EndoCa: Did anyone else have endo cancer in family prior to your diagnosis?

Hi All,
Just wondering if anyone had other family members who had a hx of endo cancer prior to their diagnosis? I know my family has a hx of other cancers, but not endo cancer. Is this something I should discuss with my family/relatives so that they may be more aware? I don’t want to scare them but there is a possibility right??
Thanks

My mother and aunt had it, which triggered my Dr to get a genetic consult for me, for Lynch Syndrome. It was negative fortunately. But except for that connection they said it doesn’t usually run in families. The three of us all had it anyway.

Thank you for your response. I never thought I'd be diagnosed with cancer. Early detection saved me.

I never thought I’d have cancer either, especially not a GYN cancer. I’m lucky it was caught early, too. It was shocking to me but I guess that’s true for most.

Yes, my grandmother died of it, my mother had a full hysterectomy very young, and my cousin died of it as well, very young.

I had already had a myomectomy about 9 years ago, and within a year, the fibroids were all back, I decided it was time for the full hysterectomy as well.

I had just gotten home from my honeymoon right before the Myomectomy, so it was good to give some time in the hopes that we could have a child together. But after years of trying, realized it was time for the full hysterectomy. I did that last year and feel much better now.

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Originally Posted by greyown My mother and aunt had it, which triggered my Dr to get a genetic consult for me, for Lynch Syndrome. It was negative fortunately. But except for that connection they said it doesn’t usually run in families. The three of us all had it anyway.

I noticed that your hysterectomy was in 2009. Genetic testing has come a long way since then and new mutations and variants have been added to the Lynch syndrome testing. Since you have such a strong family history, it may be smart to get updated genetic testing.

My mother, grandmother, and aunt had endometrial cancer (as well as other cancers). We have Lynch syndrome (MSH6 mutation).

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Originally Posted by Joan E. Hi All, Just wondering if anyone had other family members who had a hx of endo cancer prior to their diagnosis? I know my family has a hx of other cancers, but not endo cancer. Is this something I should discuss with my family/relatives so that they may be more aware? I don’t want to scare them but there is a possibility right?? Thanks

Joan,

Were you tested for Lynch syndrome? I have Lynch syndrome and my family’s cancer history is very typical of a family with Lynch syndrome. You didn’t mention which cancers ran in your family. Lynch syndrome can include any cancer, but the most common ones are endometrial, ovarian, colon, small intestine, stomach, ureters, kidneys, bladder, adrenal glands, pancreas, liver, gallbladder, bile ducts, breasts, brain, spine, skin. In my family and many other Lynch families, thyroid cancer is also included. If cancer tends to strike younger than normal (before age 65) in your family, the same cancers are repeated, multiple generations have had cancer, or family members have had multiple primary cancers, genetic testing is a good idea.

Even if no gene mutation is found, I think it is a good idea to talk with family members about your cancer. It will help them to be more proactive with their own health. I hope that you are recovering well from your surgeries.