Desperate for help, abnormal cervical cells, but cervix was removed (7 months post hysterectomy) | HysterSisters
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Desperate for help, abnormal cervical cells, but cervix was removed (7 months post hysterectomy) Desperate for help, abnormal cervical cells, but cervix was removed (7 months post hysterectomy)

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  #1  
Unread 10-13-2021, 06:10 PM
Desperate for help, abnormal cervical cells, but cervix was removed (7 months post hysterectomy)

Hello im 7 months post-op. I had a full hysterectomy they took my uterus, cervix & fallopian tubes. .left my ovaries..I have a cuff because the cervix was removed. I had a hysterectomy because I had a fibroid that was growing rapidly. When they removed it the fibroid was 15cm. I had cancer back in 2008 (stomach cancer) so my gyno thought having a gyno oncologist would be my best bet to have the surgery. I couldn't have laposcopic surgery because the fibroid was too big so I was cut for my surgery. Everything was sent out for biopsy and all came back benign. I was discharged as a patient of the oncologist and cleared to go back to my original gyno. I just had my annual pap. The PA that did my pap kept digging in my vagina looking for my cervix! I said I do not have a cervix! She said well sometimes the dr leaves it! I know what the reports said about MY body! Fast forward now to the results. I get a call from the gyno stating my vaginal pap is normal, hpv normal but they see abnormal cervix cells! Im besides myself! How does this happen? I have spoken to the gyno and they said sometimes the dr leaves the bottom half of the cervix when they cuff u. I said they did NOT leave any of my cervix! They insisted that I have some of my cervix still there if im testing for abnormal cells and I will need a biopsy. I called the oncologist to make sure how the cuff was done. They told me the cervix it GONE no piece was left with the cuff. Im now waiting on my regular gyno office to call me back after reviewing my chart. I feel like im going crazy... had anyone ever had this happen? No cervix but abnormal cervix cells on a pap!? I asked if it could be detecting no cervix as abnormal and they said no. Who do I believe? I'm scared! The oncologist said all was benign. I hope this makes sense and someone can relate. Im so confused. Ive had all other testing and all was neg...std testing
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  #2  
Unread Yesterday, 04:53 AM
Re: Desperate for help. Please read

First of all... deep breaths. Abnormal paps happen. I retained my cervix and recently had a finding of ASCUS, but also HPV negative so no follow up is scheduled. While I'm aware of it, the best thing for me to do is not dwell on it or it'll rule me for the next 10 months.

Have you released your surgical records to your regular gyn and your recent Pap results to your gyn-onco surgeon? They need to share their procedures and findings with one another. I'm not sure how you might still have cervical cells either, other than there is no "cut on dotted line" in our bodies. Medicine is a practice, not an exact science, and pieces of things may be left behind even though they think they got it all.

If you do somehow do still have cervical cells, what would your gyno's advice be? I would be tempted to schedule another vaginal smear after your two doctors have their conference... and have it done by the gyno. Another option would be to schedule an appointment with your gyn-onco for follow up.

This is no doubt unusual, and while it's easier said than done, try not to rush ahead to a self-diagnosis or the worst case scenario going on in your head. Stay on both doctors' radars via patient portal while giving them a little time and space for consulting with one another, and accept that figuring this out will have to be one step at a time.

Please do update us and keep us informed of the findings and followups. You can always come back to this post by clicking "My Posts" in the blue Nav bar at the bottom of any screen.

  #3  
Unread Yesterday, 05:37 AM
Re: Desperate for help, abnormal cervical cells, but cervix was removed (7 months post hysterectomy)

Not sure my reply posted?
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  #4  
Unread Yesterday, 05:38 AM
Desperate for help, abnormal cervical cells, but cervix was removed (7 months post hysterectomy)

Hello! Thanks so much for ur reply. Hopefully I'm responding in the right area for you to read. Both drs have access to each other's findings. Makes sense what you said about the "dotted line" I've thought the same. My gynos advice was to have a biopsy but because they thought the surgeon left the bottom part of my cervix. Now that I brought to their attention this wasn't the case the nurse was confused as she pulled all my paperwork and said "ur right u don't have a cervix i don't have an answer" she gave all of my paperwork to one of the gynos who has been there forever he said he will read everything and get back to me. He was supposed to call yesterday and did not hoping I'll get a call today. I'll keep everyone posted. Thanks again
  #5  
Unread Yesterday, 08:01 AM
Re: Desperate for help, abnormal cervical cells, but cervix was removed (7 months post hysterectomy)

I had my hysterectomy for a similar sized fibroid. My surgeon told me at the follow up that the fibroid had been so large, it had pushed my uterus up and stretched my cervix so that it was elongated. That meant that when he removed it, he couldn't entirely guarantee that he'd got all of the endocervix as it wasn't as distinct as it usually is. He's suggested that I continue with smear tests as a result. I'll be really interested in what your docs say for future reference for myself.
  #6  
Unread Yesterday, 09:07 AM
Desperate for help, abnormal cervical cells, but cervix was removed (7 months post hysterectomy)

Hi... thats for responding. I called my oncologist surgeon and they confirmed that the dr took it all. But like the other post above there's no dotted line. But im not sure how they can say they took it all without taking it all... im stressed because none of it makes sense really. What happens to someone where there's no dotted line and they tell someone we took it all no need for paps and they didn't really take it all? I will keep u posted
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