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No Surgery/ Long and Detailed Message No Surgery/ Long and Detailed Message

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Unread 01-14-2002, 07:38 PM

Sorry, I had to jump off the 'Puter...

Anyway, Lydia, you DESERVE better treatment than that!

I had to fight for 8 years to get this done. I faced Dr.'s who believed that my only purpose on this earth was to squeeze out kids like a Pez dispenser. The Gyn before this one said that "32 is too young to *******e" to my Mother's face the day after he SHOULD have taken it out.

Yes you'll get tired. Yes you'll get frustrated. Yes you'll want to rip them a new ***hole, but... The fight is worth it in the end.

Consider writing this New Dr. a leeter explaining exactly how your life is. I know you've told him in the office but there are things you forget and there are things HE forgets. If you write it down (and you are a VERY gifted writer) he'll have a concrete statement on how your condition makes it impossible for you to live.

Heck, if I could exercise I would be a heck of a lot thinner. As it is I have no ENERGY to do it! So you have to show him what a LOSE/LOSE situation you're in and what a Hysterectomy would do for you.

We're here for ya

Cyster Ter :dragon:
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Unread 01-15-2002, 06:28 AM
No Surgery/ Long and Detailed Message

I totally AGREE with all the sisters.. This doctor is a jerk. I'm soooo sorry that you've had to endure the pain of dealing with such, in regarding too your health & the surgery. Please if at all possible, seek another doctor. This is an outrage what you've had too deal with and there must be someone in your area that can assist you? I shall keep you in my prayers. Don't give up... Keep fighting the good fight of FAITH!!!

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Unread 01-15-2002, 06:40 AM
No Surgery/ Long and Detailed Message

You have been given a lot of good advice here.
I can only offer this:

Consider seeking a female OB/GYN.

It may seem unfair to male OB/GYn's, but I have had both male and female providers, and feel even the best male GYN can only guess at what you are feeling.
A female doctor may provide a better partner in your care. At least she is more likely to have empathy,and not be paternalistic.

You are a CONSUMER- you have a choice. If you have insurance restrictions, you have a right to have your needs addressed promptly.
We often forget that the professionals we have involved in our lives by necessity are there at our choosing. And WE pay THEM!!!

You are an eloquent writer. Use your talent to find the right health care provider for you.
Ask your friends, use the internet. Ask nurses you might know. Get the word out that you need a new and improved doctor!
Most women are happy to pass along the name of a terrific GYN.

Please let us know how things go for you.

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Unread 01-15-2002, 07:02 AM
No Surgery/ Long and Detailed Message

Just a word of advice based on my experience and in response to some of the other posts, a female doctor is not always the answer. My doctor (male) retired and his replacement was a female. When I had been bleeding for 6 weeks non stop, she put me on a medicine (I forget what it was) that caused me to have such severe migraines that I had to go to the emergency room. I get migraines often and take Imitrex, my "miracle" drug for them, but this was the granddaddy of all migraines. When I went in to see her while I had the migraine, she told me, "well, looks like you are just going to have to stick it out and hope that the bleeding stops on its own."
A week later it had not stopped and I called her office. She was out of town and they referred me to another doctor, a male, who took me in for an immediate d&c, which stopped the bleeding and which showed that I had a precancerous condition. He performed by hyst a few weeks later.
My point is that there are good male doctors and bad ones and good female doctors and bad ones. As one of the other posts said, we are consumers, and it is our job to find the best one for us. Maybe doctor number 13 will be the one for you!!
Best of luck to you.
Unread 01-15-2002, 07:24 AM
hi lydia

I am sorry to hear about all your problems. I know how miserable endo is. Believe me... I was wondering who did your surgery to find your endo..That qualifies as surgery too!!

I am 24 years old and just had a hyst on Jan 3 2002. I have a latex allergy that was no prob whatsoever. They just put a special bracelet on me and a big green sign on my bed and door to my room and used non latex products on me. Your doc is a idiot if he does not know that. *punch*

There is a special place in georgia that is a endo specialty place...They offer more options and I figure that you would get better treatment there. They also try to save you from Hyst. If possible. But they can help you. I will look up that site and re post when i find it.

Good luck and i hope all goes well...


Abdominal hyst on 1-3-02 Kept ovaries and tubes

Endo and PCS ~ pelvic congestion syndrome

It is a long hard road but you will make it to the end... I know it really does not seem like it right now..Just pray
Unread 01-15-2002, 05:01 PM

Well sisters:

I am still here,just barely hanging by a thread.. I wish i could give you all a but i guess this will have do ((((group hug to my sisters))))))

I can't tell you how much the advice, cyber hugs, prayers, suppport mean to me.

I have gotten so many replies. I know that if i keep coming for support then i can keep fighitng with all my vital energy i have left.

Found out today, i mean yesterday, i have to have total knee replacement on both knees.,but later on because i am too young. Doctor says have the knees of a 50 year old person.

I said to myself what else can go wrong...My Endometriois novel is coming along quite well, it helps me with a little solitude in my life.

