingly painful ones thanks to fibroids) is the best!
  #6  
Unread 01-19-2021, 04:35 PM
Re: Upcoming hysterectomy (TLH) 2/2 with *large* fibroids

Hi, I had a 2 pound fibroid attached to my cervix. Its was benign and a very easy surgery from me. Divinci lap they used bag not to spread "if there was signs of cancer" The only pain I experienced was the gas bubble and it was horrible my hubby went and got me vicks vapor rub and rubbed in my shoulder where the pain was and it went away. I was out and about in 1 week rode roller coaster in two weeks. My dr was also a specialist who used advanced recovery. No pre prep for surgery and I consumed protein drinks before. Did not need pain meds. Only motrin and ibuprofen I am coming up on my year Feb 21st.

All i can say is research your Dr. I interviewed more than 6. Even one in baltimore
  #7  
Unread 01-19-2021, 04:35 PM
Upcoming hysterectomy (TLH) 2/2 with *large* fibroids

  Quote:
Originally Posted by erinkc View Post
Hi ladies - So, my doctor has gone over my MRIs and even sent me for a blood test that can help diagnose sarcoma v. fibroids and is confident they are all benign fibroids. She is confident she can do my hysterectomy laparoscopically despite the size of my fibroids and uterus. To be extra cautious she wants to do a mini lap where she'll do the surgery laparoscopically and then do a ~4cm c-section incision to remove everything after only cutting things up slightly (inside a bag) rather than cutting them into many small pieces. (They do not do power morcellation, only contained hand morcellation). The alternative would be a 20+ cm vertical incision, which I absolutely want to avoid.

Has anyone had a TLH with a very enlarged uterus? Or this hybrid type surgery? I have a great deal of trust in my surgeon and her team. This is what they specialize in and she said she'd not attempt this if she didn't think it was appropriate and possible. But, I'd still love to hear other people's experiences! I know there is always a chance the approach could change once I'm in there, but I do love the idea of trying the least invasive method possible.

I also have a very large cervical fibroid that makes the surgery a bit more complicated around the ureters. Has anyone else had a large cervical fibroid?

Thanks!
Good evening. I’ve been in a similar situation, so hopefully I can help ease your mind. I had 8 fibroids, the largest one measuring 8 cm, with some having clusters growing from them. (THaNKFULLY, all the reports came back non-cancerous!) My uterus was 600cc, which according to my doctor, was on the border of him not being able to perform the hysterectomy laparoscopically. I was terrified to hear my dr say he may have to do a vertical incision from my belly button to the hair line. Just as I had to do, you have to trust your doctor’s professional opinion. (I know that’s not easy!) Thebolan was to leave both of my ovaries, but he had to take the right one because it had a fibroid growing around it. I had two small incisions (less than 1”)-one on either side of my abdomen. I also had a cut inside my belly button and extending down about 1”. (That cut was where he bagged my uterus and pulled it out.)
Tomorrow will be six weeks from my surgery date. It really did take a while for me to be able to have energy/strength to get on with simple tasks. Naps are required! (Haha, but I’m really not kidding. Schedule naps, at least for the first week or so.)
Research the topic, but don't dwell on your upcoming surgery so much that it takes the joy out of your today. Give yourself plenty of time to recover. Make sure you have a good support system at home to help with chores and errands. (You probably won’t even feel like riding in a car for a few weeks.) My prayers are with you! GOD bless you!
  #8  
Unread 01-19-2021, 04:39 PM
Re: Upcoming hysterectomy (TLH) 2/2 with *large* fibroids

Hi there,
No matter what type of surgery you have you will need a time of full recovery of 6 months. It takes that long to feel comfortable to go back to your normal routine. This is a major surgery and the body needs time to heal. Whatever you do, please don’t lift, pull, push and rest for months. For me, it worked and I am now almost seven most post op, I still take it very easy.
I just want to say how happy I am since my total hysterectomy. It’s a life changing experience and the path for wellness and happiness.
Good luck!
  #9  
Unread 01-19-2021, 05:33 PM
Re: Upcoming hysterectomy (TLH) 2/2 with *large* fibroids

What you are referring to is the methodology, you may have a few scars, some very small other larger, but it is still a hysterectomy and the recovery will be the same as most.
  #10  
Unread 01-19-2021, 05:42 PM
Upcoming hysterectomy (TLH) 2/2 with *large* fibroids

I had an enlarged uterus and 2 very large fibroid tumors, one 5” and one 7”, on the lower left side of my uterine wall. I had all except my ovaries removed. My Dr said she would attempt to remove everything laparoscopically through the vaginal canal but warned me that she may need to make a small incision, similar to a c-section, if she was unable to. I was lucky enough that she was able to remove it without that incision. Good luck!

  Quote:
Originally Posted by erinkc View Post
Hi ladies - So, my doctor has gone over my MRIs and even sent me for a blood test that can help diagnose sarcoma v. fibroids and is confident they are all benign fibroids. She is confident she can do my hysterectomy laparoscopically despite the size of my fibroids and uterus. To be extra cautious she wants to do a mini lap where she'll do the surgery laparoscopically and then do a ~4cm c-section incision to remove everything after only cutting things up slightly (inside a bag) rather than cutting them into many small pieces. (They do not do power morcellation, only contained hand morcellation). The alternative would be a 20+ cm vertical incision, which I absolutely want to avoid.

Has anyone had a TLH with a very enlarged uterus? Or this hybrid type surgery? I have a great deal of trust in my surgeon and her team. This is what they specialize in and she said she'd not attempt this if she didn't think it was appropriate and possible. But, I'd still love to hear other people's experiences! I know there is always a chance the approach could change once I'm in there, but I do love the idea of trying the least invasive method possible.

I also have a very large cervical fibroid that makes the surgery a bit more complicated around the ureters. Has anyone else had a large cervical fibroid?

Thanks!
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