6 years, still in pain | HysterSisters
HysterSisters Hysterectomy Support and Information
Advertising Info HysterSisters Hysterectomy Support Tutorial

Go Back   Hysterectomy HysterSisters > Hysterectomy Special Needs > The Road Less Traveled


HysterSisters.com is a massive online community with over 475,000 members and over 5 million posts.

Our community is filled with women who have been through the Hysterectomy experience providing both advice and support from our active members and moderators.

HysterSisters.com is located at 111 Peter St, Toronto, Canada, M5V2H1 and is part of the VerticalScope network of websites.

With free registration, you can ask and answer questions in our HYSTERECTOMY forum community, get our FREE BOOKLET, access Hysterectomy Checkpoints and more.

You are not alone. The HysterSisters are here for you. Join us today!
join HysterSisters for hysterectomy resources and support
Reply

6 years, still in pain 6 years, still in pain

Thread Tools
  #1  
Unread 10-31-2020, 07:40 AM
6 years, still in pain

My original surgery was June 2014. I had 3 more emergency surgeries after due to vaginal cuff being torn. The last one was Oct 2014 and my wound had opened, my colon was attached to my wound and I had free air in my abdominal cavity. It took me 9 months to recover from that. I had infections, including CDIFF for months following the surgeries.

I have had intermittent abdominal and pelvic pain since then. This flare up I’m going through now has been 5 weeks and no DR can tell me why I am in pain. It feels like my organs are so heavy in pelvis. I went to the ER on Wednesday because it got so bad I couldn’t walk. They found nothing. Went to see my gyno yesterday and she has no answers for my pain other than scar tissue maybe from all the surgeries. She advised me to see a GI dr.

Anyone still have significant pain years after surgery? I feel like drs don’t take me seriously and it’s getting very overwhelming.
Sponsored Links
Advertisement
 
  #2  
Unread 11-30-2020, 01:06 PM
Re: 6 years, still in pain

Melissa-
I am so sorry that you are going through this. I, too, had complications from my hysterectomy and CDIFF afterwards. I wouldn't wish CDIFF on my worst enemy!

I have been in the same boat, ongoing pain with no firm diagnosis. My docs seem to lean towards either adhesions (scar tissue) or nerve damage, but neither one is really provable without surgery...and I am sure not signing up for that! My suggestion is to see a pain doctor; I am convinced that mine saved my sanity.

After 9 years on meds, I have now been off all pain meds for over a year (not all solutions work indefinitely). But while the meds were working for me, they did give me a quality of life that I could not otherwise have achieved. I do still have pain, but it is no worse than it ended up being with the meds. I have also found a heating pad and physical therapy to be helpful.

I hope you find some solutions out there. Don't give up! You deserve a decent quality of life.
  #3  
Unread 12-31-2020, 08:16 PM
Re: 6 years, still in pain

hi. I just started pelvic floor physical therapy and I am shocked at how much it is helping my pain. I literally feel like my organs hurt sometimes. At first, I thought it was scar tissue or UTIs. Turns out some of my issues are b/c of me clenching my pelvic floor muscles too much and they have huge knots in the muscle. I felt some relief after first visit and I hope it continues.
Sponsored Links
Advertisement
 
  #4  
Unread 01-13-2021, 11:47 AM
Re: 6 years, still in pain

I, too, am in PT (for the 2nd time bec 1st time they were doing opposite of what i needed!) because knots in the muscles. Prior to this, I have had so many procedures done which either didn't work or didn't work for long. Latest was bladder instillation which made me 100x worse followed by Amitriptyline (same result, worse than previous feeling of pain). They kept thinking UTIs too.
I hope you can all find relief and get back to being healthy as soon as possible. I am so grateful for this site! Thank you.
  #5  
Unread 03-02-2021, 10:36 PM
Re: 6 years, still in pain

That is just too much suffering! Sorry you endured such long term problems. This may sound strange, but have you had your back/spine checked. I had a horrible feeling of fullness and upper abdomen was painful to even touch after hyst in 2001-trouble breathing, too. In 2013 a nurse friend told me i had a paralyzed diaphragm. A chiropractor pulled on the spinal nerves and that caused me breathe so much better, and pain was reduced significantly...I met a young woman 2 years ago who had exactly the same problem...after having a hyst....Just a thought. I pray you get pain free!
Reply

booklet
Our Free Booklet
What 350,000 Women Know About Hysterectomy: Information, helpful hints as you prepare and recover from hysterectomy.
Answers to your questions
Register




Thread Tools

Forum Jump

Similar Threads
From This Forum From Other Forums
7 Replies, Last Reply 11-09-2011, Started By wazzy524
10 Replies, Last Reply 01-14-2010, Started By calicass
8 Replies, Last Reply 06-05-2006, Started By Lynnels
1 Reply, Last Reply 06-18-2004, Started By marlorinaz
10 Replies, Last Reply 04-22-2004, Started By whitney13
6 Replies, Last Reply 05-21-2002, Started By clark790
1 Reply, Hysterectomy Recovery (post hysterectomy)
1 Reply, Endometriosis Support
7 Replies, No Uterus - No Ovaries - No Hormones - Managing Menopause
1 Reply, Hysterectomy Recovery (post hysterectomy)
3 Replies, Hysterectomy Recovery (post hysterectomy)
2 Replies, Hysterectomy Recovery (post hysterectomy)
3 Replies, Hysterectomy Recovery (post hysterectomy)
3 Replies, Hysteritaville General Discussions
4 Replies, Hysterectomy Recovery (post hysterectomy)
6 Replies, Hysterectomy Recovery (post hysterectomy)
2 Replies, Endometriosis Support
1 Reply, Hysterectomy Recovery (post hysterectomy)
12 Replies, Hysterectomy Recovery (post hysterectomy)
2 Replies, Hysterectomy Recovery (post hysterectomy)



Advertisement

Hysterectomy News

April 18,2021

CURRENT NEWS

HysterSisters Takes On Partner To Manage Continued Growth And Longevity
I have news that is wonderful and exciting! This week’s migration wasn’t a typical migration - from one set ... News Archive

TODAY'S EVENTS

Calendar - Hysterectomies - Birthdays


Request Information


I am a HysterSister

HYSTERECTOMY STORIES

Featured Story - All Stories - Share Yours

FOLLOW US


Your Hysterectomy Date


CUSTOMIZE Your Browsing  



Advertisement


Advertisement