I say another two months it should be ready. Keeps me focused on other things other than the pain i have day in and day out.

Well, i will be keeping you posted.
Take care and hope everyone is doing well
Unread 01-15-2002, 09:13 PM
No Surgery/ Long and Detailed Message


I am so sorry to hear all that your going through. You have found a wonderful site and we are all here for you. Please dont give up keep fighting for yourself. Its your body and you have the right to make the decisions that you want. Have you tried seeing a female doctor? I am lucky that my doctor (male) understood that even being childbearing age and having no kids I could no longer go through the bleeding and pain. I am also overweight. I had tried the pill as well as having a D&C and other surgeries to correct problem with no success. I was mentally drained and didnt know if I was coming or going. I am now pain free and feel great. You deserve to feel the same.

Unread 01-15-2002, 10:32 PM
No Surgery/ Long and Detailed Message


Sorry you are having knee problems too. Yikes...

Back to the hyst thing... I forgot to mention earlier the magic words that finally got me the help I needed: "It's gotten so bad I've had to quit working." (I love my work, and have my own company - just me, and I had to shut it down and turn all my clients away.) Somehow that was suddenly something my doctor could understand, and she referred me to a gyn on the spot, who referred me to the gyn who helped me.

About M/F docs... I had a male gyn for ages. Great guy. When he retired I went through a series of female gyns, all of whom were useless, and completely unsympathetic. My current gyn, the one who did my hyst, is male, and is a wonderful, caring person, who really seemed to get the impact these problems can have one women. I sometimes wonder if female gyns figure they put up with a little cramping, so we should be able to tough it out too. Let's see them do a 2 hour surgery when they are flooding! Anyway, that's just my two cents...

Again, best of luck!
Unread 01-16-2002, 07:27 AM
Write your symptoms down and present to dr.

I have to add I just saw a post yesterday that one person had finally got her hysterectomy after her dr. said "half of getting a hysterectomy is convincing the dr."

Take a list of your symptoms written down and try to keep it short/easily readable with what was going on despite embarrassment. You have nothing to remember since it's written down. Sometimes if they see it in writing rather than you telling him about your symptoms it may turn on a light. I was specific getting to the symptoms...(example below) I didn't have to convince him though since he mentioned hyst the year before after I tried alternate routes of numerous pills to no help. It has to be rough to continue suffering.

Going through a super tampon and pad in 20 min
Taking vicodin every 4 hours
Missed work/ school because pain was to bad
Bladder pressure can't empty
Pills/hormones don't help as I tried many different ones and got terrible side effects high b.p. headaches.
(you could add) No desire to exercise because in to much pain and can't be away from a bathroom more than x amount of time.

Although I was not set on a hysterectomy I asked him what my options (I had two) were and he explained them to me after a test and pretty much left the decision up to me. Once I decided the surgery got scheduled. I have also had great luck with my new dr (male) and wouldn't have it any other way.

I'm suprised your dr. hasn't given you anything for the pain. Have you asked for any pain meds?
Has the pills/ hormones helped at all?
Was the endo removed previously?
Good luck in finding a new dr.

I wonder if they did anything to you for endo previously. See Adrite's response at this link.
(posted by Adrite at the link)
"You may need an expert to remove the endo.
If this doctor is 100% sure he removed ALL of the endometriosis implants (which I don't know how he'd know that) along with your uterus/ovaries, then he may be right. However, if he is NOT an expert in removing endometriosis implants and identifying them - you run the risk of hyperplasia and overstimulation of endometriosis implants.
This is what I know: Removing healthy organs (your uterus/ovaries) does not CURE endometriosis. It sometimes puts the disease into remission, but does not cure it. And only puts it into remission if you find the proper balance of hrt."
Unread 01-19-2002, 07:18 PM
I see the definition of true idiocy ...

in these words:

"Then is the good part, he tells me i should consider getting pregnant now. I told him,, how can I even think about something like that at a time such as this? He says, well at least 9 months i will be pain free..I was steaming mad by this point and tears streaming down my face,then i said, after 9months,what is going to happen? Who is going to take care of my baby and me..? Well, he says, that is a point? "

A quote by Dr. Laura Schlessinger:

"Here's my notion of the single appropriate rationale for having a baby: You and another adult, committed partner (i.e., spouse) have the interest, intent, ability, and means to make the necessary sacrifices of time, attention, and resources to give that child the nurturing, security, support, love, and education he or she needs! Procreation has little to do with your needs; it has everything to do with your child's needs."

I think that about says it. What is this nut dreaming?????

You know, my mother had an injection that stopped her endo pain for a while. Sadly, I do not recall the name. I will ask and post back. This stuff basically puts you into menopause for a few months and so the endo stops growing and you feel better. It can give you hot flashes. Unfortunately it also causes osteoporosis so they do not let you take more than 2 or 3 of the injections. In my mother's case she was already so close to menopause and having hot flashes anyway so it didn't matter so much.

Went to a meeting today about dietary supplements that help relieve symptoms of some women with reproductive problems. No guarantees, heh.

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