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hysterectomy, hormones, & migraines hysterectomy, hormones, & migraines

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Unread 06-04-2012, 08:23 AM
Re: hysterectomy, hormones, & migraines

I am so sorry to hear of your suffering! I have had migraines for 20 years now, and since my hysterectomy five years ago, they have gotten worse.
I currently am in the care of a migraine specialist who is one of only a handful in the nation!!
You may find his book helpful. "The Migraine Solution", by Paul Rizzoli, Elizabeth Loder, and Liz Neporent.
I have been on topamax for 3 years, and it has helped me tremendously, but after about 2 years, it seemed to have lost effectiveness. My doctor advised me to up in dosage, and also, prescribed me something I'd never heard of for migraine.... amitriptyline.
Amitriptyline is actually an antidepressant, but when taken at low doses, as in 10-25 mg, it acts as an migraine preventer.
It completely stopped a 3 month migraine I'd had!!
The only side effects I had were drowsiness, (you take it 2 hours before bed) and anxiousness. The anxiousness was from some underlying problems that I didn't deal with (thought I had), and the medication brought it out.
I hope you feel better.
Surgery for migraine may not be a good solution. Make sure you have another opinion before you decide.
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Unread 06-04-2012, 09:28 AM
Re: hysterectomy, hormones, & migraines

I suffered very debilitating migraines since I was 14. Was under the care of a wonderful neurologist who helped control them but could never get rid of them. We found my trigger was my hormone monthly cycle. Specifically progestin. He said this is extremely common culprit in women of child bearing years or who are on birth control pills or hrt. Long story short, I did have a tvah a year ago. My migraines have SLOWLY gone away! I still get an occasional normal type headache that an asprin can take care of but nor more migraines. That's my story.... I pray this gives you hope.
Unread 06-04-2012, 10:07 AM
Re: hysterectomy, hormones, & migraines

I had a complete hysterectomy just over a year ago to hopefully stop my completely debilitating migraines. Thankfully it worked, I have only had 2-3 lesser headaches over the past year and they responded to medication which didnt happen before. My doctor had me go on Lupron for a few months before making the decision to have it done. Lupron stops estrogen production so it was a good test to see what a hysterectomy might do. Taking my ovaries was key though....
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Unread 06-04-2012, 10:20 AM
Re: hysterectomy, hormones, & migraines

My ovaries were removed and I still get migraines. I had mine in 2002, and since my relative's migraines (mother and aunts) all went away post-menopause, I was truly hoping that would be the case for me. I hope you find relief.

On the other hand, in 2008 I was diagnosed with estrogen-positive breast cancer, so I'm still very glad I chose to have my ovaries removed when my uterus was. The cancer might have been worse if I'd had more estrogen in my system during those years.

Hugs and good luck.
Unread 06-04-2012, 11:38 AM
Re: hysterectomy, hormones, & migraines

I suffered from migraines for about the last 20 years. They were wicked: I'd lose portions of vision and the pain would last 3 days. I tried taking zomig, but had to stop because of side effects (chest pains). Other drugs didn't help, so the only option for me was to avoid the migraine triggers. For me, the triggers were MSG, not drinking enough water, and either too much or too little sleep. Sometimes, though, I would get a migraine for which I could not attribute a trigger. Because of my migraines, I had to take birth control pills that did not contain estrogen.

I had a TAH (including removing ovaries) a year ago and am pleased to report that I have not had a single migraine since my surgery. I am convinced that removing my ovaries (and thereby removing estrogen from my system) did the trick for me.

To those still suffering from migraines, my heart goes out to you. Migraines are truly awful and I hope you eventually find relief.

For those people taking zomig. Please be careful and watch out for side effects. It is an extremely powerful drug. That's why it is so expensive and why docs only prescribe it in small amounts. The reason zomig works to kill the pain of migraines is because it is a vasoconstrictor drug. That means it constricts the blood vessels, such as in the brain, so it stops the migraine pain. For me, I developed chest pains from taking zomig, because it also constricts the blood vessels in the heart. Zomig is powerful stuff. Please be careful!!
Unread 06-04-2012, 12:09 PM
Re: hysterectomy, hormones, & migraines

I take topamax daily as a migraine preventative med. imitrex also comes in a shot form get samples from your doctor but if you are having more than 9'then you need a preventative hence topomax. It's a seizure medication but it seems to work keeping my migraines at bay. I have to watch sugar, caffeine, and water intake then I am fine.

Good luck!
Unread 06-04-2012, 02:10 PM
Re: hysterectomy, hormones, & migraines

I take Imitrex now, because Zomig had gotten so expensive. Over $100 per 6 pills, vs. the $15 generic Imitrex for 9 pills. It doesn't work quite as well, but if I take it with some Ibuprofin, and if I'm really stressed, a half a valium, it seems to work ok. I usually have to rest awhile before it kicks in, so its not as effective as the Zomig, but I simply couldn't afford it.
Unread 06-04-2012, 05:01 PM
Re: hysterectomy, hormones, & migraines

When I started to go through metopause, I started getting migraines 2 - 3 times a week. The doctor prescribed Paxil. I now take 1/2 of a 10mg tablet once daily. I have only had 1 migraine in the 7 years since I started taking Paxil.
Unread 06-04-2012, 05:18 PM
Re: hysterectomy, hormones, & migraines

funny how you come across things.. I use to get really bad headacks all the time, and haddnt had one since my hyst 3 months ago.. but got one yesterday and have takin today off work. hopefully its gonna go and tomorrow i'll be back on top
Unread 06-04-2012, 08:01 PM
Re: hysterectomy, hormones, & migraines

Have had migraines since I had meningitis in high school. I get the classic type where I have an aura so have some notice as well as all the other issues. I like many it seems finally went to a neurologist and have been put on topamax daily. It has been a God send as it has very much gotten them under control. I used to end up in the emergency room they were so bad and it has been over two years since that has happened. I also carry Maxalt as I had a reaction to Imetrex, the last time I ended up in the ER actually. I have found however, that taking Topamax seems to react with my BCPS and they have not controlled my mentrual symptoms as well. I also recently tried the Depo shot and it brought on, or at least am assuming as it has been over two years and didn't have a trigger happening, one of my worst migraines in years. Won't be doing that again!! Quite literally would rather have a hysterectomy I think than deal with migraines like this again.

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