I知 struggling to manage heavy bleeding & clots til June. Would love positive tips how to manage :) | HysterSisters
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I知 struggling to manage heavy bleeding & clots til June. Would love positive tips how to manage :) I知 struggling to manage heavy bleeding & clots til June. Would love positive tips how to manage :)

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  #1  
Unread 04-16-2021, 08:36 AM
I知 struggling to manage heavy bleeding & clots til June. Would love positive tips how to manage :)

Hi All,
I was originally scheduled to have my hysterectomy this morning but my surgery has been postponed until June. I may have extensive endo so a specialist will be performing the surgery. My bleeding is very heavy with very large clots. It seems that a submucosal fibroid is the cause. In the past year my body has rejected two iuds, nexplanon and Norethindrone. Somehow I have not become anemic which I am very grateful for! My obgyn said we could try birth control pills again for the short term or Lysteda but I am weary of the side effects.
Does anyone have any recommendations for me? I am struggling and don稚 even want to leave the house these days because Of the heavy bleeding and clots. I really wanted to have a bunch of fun with my kids before my surgery and I知 just not up for anything. Really appreciate any recommendations or positive stories to get me thru to June! Thanks SO much!
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  #2  
Unread 04-16-2021, 07:54 PM
Re: I知 struggling to manage heavy bleeding & clots til June. Would love positive tips how to manage :)

Hi Dkris -

I am sorry you are going through this and have to wait for your hysterectomy.

I wish I could help you out, but I do not have any experience with this at the level you describe. I would have suggested talk to your doctor to see if bc pills are an option, but, understandably, you are weary of the side effects. At times, the cure can be worse than the disease.

We do have many women on this site, so hopefully someone that does share your problems will see this post and respond.

in the meantime.

  #3  
Unread 04-17-2021, 06:18 AM
Re: I知 struggling to manage heavy bleeding & clots til June. Would love positive tips how to manage :)

Thank you for your kind words! I am going to try the Lysteda. Fingers crossed!
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  #4  
Unread 04-17-2021, 12:18 PM
Re: I知 struggling to manage heavy bleeding & clots til June. Would love positive tips how to manage :)

Hi Dkris -

Hopefully Lysteda can make this manageable for the next two months without the side effects being too terrible. It seems like forever, but June will be here soon.

  #5  
Unread 04-17-2021, 06:13 PM
Re: I知 struggling to manage heavy bleeding & clots til June. Would love positive tips how to manage :)

Hi Dkris,

I am so sorry for your surgery delay. Very understandable that you want to enjoy your time between now and your hysterectomy date. I don't know anything about Lysteda and the possible side effects. Before my hysterectomy I was on many different kinds of Birth Control pills which from my experience is they took a few months to regulate my heavy period. So not sure that they would help short term for you. I did have luck with Lupron Depot monthly injections that put me in a medical menopause state. You could check in with your doctor to see if that would be an option for you.

Wishing you the best in the months leading up to and on your surgery date.
  #6  
Unread 04-17-2021, 07:41 PM
Re: I知 struggling to manage heavy bleeding & clots til June. Would love positive tips how to manage :)

Thanks so very much!
  #7  
Unread 04-19-2021, 11:43 PM
Re: I知 struggling to manage heavy bleeding & clots til June. Would love positive tips how to manage :)

I feel ya! I had large clots, heavy floods of bleeding and prolonged bleeding. I recently bled from November through the end of January. Had my surgery in February and I知 so relieved. I feel like now is the time to celebrate Hormones/birth control were not an option for me. I was so run down from anemia and the anxiety of loosing blood for so long and the amount, I wasn稚 up for anything exciting. I feel so much better now having had it removed and no more bleeding! To deal with the loss of blood, I ate red meat regularly, drank lots of extra fluids and was conscious to keep up my salt intake. I also tried to keep moving. Though I was pretty weak, I made an effort to go fornwalks and try to keep as active as I was able.
  #8  
Unread 04-20-2021, 06:41 AM
Re: I知 struggling to manage heavy bleeding & clots til June. Would love positive tips how to manage :)

Thank you! I am so glad to hear that you feel better- it really gives me hope that this won稚 be forever. Hope your recovery has been smooth. I definitely need to get out for more walks. It痴 a struggle to get up and get moving. Did you find like waiting the months until your surgery felt like forever or did it fly by? I am trying to keep myself busy with getting things done around the house. I don稚 want to wish time away but on the other hand I can not wait for June!
  #9  
Unread 04-20-2021, 08:54 AM
Re: I知 struggling to manage heavy bleeding & clots til June. Would love positive tips how to manage :)

I have to say the time did fly by. My surgery was scheduled pretty quickly at that point. only had two weeks to prepare and wasn’t able to get all the things done I had hoped. Everything did go smoothly with my surgery, I was home the same day. June will be here before you know it!
  #10  
Unread 04-20-2021, 11:28 AM
Re: I知 struggling to manage heavy bleeding & clots til June. Would love positive tips how to manage :)

Thank you! Wishing you continued healing and a super fun spring/summer!
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