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no date yet but already freaking out no date yet but already freaking out

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Unread 07-20-2010, 09:50 PM
no date yet but already freaking out

Hello ladies..just a lil bit about my situation...went to the doc today and she thinks i have endometriosis, am scheduled for a cat scan on friday. She said that a total hysterectomy was most likely in my near future as i dont just have a small case of endo..she says i have a mass. The reason i went in the first place was because i was having some pain during sex.

So i have been reading alot of posts on here and i'm totally freaking out about the sexual dysfunction area. I'm ALREADY depressed about it and i dont even have a surgery date! I'm sure this is TMI but my husband and i have a very happy and active sex life. I'm only 31 and I'm so sad already to think that it wont be the same. I would rather live with the endo and horrible periods than do my husband the injustice of losing my desire, or ability to orgasm. Sorry that this is very sudden but does anyone have any advice or encouragment for me? I'm in serious need of it right now. thx
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Unread 07-20-2010, 10:12 PM
Re: no date yet but already freaking out

Hi there sweetie!

It's very normal to be worried about this especialy since you are so young . I'm a little older than you (36) and getting ready for my TAH on Thursday.

My doctor told me that if you already have the ability to orgasm before the surgery, you will most likely have no problem afterwards. She said it might feel a little different but not much. My doctor also said that she will work with me to adjust my hormones if necessary but since I am keeping my ovaries, desire might not be a problem.

Wait and see what the cat scan results say first. Then ask if your doctor has other options for you if you are not ready for a hyst - maybe a myomectomy? Don't be afraid to seek a second opinion either.

Hang in there! You are not alone!
Unread 07-20-2010, 10:17 PM
Re: no date yet but already freaking out

Thank u so much for your kind words...i'm already making a list of questions to ask the doc after the cat scan. I'm some what of a worry wart and normally make things worse than they are before i even know how good or bad there gonna be lol! Thx agian!
Unread 07-21-2010, 07:19 AM
Re: no date yet but already freaking out

Hi, you sound like me only I have my surgery scheduled. Well, it was originally scheduled in June for an August date but I totally chickened out and canceled using the excuse that I'd rather have my daughter back to school full-time if I am going to go through this.

So, I have this date scheduled and STILL am not 100% sure I will actually go through with it. Although, I am leaning more towards it. You see, one of my biggest fears as a single mom with a boyfriend (over 3 years together) is what my sex life will be like after. Well, if you are anything like me/if we are going through the same, I can tell you that the reality is that while we do enjoy a great sex life and are very into each other, the sex is so inconsistent because of the pain I go through for 2 wks out of every month (Endo, ovary cysts, fibroids here, suffering a long time now, it is time) so .... I am thinking, things are exactly great now. This disease keeps gradually getting worse and more debilitating. I'm pretty sure I have to. Also, I have been finding lit reviews on here on different tabs that pretty much say if you were orgasmic before surgery, in time, after recovering, you probably will be like that again, another thing, they do point out that things might feel different but isn't it exciting that our SO or DH will have to learn our bodies all over again? I am scared to. But if it is running our lives don't we owe it to ourselves and our partners to go through with this? I'm leaning more towards yes. It is now my time. I hope you can come to some peace with this ... best of luck.
Unread 07-21-2010, 08:31 AM
Re: no date yet but already freaking out


Endo is a terrible disease. I had my lavh/bso due to stage IV endometriosis.

A few things I thought I would share with you is that a hysterectomy is not a cure for endo. Quite often women still find themselves suffering for years to come. That is why it is important to seek out an endometriosis specialist.

You mention you have a mass. Does your doctor suspect that it is an endometrioma?

If it were me, I would seek a second opinion and if at all possible, an endometriosis specialist.

You'll also find some very good information in our endometriosis resources. There are many options for dealing with endo. Remember that you are your own best advocate!

All of that aside, I was 31 when I had my lavh/bso. I have been extremely fortunate and not experienced any sexual dysfunction.

Unread 07-22-2010, 01:51 PM
Re: no date yet but already freaking out

Hi iluvatruckr.

I like your screen's cute.

I agree with LookingforaSis. A 'mass' can be almost anything. I would definitely get a second opinion from an endo specialist. I was told I needed a hyster due to an asymptomatic 2cm fibroid and my anemia. Turned out that I didn't even need a hyster--got a second and third opinion. Had to drop my gyn of more than 20 years, but it was well worth it because I just seem to have systemic health issues that are unrelated to gyn problems. If I'd had that hyster, I'd still be sick and that would be compounded with side effects of a hyster. My second opinion doc told me that even if I had needed the hyster, I should not have the one the gyn recommended, where she was going to do the lap procedure. Said I could have had a less invasive procedure had I needed the hyster. The third doc told me that I needed to seek out other options to a hyster, and she gave me info on those options. I learned from my second opinion doc that some docs do those lap procedures unnecessarily, and sometimes even remove healthy ovaries in the process. I learned from reading these forums that I have a choice (empowerment), whereas my original gyn made me think I had to take her opinion and implement it. What's more, even if I did need a hyster, would it have been done using the least invasive and best procedure for me?

Remember the legal phrase, "Caveat emptor", Latin for "Let the buyer beware" when listening to the some of the advice of some of these doctors. I have learned from these forums and from my experiences that we have to be very careful with the recommendations we take from our doctors as possible cures for our symptoms. Unfortunately, sometimes if it sounds too good to be true, it may be. I hope whatever you do that you get relief from your pain with the most least invasive procedure as possible, but I strongly recommend that you read through these forums, threads, and posts--especially those posts about endometriosis--so that whatever your decision turns out to be, it is an informed one.

Take care.
Unread 07-23-2010, 02:18 PM
Re: no date yet but already freaking out

I also am in a similar place (older tho) but I was told that even in a complete hysterectomy , the dr. does not remove the vagina and clitoris and those are the main items as you know. I think you can enjoy yourself along time! { I am 52}

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